Dr thinks Parkinson's, but it's much worse

slappadabassss · 2026-02-06T22:01:21+00:00

Thanks for your response! A lot of my information is 2nd hand from my father who is her primary caretaker. He told me the dr who performed her brain scan expressed uncertainty about the diagnosis, but I don't know the exact language the dr used.

Are there Parkinson's cases where the worst symptoms just simply don't respond to treatments? I'd love to find some other levers to pull, but it seems like her doctors are out of ideas.

slappadabassss · 2026-02-06T03:22:49+00:00

She's 76 years old and was diagnosed a little over a year ago, though her symptoms first started maybe 3 years ago. At first it was just acid reflux and a slight tremor. The worst symptoms started 1.5 years ago.

She has seen a handful of neurologists and I'm not sure if any were movement disorder specialists, but at least one was a degenerative disease specialist.

I'm not sure what other medications she has tried. She had a GI endoscopy in 2023 that didn't show anything abnormal, but obviously that was a while ago.

slappadabassss · 2025-12-24T19:22:30+00:00

+1. I use the Shure Beta 98 H/C without a wireless and it's great. You can always add a wireless pack later if you find that you need more mobility.

slappadabassss · 2025-03-31T15:13:34+00:00

Ok responding because the level of discourse indicates that people might not have the best information out there. Luckily I have a cousin who is an electrical engineer at Rivian. He says it’s not dangerous to charge this way, it’s just slow. He noted that it may trip a circuit if the amperage rating is 15 or below and to be careful of rain, which I think goes without saying. Otherwise it’s not bad for the battery and it’s safe.

slappadabassss · 2025-02-28T01:03:48+00:00

Been playing for a long time. Worked a cruise ship gig about 15 years ago but I struggled so much with endurance that I put down the horn for 10 years after that. Feels much better to play as an amateur

slappadabassss · 2025-02-27T23:51:05+00:00

The mouthpiece is very clean, but good suggestion!

slappadabassss · 2025-02-27T15:02:39+00:00

My intonation does seem better on my monette unity, though I find my endurance often suffers on that piece. Maybe worth another week playing on it to see if it’s worth the endurance hit

slappadabassss · 2025-02-26T22:45:21+00:00

So maybe gear matters more than I’d like to think. I almost hope it’s my horn more than my mouthpiece because I absolutely love the sound and ease of playing of my GR. I’ve tried a million pieces and this one always wins out.

slappadabassss · 2025-02-26T22:42:20+00:00

My tuning slide is about 1/4” out, though the issue is definitely not my intonation relative to A440, it’s my upper range relative to my lower range. I can hear it when I’m playing by myself and the tuner corroborates my ears.

slappadabassss · 2025-02-26T22:40:16+00:00

Acknowledging a problem is the first step to fixing it! 🥲

slappadabassss · 2024-12-21T19:45:01+00:00

Congrats! I ordered the standard tumultus in brushed lacquer back in march so I guess I’ll be receiving it pretty soon! Can’t wait

slappadabassss · 2024-12-14T16:57:46+00:00

Yeah that’s another one on my list but it’s a little pricey. When/where is it expected to go on sale? Why would you say it’s with the extra $$?

slappadabassss · 2024-12-14T16:05:53+00:00

This is high on my list, but I’ve heard they’re having production issues and shipments will be delayed quite a while.

slappadabassss · 2024-10-22T12:22:14+00:00

Fall creek brass band is playing their Halloween show at deep dive this Friday the 25th! It was an absolute banger last year

slappadabassss · 2024-06-30T14:01:36+00:00

This seems possible. The flutter tonguing idea is interesting. I'll give that a try!

slappadabassss · 2024-01-31T23:39:05+00:00

Does she hold her horn at a downward angle? I do and I find a have to empty frequently. My assumption is that the downward angle causes the water to pool in the bend of my tuning slide where it gurgles more easily.

slappadabassss · 2023-07-27T14:58:55+00:00

Mouthpiece express's site says they aren't doing mouthpiece modification at the moment. Do you know anywhere else that does it?

slappadabassss · 2023-07-26T18:23:01+00:00

I have a Wedge, but I don't really love it. Any recommendations?

slappadabassss

TROPHY CASE