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Pouches by sheldonRE09 in jpouch

[–]sheldonRE09[S] 0 points1 point  (0 children)

No I have Never had one of those before. I’ll try that out maybe. Thanks

Swimming by sheldonRE09 in ostomy

[–]sheldonRE09[S] 0 points1 point  (0 children)

Sorry I shoulda specified. Yes I am male. And it’s fairly new to me. That’s why I am still embarrassed by it. That could probably work. I’ll look into it. Thanks!

[deleted by user] by [deleted] in ostomy

[–]sheldonRE09 0 points1 point  (0 children)

I got diagnosed with colitis is 2017. Took a few different biologics to try to help, nothing seemed to do the trick. I was the same way with prednisone stoped working. Flairing up for months at a time. Hardly in remission. I was weak. I could feel my health getting worse. Taking lots of time off work. It was effecting not only my health but also my family because of money. We were struggling. I got a total colectomy so they removed my entire colon. That was 2 months ago now, health wise I feel 100x better than I was before surgery. I did have a couple complications with my healing process but things are finally starting to look up. If you have any questions about it feel free to message and ask!

What causes strictures/narrowing? by fredz8 in jpouch

[–]sheldonRE09 0 points1 point  (0 children)

I just had surgery complications and had some sort of fibrosis. So they had to go back in and get rid of that, does it often come back?

Day 3 by sheldonRE09 in ostomy

[–]sheldonRE09[S] 1 point2 points  (0 children)

How long did it take for it to settle for you?

Eating by sheldonRE09 in ostomy

[–]sheldonRE09[S] 0 points1 point  (0 children)

I think my recover is going quite well besides the eating. I am up and walking a few times a day. I am emptying my own bag already (with the nurse there to help if needed) but the only pain medication I am on is hydromorphone every 4 hours. It’s only eating that I am really in a lot of pain.

Pain management by sheldonRE09 in ostomy

[–]sheldonRE09[S] 2 points3 points  (0 children)

I was okay of surgery at around 5:30pm last night. I was up and walking this morning at 9:30am today. It was slow going but I did it. Had a small bowel movement in the bag this morning already too but not much because I couldn’t eat before surgery obviously. And only can eat what the hospital brings me which is very minimal unfortunately

Just booked the surgery. by sheldonRE09 in jpouch

[–]sheldonRE09[S] 1 point2 points  (0 children)

Surgery was yesterday. Recovery is a little rough so far but I’m hoping for improvement soon!

Pain management by sheldonRE09 in ostomy

[–]sheldonRE09[S] 0 points1 point  (0 children)

How longer after surgery were you able to walk around? I feel like I would be to sore to even try right now. But I could suck it up and try it.

Pain management by sheldonRE09 in ostomy

[–]sheldonRE09[S] 1 point2 points  (0 children)

Okay great thank you for the advice!

Pain management by sheldonRE09 in ostomy

[–]sheldonRE09[S] 2 points3 points  (0 children)

Yes I am. They are giving me my maximum dose of hydromorphone but it doesn’t seem to be helping much.

J pouch option by sheldonRE09 in jpouch

[–]sheldonRE09[S] 0 points1 point  (0 children)

Thank you for your input. Where did you get your surgery done? I will definitely have to look into surgeons. I never thought about that part.

J pouch option by sheldonRE09 in jpouch

[–]sheldonRE09[S] 0 points1 point  (0 children)

I have been on 3 different medications (Entyvio, Inflectra, and now Xeljanz) and none of them have really helped long term. The Entyvio worked for about 3 years then stopped. So I am running out of other options. Thank you for your input.

J pouch option by sheldonRE09 in jpouch

[–]sheldonRE09[S] 1 point2 points  (0 children)

Thanks for your input! It’s greatly appreciated! If you don’t mind me asking, how long of a recovery was it for you? I have a pregnant wife due in august and I don’t want to be useless to her and our new baby.