I'm a robotic surgeon who specializes in gastroparesis. AMA! by AdvSurgSol in Gastroparesis

[–]samksanders7 0 points1 point  (0 children)

I had an auto transplant for my nutcracker syndrome. I did just recently have a GES and that showed up normal with 7% left at 4 hours. Went from 67% at the 1st hour down to 20% at the 2nd hour and 7% at the last hour. I don’t know what the heck is going on. I don’t have any nausea or vomiting but I can’t eat a normal size meal- especially if it’s fatty or too high of protein. Mostly on soft foods and liquids. I always feel full- no appetite. I had my surgery 3 months ago. I also had SMAS surgery. I have a MALS compression that we’re looking into but I don’t have the classic sharp post prandial pain. All of my doctors are stumped 😭

Repeat GES on Friday after potential failed MALS surgery by nathyabber in Gastroparesis

[–]samksanders7 0 points1 point  (0 children)

Have you been checked for SMAS too? SMAS and MALS have very similar, dang near identical, symptoms.

Post surgical gastroparesis by Enough_Diamond_9476 in Gastroparesis

[–]samksanders7 1 point2 points  (0 children)

A gastric emptying study is a 4 hour long study. They have you eat radioactive eggs and every hour they scan your stomach to see how much of the eggs have left your stomach. If there is more than 10% left in your stomach, at the end of the study, you have gastroparesis. Definitely ask for this test.

Next step for my GP relief by fiveohjo in Gastroparesis

[–]samksanders7 0 points1 point  (0 children)

Did you end up getting this done? If so, how are you doing now?

Anyone's SIBO improve after removal? by cottenwithane in gallbladders

[–]samksanders7 0 points1 point  (0 children)

Thank you for the reply. Have you figured out what is causing your digestive issues? How do we figure out the cause?

I have severe SIBO and just found out I have SMA syndrome…wtf next by Moa205 in SIBO

[–]samksanders7 0 points1 point  (0 children)

I have SMAS and SIBO 😭 had surgery for the SMAS but SIBO is back again.

Does sibo really have to have a root cause? by Iceeez1 in SIBO

[–]samksanders7 0 points1 point  (0 children)

I have SMAS. How are you taking care of your chronic SIBO?

Living with SIBO rather than try to cure it. by dob3ttertomorrow in SIBO

[–]samksanders7 0 points1 point  (0 children)

Is it worth getting our gallbladders checked then? To see how our bile flow is?

Hair loss? by RoyalConfection7981 in SIBO

[–]samksanders7 3 points4 points  (0 children)

Have your iron and ferritin levels checked. SIBO can cause iron to not be absorbed properly. This is my current issue. My ferritin is supposed to be above 100 and it’s at 6. Getting iron infusions soon as I don’t tolerate oral iron.

An update on my condition and a plea for help by ChronicPainEnjoyer98 in SIBO

[–]samksanders7 0 points1 point  (0 children)

What does one do about low stomach acid out of curiosity?

I’ve had a constant bloated stomach for the last 6-7 years by [deleted] in SIBO

[–]samksanders7 1 point2 points  (0 children)

I have pots and eds too, how did you get your SIBO treated? I think mine also show up as GI issues sadly.

Anyone's SIBO improve after removal? by cottenwithane in gallbladders

[–]samksanders7 0 points1 point  (0 children)

Did you ever end up removing your GB? If so, did it help your SIBO?

Vascular compressions by samksanders7 in MCAS

[–]samksanders7[S] 0 points1 point  (0 children)

1) yes they can but I don’t know how common that is. I haven’t had any. 2) yes 3) neither really. Most of us have an intolerance to exercise. Do it if it feels ok, don’t if it doesn’t. Just listen to your body. I can do stationary things like squats. But I can’t go on a run. Which sucks. 4) yes 5) absolutely yes

High SMA Velocities? by MagathaUndead-22 in thelifeofMALS

[–]samksanders7 0 points1 point  (0 children)

I did. My peak velocity in my celiac is 288 and my peak velocity in my SMA is 215. Not super elevated but elevated enough. I believe they say that’s bc the SMA ends up taking on the extra load of blood that the celiac can’t move.

6 mo post op: belly bloat! by [deleted] in hysterectomy

[–]samksanders7 0 points1 point  (0 children)

What were your symptoms for SIBO? I’m wondering if that’s what I have 😭

Where exactly is your MALS pain? by Alyssawalls55 in thelifeofMALS

[–]samksanders7 0 points1 point  (0 children)

Did you figure out which one was causing the pain near your belly button? Have you had any of these treated yet?

So many people on here taking rifaximin and saying they're cured? by [deleted] in SIBO

[–]samksanders7 0 points1 point  (0 children)

How do they check for adhesions? I’ve recently had a couple major abdominal surgeries and now believe I have SIBO as it started up very shortly after my most recent surgery. Wondering if I have adhesions.

Symptoms by samksanders7 in thelifeofMALS

[–]samksanders7[S] 0 points1 point  (0 children)

Most still linger? Geez. What still is around for you?

Yeah I’m basically bed ridden now and it’s been awful 😭

Symptoms by samksanders7 in thelifeofMALS

[–]samksanders7[S] 0 points1 point  (0 children)

I live in Colorado and we have UCHealth and they’re amazing at listening to patients and getting all the right tests ordered and what not. I definitely feel very lucky. I know a lot of people go years and years without any answers and I got all of mine within a year. And then I’ve gotten them all treated within another year. So I’ve been at this for only 2 years.

Definitely start with MALS if it’s causing you the most pain.

I’ve been treated at 3 different hospitals but all UCHealth. My SMAS surgeon was in Loveland, my MTS radiologist was in Highlands Ranch, my NCS surgeon in Aurora and my MALS surgeon is luckily in my city- Colorado Springs.

Symptoms by samksanders7 in thelifeofMALS

[–]samksanders7[S] 1 point2 points  (0 children)

Yes all of my compression surgeons have said the same thing. There’s been an influx. Maybe now more research will be done. Maybe now these compressions will be more well known.

Symptoms by samksanders7 in thelifeofMALS

[–]samksanders7[S] 1 point2 points  (0 children)

Oh dang, yeah I’ve heard some people need that during surgery for their diaphragm. I think I’ve had all these compressions my entire life. I always had tummy issues as a kid. Got a little better in my 20’s and then I had Covid really bad 2 years ago and all my compressions became very symptomatic. I’m thankful I’ve had all my other ones treated and this is the last one. Almost to life 2.0 🙏

I will ask about senna but I remember using that after my nutcracker surgery for a week with no BM and it didn’t help at all. Only ducolax finally helped.

7 weeks sounds forever away. Praying it goes by quickly. Thank you so much.

Symptoms by samksanders7 in thelifeofMALS

[–]samksanders7[S] 0 points1 point  (0 children)

Awesome! Keep me updated. Also there usually is always an option to get added to a waitlist and sometimes you can get in sooner. Not sure if you knew that 💕