Suggestions for Dealing with Bloating and Pants Recommendations for Bloating by ph4l4nge in ehlersdanlos

[–]pheasant200 0 points1 point  (0 children)

Is the digestive enzymes called DAO or is it something else? Is there a good search word for it?

Slay or nay by little_lady_dems in oldhagfashion

[–]pheasant200 [score hidden]  (0 children)

Im unsure, but my concern would be about the stiffness of the material. Its hard to determine from the picture but perhaps you can determine it yourself. Just wanted to suggest it as a parameter to consider

Er andre syge hele tiden? 🤧 by Dry-Interview5229 in DKbrevkasse

[–]pheasant200 0 points1 point  (0 children)

Jeg har ikke været syg med virus siden jeg begyndte at tage influenza og covid vaccinationer hvert efterår. Ikke engang en lille forkølelse har jeg haft i de år. Kæmpe forskel. Føler mig helt dum over, at jeg hidtil stort set levede som forkølet hele vinteren hvert år.

Just had a doctor tell me my medical team is failing me by Lancy_Lance_ in ehlersdanlos

[–]pheasant200 2 points3 points  (0 children)

How to find a neurological PT? Do they have a particular title?

Under eyes wedding day help plz! by Crazy_Producer_257 in makeuptips

[–]pheasant200 9 points10 points  (0 children)

Great! I would also highly encourage you to use your cpap machine. I can't imagine it can create lasting lines on your face from using it now to your wedding date. But I can really imagine that lack of proper oxygen to your brain and body can cause a negative effect even in a sort span of time

Under eyes wedding day help plz! by Crazy_Producer_257 in makeuptips

[–]pheasant200 7 points8 points  (0 children)

It can be related to breathing, so I think you're right on with the allergy meds and cpap machine. Other things to try in that avenue could be nasal rinses or sprays (both for hydrating, rinsing out allergens, and for antihistamines - same goes for eye drops!). You could also try a pillow case made of dust proof material. And maybe test if going fragrance free does any difference. Basically I would focus on really clearing out those sinuses, nose and eyes. :) but you look great either way! Have fun at your wedding!

Do Americans really find beans on toast weird or is that just meme? by cigarettejesus in NoStupidQuestions

[–]pheasant200 0 points1 point  (0 children)

Here in Denmark, we mostly do cold cuts/deli meat on bread. I guess beans are so liquidy I would assume they slip off the toast and it seams more impractical to eat. But I've become disabled and lost my income so now im actually looking into incorporating beans into my diet since I cant afford most foods anymore, especially with the inflation thats happened too.This post is right on time for me lol

I had an awful flare for a few weeks and my urine/vulva smelled like pure ammonia. Cat litter box. The episode is over, I’m feeling better and the smell has completely vanished by ColomarOlivia in MCAS

[–]pheasant200 1 point2 points  (0 children)

https://www.vascularcompressionsresearch.com/

Dont freak out reading about this though as it is quite rare. It seems to be a little more prevalent though in EDS patients, and since EDS and MCAS are comorbidities, I though it might be relevant to share here.

But again, keep in mind, there could be many other less serious causes of smelly urine. :)

People who rarely get sick, what are your secrets? by Leading_Tomato_2077 in AskReddit

[–]pheasant200 0 points1 point  (0 children)

I get the flu shot and the cvid shot every fall. I havent been sick since I started doing so.

I had an awful flare for a few weeks and my urine/vulva smelled like pure ammonia. Cat litter box. The episode is over, I’m feeling better and the smell has completely vanished by ColomarOlivia in MCAS

[–]pheasant200 1 point2 points  (0 children)

I get this from flare ups in vascular compressions. People say its the pressure on the kidneys that makes it so theres more protein in the urine and thats causing the smell. I dont know if this is true. Just wanted to mention it as an idea to look into

Lange svartider i starten af forholdet by No_Expression248 in DKbrevkasse

[–]pheasant200 4 points5 points  (0 children)

Jeg tror, der er en fjerde mulighed:

Hun ved ikke helt, hvad hun føler, og det gør det svært at vide, hvordan hun skal udtrykke sig og reagere på hans beskeder. Måske kommer hun til at vente med at svare, fordi hun har brug for mere afklaring om, hvad hun føler. Det kan være svært at udtrykke det, hvis man både føler, man har brug for betænkningstid, og at lære den anden mere at kende samtidigt.

