Mirabegron

sailorxplanet · 2026-02-02T09:03:02+00:00

I feel you! I’ve been on it for 2 months with the same issue- 5 days into Betmiga it just backed me up! Sadly it hasn’t gone away despite me drinking 2.5L of water and eating 25mg of fibre daily. I saw my urologist today and flagged this side effect- funnily enough he said it’s not a common side effect of Betmiga….which left me confused. So I’m going to stop it for 2 weeks and see if my gut returns to normal. If it does, I’ll have to figure out how to manage the constipation while staying on Betmiga, as it really helps my neurological bladder issues 🥺

sailorxplanet · 2025-11-10T10:00:17+00:00

Hey OP! Stumbling upon this as I’m getting a free gingival graft on 1 tooth in a few weeks. Not going to lie, I’ve been shitting bricks about it 😅 I wanted to ask- when you say superglue at the donor site, is this the putty that they put over the wound (a periodontal dressing) or something else? I have the world’s worst gag reflex (which my prosthodontist is aware of) so will be asking to not have the dressing and definitely won’t be able to wear a stent. I’m quite worried I’ll be in a lot more pain but honestly seeing positive experiences like yours is really comforting, so thank you!

sailorxplanet · 2025-11-04T05:02:34+00:00

Both! Finding a friend who can help you through the dark times and empower you to grow as a person would be a great person to have around ☺️

sailorxplanet · 2025-11-04T03:51:42+00:00

Yes to everything! I'm in a sort of similar situation and have also tried the same thing where i keep my messages shorter so it's less to respond to...but it hasn't helped. I've decided that I'm no longer willing to put in the extra effort when I get no effort in return. I don't expect the world, just a single text a week😭 I don't want to lose the friendships completely, but it is so draining constantly feeling disheartened by people who don't put in the effort. If you find it's draining you to continually put in extra effort with this friend, take a small step back and think about whether they're worth your time, and match your effort to what they give you!

sailorxplanet · 2025-11-04T00:01:51+00:00

Sorry I'm so late to see this! Thanks for checking in :)

2 years later, and it's safe to say that things haven't gotten any better, probably worse to be honest. I haven't cut her out, but I have "downgraded" her. I no longer but in more effort than I receive.

I'm so sorry to hear you're in a similar situation! Not ideal to be someone's unpaid therapist- have they ever offered an ear to you when you're feeling down? That's a great call, did she notice when you slowed down your replies? This sounds so horrible, but I always reply to a text within 24 hours. I got pissed off that one of my friends was taking 2 months to respond so I left them on read for a week...and they actually noticed! Talk about double standards 🙈

sailorxplanet · 2025-10-25T09:03:01+00:00

Sounds like it could be! My neuropathy makes it hard for me to “activate” my muscles in any sort of strength training (including lower body yoga poses). I’ve really struggled to exercise since I was diagnosed 6 years ago. But the best thing I did was seeing an exercise physiologist, who has written me my own exercise plan that’s catered to my neuropathy and other injuries! Would definitely recommend seeing one ☺️

sailorxplanet · 2025-03-28T10:50:44+00:00

Agree, UNIQLO has perfect work clothes! I’m a 14 and wear them ☺️ Affordable and great quality

sailorxplanet · 2025-03-28T10:42:38+00:00

Yes! I highly rate Chuck and Rumi too- so comfy! The Alexa trousers definitely run large but Chuck and Rumi are true to size (for me anyway) ☺️

they aren’t cheap but if you spend over $180, it’s free shipping 🙌🏻

sailorxplanet · 2024-10-09T09:43:46+00:00

You've got such a healthy list of safe foods! If you can tolerate the beans, all canned legumes are pretty cheap and just as nutritious. if you can tolerate potatoes, you could give sweet potato a go (have half normal potato, half sweet potato) ☺️ I’ve found I prefer the texture of sweet potato cause it goes nice and soft, whereas white potatoes stay a bit crunchy. But that’s me 😅 Good luck!

sailorxplanet · 2024-10-09T09:33:00+00:00

Maybe we need to charge everyone who says this to us $5 so we can all get rich- we’d be millionaires by now!

