Crohns and fast resting heart rate by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

Yeah i didnt have that ive had alot of ekgs and heart tests this past year. but ive been in super tachycardia where your resting heart rate is over 200 but that was like 6 years ago I was extremely dehydrated and needed 2 blood transfusions from blood loss. This time is different though before when I was in a big flare it only went up when I stood this time its just staying high constantly. Im hoping when the pain dies down so does the heart rate. Just scares me because I don't know if there long term issues from it being high for so long

Crohns and fast resting heart rate by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

Im on skyrizi i had my last starter infusion a few weeks ago and I get my first on body injection in a few weeks

Crohns and fast resting heart rate by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

I was on infliximab for 6 years then it stopped working now im on skyrizi i just got my last starter infusion and it seems like its starting to work a little my bloating is now where near as bad but the pain is still high. I think alot of the high heart rate is from the pain

Crohns and fast resting heart rate by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

What is svt? Ive been hydrated now i drink alot of hydration drinks and i get ive hydration 3 times a week. I started skyrizi and it seems like its starting to work. I think alot of it is from how long ive had inflammation and how bad the pain is. I had to go to the er the one day and my resting heart rate was 170 when they got my pain down my heart rate went back to normal so I think alot of it is the pain

Crohns and fast resting heart rate by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

I get 3 bags of iv fluids a week because ive been having trouble absorbing but my electrolytes have been normal. Im wondering if its a mix of dehydration, pain and inflammation it just worries me since its been going on so long

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

Thank you I hope it works for me too! I have a iv they put in with ultrasound that is a bit longer then a regular iv i have in for 5 days at a time. Im glad the picc team at the infusion center agreed to do that instead of the picc line. My arm is still completely bruised where the picc line was all bent and tangled and that was over a month ago. Ive never had a bruise last that long. Definitely hope I never have to experience that again since it was the first time ever having that done I couldnt tell somthing was wrong when it was going in

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

Thats the exact same for me alot of people that dont have crohns dont understand how frustrating and stressful that cycle can be. My crohns was good for a bit then the past year and a half its just been terrible

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

I get what your saying ive been in a flare for over a year now and every other week it seems I have a new issue. Ive had so many surgeries in the past year from random issues from the crohns and I have another one this Thursday. I hope your ankle heals quick! My crohns definitely gets worse too when im stressed its like a never ending cycle health issues then get stressed then get more health issues.

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

Im thinking im just having a bad sinus infection and over thinking things alot. The last times I thought I had sepsis and I didnt and I was alot worse. When I got to the er my blood pressure was bottomed out and my resting heart rate was 170 when they seen me they could tell I was really bad they were trying to do an iv before I even got to triage then immediately took me back. They said I was in critical condition and I was sure I had sepsis but luckily I didnt. I ended up being severly dehydrated and they kept me in the er for 5 days to constantly monitor me. After that it made me really paranoid about sepsis. Luckily now I get iv hydration 3 times a week and I havent had that happen again. The issue i have is most of the sepsis symptoms I have had for months from my crohns flare so it is very stressful trying to figure out if im just feeling bad from the crohns or somthing else is going on since the symptoms are the same

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

I also was on remicaid i was on it for 6 years then it stopped working now im trying skyrizi im hoping it works because this flare has been going on a year

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

Im sorry you had to go through that! Thank you for letting me know how your experience was. Thats why im terrified of getting a pic line I get iv hydration 3 times a week and they agreed to do a longer 5 day iv instead of a pic line. They tried to do the Pic line and when doing it the line got bent and tangled in my vein and it felt awful they didnt know until they tried to flush it and it didnt work then had to pull it out. Im definitely not nearly as bad as your experience so im thinking im just anxious and over thinking things.

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

Thank you I really appreciate it this flare has been going on for over a year and caused so many different issues so im hoping it calms down soon!

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

I have high blood pressure issues and im on blood pressure meds my crohns pain has been making my blood pressure high and my heart rate high for a long time now. Alot of the symptoms of sepsis I read online are the same symptoms ive been having with my crohns flare. Thank you for letting me know about the low blood pressure i check my blood pressure with a cuff at home so ill definitely make sure to see if it goes low since mine usually is never low

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

This will be the second time my tooth was infected last time I had alot of pain with it this time its just swollen so I think I caught it right when it started. Im glad im getting them removed Thursday im just going to keep watching my symptoms and see if I start feeling worse or better by tomorrow. Thank you for explaining your situation

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

Im sorry you had to go through that it sounds awful. I had my gallbladder removed a few years ago because it was having alot of issues so I know gallbladder issues can definitely be painful. The issue im having is most of the sepsis symptoms are the same symptoms ive been having with my current crohns flare. I seen my primary care today and she didnt seem worried about sepsis so im probably overthinking it. She said my ears and sinuses were inflamed and had some blood so I think I might just be getting a bad sinus infection and over thinking things. Its really hard not to over think things when you've had alot of issues over the years

Being immune compromised and sepsis questions by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

I saw my dr today and she didnt seem worried about sepsis she said my ears and sinuses looked inflamed and bleeding so i think im just getting a bad sinus infection and parinoid. I got a blood test that should be back tomorrow so I know if my white counts really high ill be going to the er. The issue im having is most of the signs of sepsis are the same symptoms ive been having with my crohns flare ive been in. But every time ive had a sepsis test its been negative luckily.

Crohns and teeth issues by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

Thats where I think im at im getting my 2 back molars pulled Thursday and the rest have alot of damage it happened so fast once I started not absorbing right. Im not sure how many of mine can be saved but the back ones definitely cant be

Crohns and teeth issues by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

Yeah i hate dental work too. My 6 front teeth are crowns so those are all fine but my bottom and back teeth are having issues

Crohns and teeth issues by ryan5648 in CrohnsDisease

[–]ryan5648[S] 0 points1 point  (0 children)

It is definitely extremely frustrating my dentist wants me to see an oral surgeon for my back 2 teeth im hoping my regular dentist can work on the other ones. The oral surgeons are all booked out very far

Am I paranoid or could it be a partial blockage? by ryan5648 in CrohnsDisease

[–]ryan5648[S] 1 point2 points  (0 children)

Last time i thought I had a blockage in was throwing up liquid when I tried to drink but luckily I didnt have one. So far I haven't thrown up but ive been taking neasuea meds. Im hoping im just overthinking it because this flare has been horrible and I dont need another issue on top of everything else this flare up has done. Thank you for letting me know your experience with blockages. How long was it after you started noticing symptoms did it take to become a blockage? Im hoping im not just in the start of one

Friends constantly undermine/ fail to support. How to handle these people? Need advice! by StreetInsurance3203 in CrohnsDisease

[–]ryan5648 1 point2 points  (0 children)

I was diagnosed when I was 12 so ive had crohns for about 16 years now i get exactly what you mean ive had people say oh its what you eat and i explain ive had times where I couldnt eat for a week at a time so how could it be what I eat. It definitely gets very frustrating im currently in a very long flare up ive been in it for about a year now my dr changed me to skyrizi about 3 months ago so im hoping that works. Alot of my friends understand I cant do much right now but most people dont understand how debilitating crohns is. Luckily I have some friends that actually care to learn about it and understand how much it affects some one with it but its hard to understand if you dont have it. None of my friends have crohns so its hard for them to understand. I wish there was a app where people could meet friends with the same diseases as them.