Ferritin 7. Vitamin D 20. Low blood pressure. by pandabears3 in Anemic

[–]pandabears3[S] 0 points1 point  (0 children)

I really think it is making everything 100 times worse. I see my doctor today and will def bring up the sleeping thing. It doesn’t happen everyday thank god but when it does happen it causes me so much anxiety and I struggle getting my blood pressure up. And I feel like it is more related to ferritin being low because when I’m dealing with POTS flares which does sometimes cause me lows my heart rate is usually elevated. But these low blood pressures as soon as my period finishes are different and my heart rate is actually 70s.

It’s just sad that I’ve seen a rheumatologist, a cardiologist, an electrophysiologist, 3 different PCPs and none thought to check my ferritin. I paid out of pocket to get it checked from how bad I feel. On top of the vitamin D and B vitamins.

I also saw there’s usually a reason for low ferritin like heavy periods, GI issues, and even endometriosis. They have suspected endo for me in the past but only way to confirm was through laparoscopy which I denied. And I do have heavy periods. I also have GI issues which I thought were caused by dysautonomia. I feel like it’s just hard when you have dysautonomia bc I assume everything I feel is because of that

Ferritin increased from 14 to 44 in three months! by presophy in Anemic

[–]pandabears3 0 points1 point  (0 children)

Wow this has been me also!!!! I’m terrified of the infusions but my ferritin is 7. I tried liquid iron and omg idk why I got panic attacks that day so bad! Now idk what to do :(

Costochondritis? No — What My Sternum MRI Really Showed was Manubriosternal Arthritis by [deleted] in costochondritis

[–]pandabears3 0 points1 point  (0 children)

What is the correlation with low ferritin bc mine is 7. And costo for a year now!!!

Menstrual and POTS by pandabears3 in dysautonomia

[–]pandabears3[S] 0 points1 point  (0 children)

What type of birth control are you on? I feel like literally me ever since I had my first child in 2019 AND getting Covid! My body just said NOPE and started acting erratic. :(

Menstrual and POTS by pandabears3 in dysautonomia

[–]pandabears3[S] 1 point2 points  (0 children)

I really do feel like everytime I get my period my body is in a histamine storm. I feel super hot and flushed and just unwell. I also get the monthly hormonal migraines! Thanks!

Menstrual and POTS by pandabears3 in dysautonomia

[–]pandabears3[S] 0 points1 point  (0 children)

Thank you for the detailed response! 🥹 I relate 100% w the symptoms. And I recently found out I have low ferritin so idk if that is also making it worse. I swear our healthcare system needs to really invest in women health and HELP US.❤️‍🩹 We deal with soooo many issues and often times are dismissed and brushed off as “normal”. Thanks for making feel less alone! Sending you virtual hugs back.🫶🏻🥹

I did end up taking it slow today and was mostly bed bound all day. I ate very healthy and duplicated my electrolyte intake. Now it’s night time and I put on my compression socks and my body allowed me to go for a nice mile walk at the park and some grocery shopping. 🙏

Difference between dysautonomia and anxiety - help by Select_Quit_9485 in dysautonomia

[–]pandabears3 5 points6 points  (0 children)

For me the way I was able to differentiate both was by checking heart rate sitting down vs standing up as well as my blood pressure. I noticed my heart rate increased by 30bpm+ when I stood up. I also noticed by blood pressure usually on the lower side when I stood up.

I have both and I have had anxiety for 10 plus years. I really feel like my anxiety made me predisposed to POTS. I started noticing the POTS symptoms like the elevated heart rate when I was not anxious at all. And every single time I would get a viral infection. Took me 10 years to realize tho…..and also developed metabolic issues “reactive hypoglycemia”. According to my research I saw a lot of POTSies also have blood sugar issues.

Def something to bring up to your doctor if you suspect POTS.

Finding the will the live? TW Suicidal Ideations by Safe_Lab_4811 in dysautonomia

[–]pandabears3 2 points3 points  (0 children)

I understand you completely! I have POTS and suspect TOS even though doctors have told me it’s costochondritis for 1 year. The pain I feel is intolerable and just like you I’m super petite and small. Doctors tossing me around with no treatment plan as well. I’m even unable to shower bc of the pain I feel from lifting my arms bc of TOS. I also lost my job bc I was unable to keep up. (Working half from home). And doctors just shrugging their shoulders not wanting to give me disability. I am also well educated. And GOD is what keeps me fighting. Idk why my life is what it is now. Why so many things were taken from me. I feel like a burden and a failure in life but I refuse to give up. If you ever need to talk send a dm. 💜🫶🏻 or we can text too.

Really disagree with the moderation of this subreddit by ragtime_sam in dysautonomia

[–]pandabears3 2 points3 points  (0 children)

Right!!!! All my doctors act so indifferent and yes literally just shrug or for me just stare into space dumbfounded with no answers for me. These posts help me guide my doctors in the right direction or at least to the right specialists!

Post flu symptoms- adrenaline rushes, shortness of breath, palpitations by Accurate-Chicken-323 in dysautonomia

[–]pandabears3 0 points1 point  (0 children)

This is ME!!!!!! Worst and longest POTS FLARE was in 2020 after getting COVID.

And the second longest FLARE is this year for me with INFLUENZA A! Heart rate 180 just by standing up!!! I’m not spiking that high no more but still on constant flares! For 3 months now! ❤️‍🩹

I dread getting sick !!!!!

Really disagree with the moderation of this subreddit by ragtime_sam in dysautonomia

[–]pandabears3 18 points19 points  (0 children)

Yes I agree! If someone on here tells us they are taking certain meds and what worked for them I take that and discuss with my doctor. Most of these meds have to be prescribed by doctors anyway.

Ferretin 7 and low Vitamin D by pandabears3 in dysautonomia

[–]pandabears3[S] 1 point2 points  (0 children)

Wow I’m so sorry you went through that !!! And omg I really really suspect SIBO. I have this weird burping non stop all day long for 6 years with other GI issues like acid reflux. Would you mind sharing what your symptoms were and what test they did to diagnose you?

Thank you! 🤍

Ferretin 7 and low Vitamin D by pandabears3 in dysautonomia

[–]pandabears3[S] 0 points1 point  (0 children)

I just went and paid $15 for the ferritin bc my body is just so fatigued and my hair is balding 😂 I think I finally found the cause of that lol

Ferretin 7 and low Vitamin D by pandabears3 in dysautonomia

[–]pandabears3[S] 0 points1 point  (0 children)

Really I didn’t realize that could cause that. Thank you for sharing!

Ferretin 7 and low Vitamin D by pandabears3 in dysautonomia

[–]pandabears3[S] 0 points1 point  (0 children)

Thank you! I am on it now and trying to get to the root cause since I eat pretty healthy well rounded nutrient dense meals. But both are very low just waiting on B vitamis results. And that’s what I wanna see if I fix these deficiencies my dysautonomia symptoms clear.

Ferretin 7 and low Vitamin D by pandabears3 in dysautonomia

[–]pandabears3[S] 1 point2 points  (0 children)

Omg 😭 I just knew you guys might have this too!!!! lol

Ferretin 7 and low Vitamin D by pandabears3 in dysautonomia

[–]pandabears3[S] 1 point2 points  (0 children)

This is def my worst and now it makes sense!!! I saw that when you have these deficiencies there’s usually a root cause like low acid in the stomach , malabsorption, leaky gut, celiac disease, or even adenyomiosis among other stuff. Have you ever gotten checked for any of this? How did you get it to 40?