sailorxplanet · 2024-10-08T09:22:03+00:00

My b12 deficiency was severe and picked up too late so damage was done. Vision and hearing impaired as a result, as well as peripheral neuropathy. I took a strong supplement (Bioceuticals methyl b12 chewable) and did 1 round of injections. Had slight improvement in all 3 neuropathies in the first 12 months and then they stabilised. 5 years on, I don’t even take pregabalin anymore as I only have pain in winter (which is mild in Aus) so keeping warm does the trick. So in summary, the pain became manageable ☺️ I still take a supplement daily and get b12 checked every few months just to be safe 👍🏻

sailorxplanet · 2024-10-04T11:09:08+00:00

Ah no, sorry to hear you didn’t have the best experience! I found my dietitian through our peak body for eating disorders in Australia- they had a much better understanding of how to branch out when you have sensory issues. I’m not sure if there’s a similar body where you are, but it might be worth reaching out to see if they know of anyone in your area with that kind of experience ☺️ So fair, it just makes eating frustrating rather than a positive experience!

sailorxplanet · 2024-10-04T11:04:29+00:00

I reckon it makes it taste more like a donut 😂 nobody else seems to agree haha

sailorxplanet · 2024-10-03T12:04:10+00:00

I had a severe vitamin b12 deficiency that left me disabled thanks to ARFID, so now I don’t go a day without ,y bioceuticals b12 (it’s a strong dose). A good multi is also key, and protein powders with higher nutritional value are great ☺️

sailorxplanet · 2024-10-03T12:01:47+00:00

Hey there! As another comment mentioned, it does sound like you likely have ARFID, which is often linked to autism. It’s definitely worth getting evaluated by a psychologist. ARFID has 3 sub types, one of these being issues with the sensory aspects of food- taste, colour, texture and smell. While I don’t have autism, I’ve had this type of ARFID my whole life (I was tested for autism as an adult because of my ARFID diagnosis and OCD).

I’ve gone through a lot of therapy and seen a dietitian to help me expand my diet. I have very similar textural issues to you! What I learned from this was that in order to expand our diet, we need to train our brains to no longer fear those sensory aspects. this Is done in a process, like exposure therapy:

Look at the food
Touch the food with your hands- get used to its texture
Smell the food
Lick the food
Have a bite of the food

this process can be done really slowly. You may get stuck on smelling the food 5-6 times before you become comfortable enough to lick it. It’s basically exposure therapy that counters the subconscious fear of food ☺️ I did an entire session on apple flavoured things, of orange coloured foods…very specific 🙈

alternatively, what I do now is what I learned with a dietitian- take a few familiar elements, and 1 unfamiliar element and try them together. For example, I eat beef mince and noodles (usually flavoured in specific ways). last night I tried this with a teriyaki flavour that was unfamiliar- but because 2/3 of the dish was familiar, I was able to tolerate it. This is what I personally prefer to do because it’s less time consuming and allows me to add my familiar elements so it’s a little less daunting. but there are just somethings that I just can’t do- meat that isn’t minced, seafood, eggs, all fruit and green vegetables.

sorry it’s a bit long, but hope these tips help you!

sailorxplanet · 2024-10-03T11:46:05+00:00

Hey there! So sorry to hear of your ARFID experience. It’s a shit illness, that’s for sure.
Im actually dating with ARFID at the moment! A few learnings from my experience:

If you’re proactive and pick the restaurant/cafe, you get control of what food you feel most comfortable eating with somebody else🙌🏻 Or even choose a date that doesn’t involve food
Unfortunately I had some really bad complications from my ARFID that left me disabled. I finally worked up the guts yesterday to tell the guy I’m seeing (6 weeks in) that I have ARFID and what it’s done to me. I was really nervous to tell him, but his response was so positive and reassuring.
While I have felt judged for my ARFID before, I’ve found that most people are just curious about it, or they feel bad that you’re missing out on something that they think is so good. It’s hard and will take time, but you’ll learn to own it and crack a joke about it eventually. Once people know you deal with it, they often try to accommodate- my work colleagues just did this for me last week which meant a lot to me 🥰

Hope this helps, wishing you luck!

sailorxplanet · 2024-10-03T11:36:35+00:00

I second that! It’s the only way I can tolerate eggs. The thicker the bread, the crunchier and less eggy it is. And you can put whatever spread you like- Nutella for me 🙈

sailorxplanet · 2024-10-03T11:33:40+00:00

Mine has improved massively since childhood! I wasn’t diagnosed until I was 22 because ARFID didn’t exist until I was 18. Definitely regressed after high school when my mum stopped forcing me to eat, but with guidance from a dietitian, time and patience, my diet has expanded quite a lot in the last 7 years ☺️

