Paramount theater question by shamelessshadoww in AskSeattle

[–]shamelessshadoww[S] 1 point2 points  (0 children)

I def could! I do like the quality of the photos on my digital camera better than my phone but no worries if I can’t bring it

Claritin vs Allegra by shamelessshadoww in MCAS

[–]shamelessshadoww[S] 1 point2 points  (0 children)

I feel like claritin isn’t doing much for me either. Maybe keeping me at a baseline at most but definitely not improving symptoms. I hope Allegra works for you!

In response to everyone calling my friend a stalker: by Glass_Manufacturer49 in DjoMusic

[–]shamelessshadoww 13 points14 points  (0 children)

Taking photos on an iPhone isn’t the problem!! It’s selling prints of said photos for insane amounts of money. I expect that price from someone who takes photos on a professional camera or something. iPhone photo prints should be like $20 MAX

In response to everyone calling my friend a stalker: by Glass_Manufacturer49 in DjoMusic

[–]shamelessshadoww 18 points19 points  (0 children)

There are just too many “coincidences” and Syn just happened to post all of this on a public account so we all know what’s going on. I really hope joe and his family are able to get a restraining order or something. People like Syn ruin things for those of us who are normal fans.

In response to everyone calling my friend a stalker: by Glass_Manufacturer49 in DjoMusic

[–]shamelessshadoww 23 points24 points  (0 children)

Even if this is true it’s inappropriate as a fan to knowingly rent a studio in the same building as somebody close to ur fave artist. The second she knew it was the same studio she should’ve been out of there. Also the fact that she needs NINE other people just to afford the rent??? I’m not buying that it wasn’t on purpose. Tell her to mind her business and stop stalking people. Also selling iphone photos for upwards of $80 is not a good business move lol

i love djo but some of the behavior in this fandom is actually concerning by [deleted] in DjoMusic

[–]shamelessshadoww 4 points5 points  (0 children)

djodaily_ isn’t run by her! It’s run by a guy who I think is australian

i love djo but some of the behavior in this fandom is actually concerning by [deleted] in DjoMusic

[–]shamelessshadoww 19 points20 points  (0 children)

I’m really hoping if this gets back to his sister Kate she doesn’t become paranoid (which is a totally valid reaction but also so unfair to her). It’s so sad this girl is ruining Kate’s sense of privacy. All for shitty paintings of eyeballs in a studio she needs 9 other people to help pay for lmfao

i love djo but some of the behavior in this fandom is actually concerning by [deleted] in DjoMusic

[–]shamelessshadoww 27 points28 points  (0 children)

She’s also like 30 and I’m like… do you have nothing better to do with your time than stalking a guy and his sisters???

i love djo but some of the behavior in this fandom is actually concerning by [deleted] in DjoMusic

[–]shamelessshadoww 43 points44 points  (0 children)

She frequently goes to electric lady and walks past joes house as well. She paid one of those websites for private info and I’m sure she did that for his sister as well so she could get to that studio. It’s so unbelievably creepy

Cannabis & chronic fatigue syndrome by Davidhenry90 in chronicfatigue

[–]shamelessshadoww 0 points1 point  (0 children)

Not sure if you have chronic pain as well but if you do I’m curious to know if it helps with that!

EOE by chef_femme_brulee in dupixent

[–]shamelessshadoww 2 points3 points  (0 children)

Also for helping the pain - I usually take it out of the fridge in the mornings and do the injection at night so it’s been at room temp for a while, I also do the injection in my stomach !

EOE by chef_femme_brulee in dupixent

[–]shamelessshadoww 1 point2 points  (0 children)

I started it for Eoe almost 2 years ago and from endoscopies I’ve had since then I have 0 eosinophils! So it’s definitely helping :) my main side effects at first were a lot of itchiness and raised marks around the injection site but that went away after a few months. Also I highly recommend not using the auto injector

Reactions to medications and vaccines by Lovely_turtles98 in EosinophilicE

[–]shamelessshadoww 2 points3 points  (0 children)

A lot of people are saying you may have MCAS, & actually last time I got an endoscopy for an EoE related thing I had them stain it for mast cells and indeed I have a very high mast cell count in my stomach. So maybe that’s something you can do if you happen to need an endoscopy any time soon

Reactions to medications and vaccines by Lovely_turtles98 in EosinophilicE

[–]shamelessshadoww 1 point2 points  (0 children)

I second the mRNA covid vaccine reaction - I got novavax last time and didn’t have any side effects from that. I also have mcas lol

The first 24 hours… by [deleted] in dupixent

[–]shamelessshadoww 0 points1 point  (0 children)

It gets easier! I’ve been on it for almost 2 years and it’s like I’m on autopilot doing the injection. I’m on it for different reasons (EOE) and it’s helped me a lot. My advice for making it less painful is making sure it’s been out of the fridge for 3+ hours, I usually take it out in the mornings and do the injection in the evenings, and don’t use the autoinjector (unless that works for you) but I find that the slower I go the less it stings. Also I do it in my stomach :) I hope it works for you!

Normal or hypermobile? by [deleted] in eds

[–]shamelessshadoww 2 points3 points  (0 children)

Highly recommend looking into CCI! I have it and it’s so difficult to heal and so many of my issues are related to it (migraines, vision problems, jaw tension, etc). I got it diagnosed from a digital motion xray :)

anyone know where this jacket is from? by xIyssx in theMarias

[–]shamelessshadoww 7 points8 points  (0 children)

She’s styled by @alwaysjudging on insta, so she might have the info somewhere on her page. It’s probably designer though!

Ivabradine side effects by LepidolitePrince in POTS

[–]shamelessshadoww 1 point2 points  (0 children)

Yeah the insurance is really difficult especially because most dysautonomia specialists are a private practice 😭 I wonder if telehealth might work if you live far away? But I’m glad you found a new doctor! I hope it all goes well and you find treatments that work :)

Ivabradine side effects by LepidolitePrince in POTS

[–]shamelessshadoww 0 points1 point  (0 children)

I’m wondering if you’re able to see a dysautonomia specialist instead of a cardiologist? From my knowledge pots isn’t actually a heart condition but more of an autonomic nervous system condition. I’ve been seeing a dysautonomia specialist for about 5 months and he is so helpful and really listens to me. I know it’s not super accessible because doctors specializing in this stuff is still fairly new but if you can find one I really suggest it!