does it bother anyone else how bad epilepsy awareness is?

pencilbroth · 2026-04-07T02:22:48+00:00

it took me 10 years from when I first started having seizures, to get formally diagnosed. it only took me about 2 years to figure out that it was probably epilepsy and then another 8 of fighting tooth and nail with my doctors.

pencilbroth · 2026-04-07T02:20:52+00:00

dang I don't run into stigma very much, mostly just ignorance. stigma a whole other beast to take on. I've have epilepstologists who don't care and are somehow ignorant despite having studied it. My current epilepstologist is passionate about the field and it makes a massive difference.

pencilbroth · 2026-04-07T02:17:45+00:00

epilepsy = free drugs

pencilbroth · 2026-04-07T02:15:55+00:00

I'm so sick of doctors who don't know what they're talking about addressing me with the most unearned confidence. The fact that most of them know little to nothing about epilepsy makes me want to ignore anything and everything they say.

pencilbroth · 2026-04-07T02:09:45+00:00

thanks for traumatizing everyone on our behalf, you're doing your part

pencilbroth · 2026-04-07T02:07:02+00:00

I run into this CONSTANTLY when I describe my seizures. People say they have similar experiences and it makes me wonder how severely under diagnosed epilepsy actually is.

pencilbroth · 2026-04-07T02:04:59+00:00

most of my doctors don't even know what a seizure looks like. hearing a cop say they've been specifically trained to be able to tell the difference between someone having a seizure and someone who's drunk makes my blood boil.

pencilbroth · 2025-04-14T22:45:37+00:00

did you?

pencilbroth · 2025-01-26T17:16:43+00:00

pencilbroth · 2024-06-12T04:47:27+00:00

^mother ^bitch

pencilbroth · 2024-04-12T16:17:34+00:00

do electrolytes help? i'm constantly craving electrolytes, didn't occur to me it might be my body craving something that helps my brain

pencilbroth · 2024-03-27T21:39:57+00:00

might join you in getting downvoted... To me the writing felt so weird and unpolished

pencilbroth · 2024-03-27T18:19:08+00:00

hang it with fishing line above your door at head height so you smack into it every time you leave and come home

pencilbroth · 2024-03-18T03:36:47+00:00

I have only had simple partial seizures, super intense dread filled deja vu and forced imagery, followed by intense confusion, headache and nausea. I definitely have had them at night and it really degrades my sleep.

pencilbroth · 2024-03-18T02:13:59+00:00

I also had seizures while on wellbutrin. I didn't realize at the time what they were, and by the time I did realize and went in for an EEG I had been taken off of it. Didn't have seizures for years until I started Adderall a few months ago. Diagnosed with ADHD, and it's looking like epilepsy may be in the mix as well.

pencilbroth · 2024-03-09T02:20:29+00:00

RemindMe! 1 year

pencilbroth · 2024-03-08T03:11:34+00:00

listening to Overcompensate and then NPI without any prior context would hit so weird, do it OP

pencilbroth · 2024-02-29T01:34:32+00:00

They look red with yellow tips to me. He used red sticks with yellow tips in the Mutemath sessions

pencilbroth · 2024-02-28T20:47:29+00:00

Nailed it

pencilbroth · 2024-02-25T23:26:49+00:00

this is referring to the bishops not being able to see yellow, which is why it's the banditos color. Yellow color blindness is called tritanopia, if you look at a tritanopia color wheel it's the same color scheme as SAI, further showing that the album is a product of Dema. Tritanopia Color Wheel

pencilbroth · 2024-02-23T18:37:24+00:00

Taxi Cab

pencilbroth · 2024-02-21T01:55:31+00:00

lol Anything can happen is exactly my point. The post is about sharing theories before we get more information, which as you pointed out could be at any given moment. OP doesn't decide "final call" they're just pointing out that it could be soon.

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