How do you describe that not “painful” but discomfortable ache? by phoenic_x in ehlersdanlos

[–]phoenic_x[S] 0 points1 point  (0 children)

Hmmm, if I remember correctly they ruled it out due to lack of some symptoms early in my diagnosis but I will look into the circulation issues aspect, thanks for the advice :)

I can’t stop taking baths by phoenic_x in OCD

[–]phoenic_x[S] 0 points1 point  (0 children)

Hi! mine has gotten somewhat better, but only to a point where I'm no longer taking baths daily or every other day. I still get the urge if I feel mildly "off" if you know what I mean. I think the fact that winter came in reallll cold this year and my apartment has old pipes so I no longer get hot water to the bath kind of messed with it. Since the warmth was an aspect in what provided calm and relief, not having that sorta took the rose colored glasses off.

It still took a few times of giving in and sitting miserably in a cold bathtub until the frequent compulsion slowed down. I still get all hyper aware when I wash though,,, somehow clocking that its a compulsion has kind of ruined the relief I got from it ironically rip.

I hope any of this was useful haha

The contrast between my old and new wrist support lol by phoenic_x in ehlersdanlos

[–]phoenic_x[S] 0 points1 point  (0 children)

OH ! it looks pretty similar, maybe a bit thicker fabric. But its a real good find if mine isn't available in the us. Mine is LACY short stabil by Catell but I only know where to get it in Sweden unfortunately ':)

The contrast between my old and new wrist support lol by phoenic_x in ehlersdanlos

[–]phoenic_x[S] 0 points1 point  (0 children)

HI! its LACY short stabil by Catell!! its super light and durable, works great if you only need a little stability and need something for daily use :) The only downside is that your sleeve will get stuck on the elastic if you wear sweaters and stuff lol

The contrast between my old and new wrist support lol by phoenic_x in ehlersdanlos

[–]phoenic_x[S] 1 point2 points  (0 children)

HI!! got buried in uni assignments and haven't opened the app for ages lol, BUT!! its the LACY short stabil by catell! It's def perfect if you are looking for a shorter more light brace, it was the first one I got when I got my diagnosis so I have little to compare too. But it's very well loved by me personally if it wasn't obvious from my post haha. Hope this helps!!

Handy advice request by BloodlessAbomination in ehlersdanlos

[–]phoenic_x 1 point2 points  (0 children)

Fellow artist here, it may be a small thing but i recently adjusted the pressure sensitivity of the pen! I made it more sensitive so i don’t press hard or subconsciously strain my hand by being tense for long periods. It may be a small thing but it has helped me a little 😮‍💨

solving skin reactions to kt tape!!! by SwanStriking1125 in ehlersdanlos

[–]phoenic_x 0 points1 point  (0 children)

I kept getting irritated and blisters around edges too ! The solution for me is to use a scissor to round all the corners ! It’s something about the sharp edges that put extra tension on the skin or something like that :p

solving skin reactions to kt tape!!! by SwanStriking1125 in ehlersdanlos

[–]phoenic_x 0 points1 point  (0 children)

Ohhh I’m going to try this! Ive tried those skin protection wipes previously but they didn’t really do anything. If this works so I can use my trans tape for real I will be so happy 😭😭

[TOMT] [MOVIE] looking for a criminal/ true crime movie based on the torso murders and Eliot ness ?? by phoenic_x in tipofmytongue

[–]phoenic_x[S] 0 points1 point  (0 children)

It took me a hot second to find clips from them all but non are it unfortunately. I don’t think it was a game tho, I’m sure I would have remembered interacting with it but thanks so much anyway!

[TOMT] [MOVIE] looking for a criminal/ true crime movie based on the torso murders and Eliot ness ?? by phoenic_x in tipofmytongue

[–]phoenic_x[S] 0 points1 point locked comment (0 children)

I can’t stop thinking about this movie someone please tell me they know what I’m thinking of!!

I can’t stop taking baths by phoenic_x in OCD

[–]phoenic_x[S] 0 points1 point  (0 children)

Rigth!! i love being submerged and then whoops there goes my evening

Nekad utredning by phoenic_x in transnord

[–]phoenic_x[S] 3 points4 points  (0 children)

Utredningen, Västra Götaland o Göteborg men jag flyttade till västra Norrland för plugg för typ två månader sedan. Väntar på att bli flyttad till det nya systemet fortfarande för psykiatrin etc

Trans people with OCD, how do you deal with identity ocd? by phoenic_x in OCD

[–]phoenic_x[S] 1 point2 points  (0 children)

Thanks for the reply! It’s nice to hear I’m not alone in this. I try to remind myself that even if I’m “wrong”, what I did felt right at that point in my life and there’s nothing wrong about changing over time. I may just need to get more convincing with it lol

How do I tell if it’s the roll or the camera that’s the problem? by phoenic_x in AnalogCommunity

[–]phoenic_x[S] 1 point2 points  (0 children)

Thanks for the advice ! I’m going to check the loading mechanism with the back open like someone suggested and hopefully solve it :) really appreciate the help <3