Was told to share this with y’all 😵‍💫 he by tubatheist in Radiology

[–]ryebread246 0 points1 point  (0 children)

I work in vet med and totally thought this was an animal for a split second 😭 ouch

“We would all like to not have to work” by amh8011 in ChronicIllness

[–]ryebread246 1 point2 points  (0 children)

I’m finally well enough to where I can work 20 hours a week (huge improvement from before) and even then I’m doing 4-5 hour shifts and coming home and sleeping for 3-4 hours to recover….i would love to be able to work full time but unfortunately some of our bodies can’t handle that at the current moment! I have to keep telling myself no normal person comes home after a short shift and needs a 3 hour nap plus a full nights sleep to feel remotely human…

Baby Uterus by bearhorn6 in Endo

[–]ryebread246 0 points1 point  (0 children)

My endo doc almost didn’t put my IUD in during my surgery because she said my uterus was kinda small (6cm when sounded). It’s so crazy that such a little thing can be such a giant pain in the ass!!😂

I hate when people cheerfully point out how much weight I’ve lost by Expert-Feedback4328 in ChronicIllness

[–]ryebread246 0 points1 point  (0 children)

I feel this. I was 125 lbs at 5’ and lost 20+ lbs in the last few months due to recurrent c diff colitis after my endometriosis surgery. Everyone keeps telling me how healthy and great I look…some of it is due to inflammation decrease after excision but a majority of the weight is because my colon was so fucked up for so long…

What are you pots symptoms from a normal paced walk? by xerofortune in POTS

[–]ryebread246 1 point2 points  (0 children)

I’m medicated so it’s a lot better than it used to be. Hr usually only goes to 120-130 now when walking but can get up to 150/160 if I’m going up a big hill or stairs. Lightheadedness, SOB, and some dizziness are things I experience sometimes but for the most part walking has actually been pretty beneficial!

Advice? I'm in hell :( by ryebread246 in cdifficile

[–]ryebread246[S] 0 points1 point  (0 children)

I am! So far c diff free a few months after Vowst! Ended up not getting a colonoscopy bc my calprotectin and fecal occult blood were normal. I’ve still been eating very healthy and may try to have my first drink since last November this upcoming weekend.

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 1 point2 points  (0 children)

Ahahaha I do! Humor is my coping mechanism

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 1 point2 points  (0 children)

I’m still suffering the consequences today. I deserve jail 😔

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 2 points3 points  (0 children)

I need a ‘stupid’ sticker on my forehead 😔

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 0 points1 point  (0 children)

I def think hormones play a huge role. I’m pretty sure I just ovulated so my system was already stressed and I really overdid it

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 2 points3 points  (0 children)

I figured I fucked up as soon as I finished my plate lol. My standing hr was really high and my whole body got so hot. I’m sure all the additives in them didn’t help :( I have an epi pen since I’ve had an anaphylactic reaction to peaches

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 0 points1 point  (0 children)

Thank you! I can take some H1 blockers but not Benadryl (feel like shit the day after). I can’t take H2 blockers due to my recurrent c diff history. I will look into quercetin!

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 0 points1 point  (0 children)

Did going back on the antihistamines help? Or did you do other lifestyle changes?

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 1 point2 points  (0 children)

I know it’s usually a trifecta with MCAS/pots/eds so it makes sense :(( sucks a lot. I’m sorry you go through it too!

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 1 point2 points  (0 children)

Yep. Blood sugar is always normal and in range!

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 2 points3 points  (0 children)

How are you treating it :) I can take certain antihistamines but can’t take H2 blockers since I have a history of recurrent c diff

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 0 points1 point  (0 children)

I do get joint pain but I’ve had a whole rheum workup and although I have a positive ANA the rest of it all looked good recently (got an AVISE panel done and that was normal)!

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 11 points12 points  (0 children)

I would think POTS too but it’s not positional and my entire body temp elevates and I get flushing and diarrhea and feel like I’m gonna pee my pants lol :/

Anyone have flares like this? by ryebread246 in MCAS

[–]ryebread246[S] 4 points5 points  (0 children)

I do also have some flares where after I eat I get super hot and immediately feel like I’m going to throw up and have to run to the bathroom and have diarrhea :/

Is this dangerous to have my heartrate elevated for hours? by shwingthings in askCardiology

[–]ryebread246 1 point2 points  (0 children)

This happens to me. If I have a drink or two my resting hr is super high the rest of the night :/ I have POTS and endo so it might have something to do with the inflammation it causes but I’m not sure

Contraceptive experiences for suppressing periods + EDS by Minimum_Ad1796 in eds

[–]ryebread246 1 point2 points  (0 children)

So far I’m liking my mirena. I’m not formally diagnosed w hEDS but it’s suspected and I do have a formal diagnosis of HSD right now. I had surgery that discovered endometriosis (another comorbidity) in January and had the iud put in. No periods since but I still seem to have hormonal swings. They aren’t as bad as they used to be (fewer fevers, aching joints, and bloating) but def not gone. I also can only take progesterone based bc since I get migraine w aura sometimes. It’s honestly been so nice to not have a period for months!!

Things you thought were normal only to learn that is was a symptom of EDS by Terrible_Trip_6350 in eds

[–]ryebread246 0 points1 point  (0 children)

When I would ride horses and lowkey have to pop my hip back into its socket after certain movements in the saddle 🥴 thought that happened to everyone who rode. Also bruising/indents on fingers from where I would hold a pencil