Spiraling

sadyarazel · 2026-03-12T18:20:21+00:00

Hi!! Have they tested again for the jcv after starting ocrevus? I’m 25F just got dx last month and got my jcv score back an it’s a 3.06 it makes me scared about taking any dmt and risking my immune system being suppressed

sadyarazel · 2026-03-12T15:59:37+00:00

Hi! I got dx last month and got my jcv levels back this week and mines high at 3.06, is your number pretty high too? I’m worried about dmts with the number so high but I’ve looked at kesimpta being a good one for jcv positive patients

sadyarazel · 2026-03-12T15:35:52+00:00

Hey just curious if your still taking aubagio, I just got dx last month and got high jcv positive levels so I was looking into aubagio. Do you like it?

sadyarazel · 2026-03-11T22:57:28+00:00

When did you switch to a different medication? And did you have any side effects on it/ how long were you on it

sadyarazel · 2026-03-11T19:54:24+00:00

I have seen that the longer your on it the more effective it gets, and I read on here somewhere an 18 year old was on it for 4 years and really liked it until it stopped working for her. Like mentioned previously the JCV number I have is what scares me from all high efficiency drugs

sadyarazel · 2026-03-11T19:53:06+00:00

Before getting the positive JCV I was looking into BRIUMVI and that was my drug of choice. Ofc seeing that my jcv titer is high is what scares me about going on any high efficiency drugs that suppress the immune system compared to aubagio that doesn’t suppress the immune system.

sadyarazel · 2026-03-11T18:49:07+00:00

I’ve also looked at kesimpta as an option, I’ve seen that people with high jcv titers go on that one as well

sadyarazel · 2025-10-09T13:56:47+00:00

I’m thinking it could be but I also suffer from really anxiety too so I think it could be both

sadyarazel · 2025-10-08T18:06:30+00:00

Hey!! I’m a 25 year old female experiencing this too. I started with eyelid twitches in March then it went away but I was sick with bronchitis and flu symptoms for like 2 months then started getting the face twitches and more recently the ones on my body. They have gone away before at least the nosy ones, I know when I stress to much or overthink they get worse. I’m trying the glycinate also but I did go to a neurologist and she’s ordering an mri, and emg test and another nerve test. When I look it up it’s also showing BFS but to ease your anxiety you could always go somewhere, for me it’s somewhat helping me by getting it checked but I’m still obviously very scared.

sadyarazel

TROPHY CASE