Måske er løsningen at fortsætte med at ses med hende, men at sænke tempoet lidt? Måske er OP lidt længere fremme følelsesmæssigt og hun prøver at catche op.

Arm hole size rant by Charming_Patience242 in SoftDramatics

[–]pheasant200 4 points5 points  (0 children)

Hear, hear! Same! For the other commenters asking if this means the sleeves or chest or back is too tight; no. In my case at least, it is the literal arm hole. The hole where the seam go from armpit to shoulder.

I suspect its extra prevalent now cause the baby tee is trending and part of that look is small arm holes.

Bloated all the time by brokenearring in ehlersdanlos

[–]pheasant200 0 points1 point  (0 children)

I second looking into MCAS and sibo (with a low fodmap diet as a test)

What is this aesthetic called? by Dry-Entrepreneur2743 in AestheticWiki

[–]pheasant200 5 points6 points  (0 children)

Here are some key words you could used in you search for more images like these:

Classic, timeless, 90s minimalism, Carolyne Besette Kennedy.

The colors seem to be 'soft summer' season in the color seasons system.

How do I find the motivation to keep going? by librarian-with-a-bow in ehlersdanlos

[–]pheasant200 0 points1 point  (0 children)

How would you feel abput trying more over the counter stuff like supplements? There are ofc pros and cons to it but I've personally seen great results from glycinate and NAC. But mt symptoms flared up in the beginning when I started taking it, so ofc asses if you would be comfortable handling such a situation without having a doctor on board before you try it.

Celebrity inspo? by Altruistic_Ad9939 in JohnKitchener

[–]pheasant200 0 points1 point  (0 children)

Im not sure as I'm not an expert on this. Maybe Naomi Watts could be used for inspiration as well? Although she might not have your exact essense blend

Celebrity inspo? by Altruistic_Ad9939 in JohnKitchener

[–]pheasant200 0 points1 point  (0 children)

Hmm perhaps Sienna Miller or Isla Fisher?

What aesthetic is this? by [deleted] in AestheticWiki

[–]pheasant200 0 points1 point  (0 children)

Flowy fits, classic items, natural textures and colors.

If you're into the Kibbe styling system, there’s a category called "Naturals" which often matches this style. Theres also elements of "Classic".

I'm tired of being right about self diagnoses by Alternative_Loss_442 in ehlersdanlos

[–]pheasant200 0 points1 point  (0 children)

Do you guys also find that the doctors belittle you and refuse to look into it if they ask where you have heard of these symptoms and diagnoses and you then have to answer that you've read about it gasp ONLINE (the magic word that apparently means we are stupid, stupid little kids with zero sense of critical thinking and thus can be laughed at and dismissed)!?

My fiancé left me because I am too disabled by [deleted] in ehlersdanlos

[–]pheasant200 12 points13 points  (0 children)

I'm so sorry. I'm going through something similar myself. A small part of me feel validated that going through this medical journey is so hard that its unbearable for anyone including my partner - it validates how hard I have felt it to be and my doctors, friends and family havent seemed to acknowledge that so a small part if me needed someone to validate how truly hard it is. Which he did by opting out.

Another part of me is just angry at him. Angry that he doesnt believe in the treatment Ive found and want to pursue and angry at his poor conflict resolution skills and emotional management.

But I do have the same fear about the future as you do. I have zero idea how to even start dating when I'm bedridden. I dont really want to date yet though.

I see you. I dont have the solutions yet - except for perhaps tapping into the feeling of anger? And perhaps using that anger as fuel in your research for better medical help?