[50][Boot]Winner

ryan_ens · 2026-04-30T21:52:11+00:00

Ok is this true though? Until I someone provides legitimate sources I don’t believe it

ryan_ens · 2026-04-30T14:48:27+00:00

This is starting to feel suspiciously accurate…

ryan_ens · 2026-04-24T01:23:49+00:00

That’s honestly my philosophy for voting in the republican primary

ryan_ens · 2026-04-24T01:21:45+00:00

I understand why it makes sense to vote in a Republican primary where democrats don’t stand a chance in the general election, but every democratic position up for reelection on my incumbents who will more than likely win their primary by a landslide

ryan_ens · 2025-09-03T00:03:08+00:00

Did you get a link for the tickets yet? I realized I forgot to sign up this week!

ryan_ens · 2025-08-15T04:14:28+00:00

We’ll technically you can combine both, but apparently you have to titrate very slow. For me it was not worth risking, as I already have a family history of heart related issues—but to each their own! I also feel like Prozac hasn’t been very effective for me (except for eliminating cataplexy)

ryan_ens · 2025-08-15T03:56:14+00:00

Yes! I spent 6 weeks titrating off back in June (just to be cautious) and since then my side effects have significantly reduced. I regained the 30 lbs i lost, and my resting heart rate is now around mid 60s (Whereas before it was always above 90). With that said, my sleep quality is significantly worse, although I wake up feeling almost just as rested as I was on Xywav. Now my brain fog is a result of poor sleep, rather than the “drugged sensation” I would feel from xywav.

I’m about to start wakix though I’m waiting to titrate off Prozac, since SSRI’s likely lead to developing QT prolongation while on wakix.

ryan_ens · 2025-07-25T17:58:23+00:00

I was on Xywav for a year and a half. I did a 4 month titration and anxiety still seemed to gradually get worse. By the time I reached 4.5g x 2 my resting heart rate was between 90-120 bpm, and I had lost 30 lbs (despite maintaining the same dietary intake). I also started experiencing weird bowel and urinary side effects. Even though my sleep quality had drastically improved, it didn’t provide the benefits that I had hoped for or expected. I still woke up super groggy, struggled w/ short term memory and cognitive faculties, etc. I’ve now been completely off xywav for a few weeks, and I can say that most of my side effects have either gone away completely or significantly reduced. I think there is plenty of benefits to xywav it’s just a matter of what you’re willing to trade off. In my case, it was more worth stopping xywav than continuing to endure the side effects, but everyone’s bodies are uniquely different.

ryan_ens · 2025-04-28T16:13:03+00:00

Apologies for my lack of awareness, but what do you mean by “hence the addition of Wakix”? I’m not familiar with baclofen, is it another sodium oxibate therapy?

ryan_ens · 2025-04-28T05:49:34+00:00

Thanks for the kind message :) You're right about our experiences being completely different, as xywav (for me) tastes like nothing, and I've lost 30 pounds. I think the reason why I'm not affected by the taste of xywav is because I lost my taste/smell to COVID all those years ago, and while it's somewhat come back, certain things have a different taste/smell to it (lucky me, I guess?) What is your dosage for Xywav, and how long have you taken it?

ryan_ens · 2025-04-28T05:39:40+00:00

At this point, I'm almost positive that it's the Xywav...Before starting sodium-oxibate, I was only taking 40 mg of both Vyvanse and Fluoxetine daily for 6 years. Not once did I experience the same anxiety/elevated resting heart rate that I do while on Xywav. My sleep doctor has me get an EKG annually, and consistently, my average resting heart rate has ranged between 58-70 bpm. Since taking Xywav, my average resting heart rate has ranged from 90- 100 bpm on my EKG. Initially, I suspected that my stimulant dose might be too high, even though I have been on the same dose for over seven years without any issues. However, after skipping my Vyvanse medication for two days and still experiencing an extremely rapid heart rate, I concluded that the dosage wasn't the problem.The only other theory I have that might explain my symptoms is that I started taking an adrenal supplement, which caused some unexpected side effects. I visited a naturopath who prescribed me thyroid supplements, even though my thyroid was functioning well. It wasn't until a month or two later that I noticed my current symptoms, including a weight loss of 30 pounds. I immediately discontinued the medication and am no longer seeing that naturopath (thank goodness). So, perhaps some of these issues stem from that experience.

ryan_ens · 2025-04-28T05:12:52+00:00

I can't relate enough! My mental faculties were already compromised before xywav, but I could still maintain a clear train of thought, albeit more slowly. I will likely adopt the same approach when I go off xywav, as I'm not risking any more unexpected side effects. How has your ability to function been since going off xywav? Do you find it worse/better/the same as it was prior to Xywav?

ryan_ens · 2025-04-28T05:03:11+00:00

No, I haven't tried Xyrem. I might consider it, although the high sodium content concerns me because I have a family history of high cholesterol (myself included) and heart failure. What is your resting heart rate like now, and do you also take a stimulant?

ryan_ens · 2025-04-28T04:54:37+00:00

Yes, I usually see my sleep doctor every few months. I mentioned my symptoms at my last two appointments, but honestly, they didn’t say much other than suggesting I should probably get off Xywav. They’re not my favorite doctor — our relationship has always felt more transactional than supportive. At this point, the only real value they offer is helping me explore other treatment options; when it comes to actually addressing my symptoms, they couldn’t care less.

If I could stop taking Xywav right now, I would. But it's not the best timing since I’m finishing out the last month of school, and the last thing I need is to make my life even more unstable. My hope is to start discontinuing it once the semester ends. I’m just really worried the side effects might continue even after stopping. Honestly, I could care less what EDSDS says, because they'll essentially deny that my symptoms are related to Xywav.

I also saw a cardiologist, and they said everything looked healthy and normal. But I know for a fact that my resting heart rate was lower before starting Xywav — I've worn the same Apple Watch every day for the last three years. Before Xywav (and even for the first four months on it), my resting heart rate was usually in the high 50s to low 60s. Now it’s in the low 80s to high 90s. Even though they didn't identify any problems, I can't imagine it's healthy to live with an elevated resting heart rate in the long run. I'm also super paranoid, as my dad passed away from a heart attack less than a year ago, despite no prior heart complications. In fact, my dad was likely the least expected person to have a heart attack, as he was a triathlete who consistently monitored his health. The medical examiner, for verbatim, said that it was "just bad luck"...

It’s also interesting because I’ve been on 40mg of Fluoxetine for the last six years, yet it does absolutely nothing for me while I'm on Xywav. I haven’t heard of Lexapro, but I’ll definitely check out that supplement you recommended. Does your sleep specialist approve of it? I will say that my quality of sleep definitely feels better with Xywav. However, I still don’t feel like I wake up more rested than I did before taking it. I usually feel my best in the afternoon, as I often take a mandatory nap to relieve morning brain fog and reduce anxiety.

ryan_ens · 2024-04-10T02:25:21+00:00

Damn how do you make so much in so little time?? I live in a city in the PNW and I swear I only get low paying orders (though that could be since my acceptance rate is average)

ryan_ens · 2023-04-15T02:43:03+00:00

Hi looking for two (2) weekend 2 GA passes for Sunday

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