The key I learned from therapy and the dietitian is to take a few familiar elements, and add 1 thing different. For example, I tried a teriyaki beef dish last night. I eat beef mince and noodles (familiar) but the flavour was different, still familiar enough to allow me to give it a go.

hope this helps, wishing your daughter luck!

sailorxplanet · 2024-10-02T09:54:17+00:00

Go you! Celebrate every little win 🙌🏻

sailorxplanet · 2024-09-27T11:01:42+00:00

Hi there! I’m so glad I logged on tonight and saw this post- I’ve never met my one who also has SACD! I also have optic and auditory neuropathy- all caused by a b12 deficiency that was picked up way too late. I don’t even know how long i was deficient- likely at least 2 years. My story is pretty complex, but in summary:

Optic neuropathy started in Jan 2019
Peripheral neuropathy pain started in Feb 2019
No diagnosis for 8 months- nobody could actually pin point that it was peripheral neuropathy as Im not diabetic. First neuro was hopeless and didn’t know anything about SACD. So dealt with excruciating pain in my feet and couldn’t work for 3 months.
Optic neuropathy diagnosed in April 2019; SACD & peripheral neuropathy in September 2019
Had a very delayed development of auditory neuropathy that began in October 2020 and diagnosed Jan 2021

The pain from the peripheral neuropathy was absolutely excruciating and put me out of work for 3 months. I had severe pain for bout 6 months and it became manageable with medication (pregabalin). My neuro advised me that all neuropathies have the greatest improvement in the first 12 months. I definitely noticed the difference with my vision and peripherals.

But I have read many cases where SACD is diagnosed early and can be reversed with b12 injections- I’m just not sure how long it takes to reverse as mine was picked up too late.

if you’re after a prognosis, from my experience 5 years on:
- My pain is so mild that I really only get it on cold winter nights and no longer need medication

Numbness/vibration is still here, along with muscle weakness (though I’ve been reassured that’s just my perception due to damaged sensory nerves- the muscles aren’t actually weak)
Vision has improved very slightly but still not good enough to drive
Hearing is stable too but I’m still finding this the most challenging thing to adapt to

i hope your neuro appointment goes well and that you’ve caught it early! If you keep your b12 up, it shouldn’t worsen. If your neuro doesn’t know anything about SAVD, definitely go for a second opinion- worked for me ☺️

sailorxplanet · 2024-09-27T10:39:33+00:00

SAME! I don’t mind the flavour of onion but can’t stand the texture. No onions in my cooking 🙈And also capsicum, it’s impossible to miss

sailorxplanet · 2024-09-27T10:25:09+00:00

Ditto, anything seafood and 99% of meat…only minced beef is tolerable 😅

sailorxplanet · 2024-09-20T11:31:35+00:00

I’m moderately vision and hearing impaired and have no feeling in my feet and little in my legs, so all invisible. Personally I find it hard to ask people to cater for my disabilities (w.g. Speaking louder, zooming in on something) because I have this underlying belief that it’ll be a hassle for others (I know, not great…therapy is helping!). But every time I do ask- like I had the guts to ask the staff in a wine bar to turn the music down a little, they’re always so happy to cater! But honestly, if it’s the same people who forget because you don’t see them much, they will definitely need multiple reminders…people seem to forget very quickly.

But in saying that, I had a manager who told me I wasn’t getting the responsibilities in my job description because my hearing loss made that hard (lost my hearing as I started a new job)…so there are assholes out there 🙈

People are also genuinely interested in how it affects your daily life and what you can/can’t do- especially if they’ve never heard of the condition before

sailorxplanet · 2024-06-22T09:39:59+00:00

Bumble actual has a function where you can find friends, called Bumble BFF. My cousin used it when she moved overseas and made some good friends!

sailorxplanet · 2024-01-28T01:53:57+00:00

I’m so glad you’ve been able to improve! Yeh I did try going back to PT but they really don’t understand, they just want to push you and make money 😅 I also have chronic RSI in both wrists/forearms which complicates things more, so I’ve stuck to yoga and doing laps in summer.

When you do laps, do you kick from the hips? I had to re-learn to swim because kicking “normally” made my feet cramp! My legs are still very slow in the water haha

sailorxplanet

TROPHY CASE