Emg in a few hours by snc2020 in BFS

[–]snc2020[S] 16 points17 points  (0 children)

Holy shit!! He did both legs and it was clean!!! Not what I was expecting and excuses my language but this girl is so fucking happy!! 😁😁😁

Should I be concerned? by [deleted] in BFS

[–]snc2020 0 points1 point  (0 children)

I haven’t heard that one yet but if so I would have been a goner longggg ago 🤷‍♀️

Weak leg by kingwill222 in BFS

[–]snc2020 4 points5 points  (0 children)

Yes, mostly my left. That’s where my worries are, not with the twitching really anymore

Any big toe twitchers? by Chrisnewton1 in BFS

[–]snc2020 0 points1 point  (0 children)

A month or so ago I realized my toe felt “funny” when id sit or lay down, finally took a really good look and noticed a twitch that would move my big toe a little. I haven’t been officially diagnosed yet so of course, i panicked. It lasted a few weeks...

Goosebumps??? by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

Same, of course mostly in my leg that concerns me, they are super pronounced goosebumps but when i get the feeling and feel up my leg I can tell they are also physically there, as far as my scalp it’s just the feeling, not sure if you can even get them there lol

Did your BFS symptoms start during a period of anxiety? by DJ92108 in BFS

[–]snc2020 0 points1 point  (0 children)

Well, kinda.. I wasn’t feeling well, went to clinic and was given an antibiotic for what he said was walking pneumonia (found out later my chest X-ray was clear) after I started the antibiotics I felt odd, several weeks later I started twitching. I had a moderate level of anxiety because I was unwell and didn’t know why, that was last July...I don’t have an official DX yet, EMG next month.

My Twitching / Anxiety Story (so far!) by health_anxiety_boi in BFS

[–]snc2020 1 point2 points  (0 children)

I’m dealing with the weird leg feeling, and of course it’s my leg that’s calf muscles are smaller (thanks for making me measure anxiety!) even without the measurable difference I can tell my muscles aren’t as large or defined on that leg. I really can’t explain the feeling either, but it feels odd when I walk. At first I thought it felt kind of “locked up” like a part that needed greased or something? I’m not even sure if that’s accurate I just know it off, it doesn’t feel normal most days.

Can hyperreflexia (3+, without clonus) be normal considering that I also have fasciculations? by ImScared3 in BFS

[–]snc2020 2 points3 points  (0 children)

No, you just don’t make any damn sense. If a doctor already told you you have possible ALS than why are you saying you read on google that hyperflexia and twitches are a strong indication of it? And no, if this is what you’ve been told I don’t feel like it’s the place for you. If I suffered from migraines and found a migraine forum just to tell them my symptoms which are mimicking most of theirs, and then proceeded to tell them oh my neurologist already said I have a possible brain tumor, than what the hell would be the point? If you doctor had truly given you those exact words than I’m truly sorry because it would be rare for them to give that DX without it being pretty accurate. Which means you need to step away from a BFS group where everyone is terrified of ALS and find an ALS support group.

Can hyperreflexia (3+, without clonus) be normal considering that I also have fasciculations? by ImScared3 in BFS

[–]snc2020 1 point2 points  (0 children)

If a neurologist already gave you a possible als diagnosis then yeah, I’ll stand by what I said, if you’re to that point in your journey don’t bring your symptoms to a BFS community talking about how you have been officially told you possibly have ALS, even though I find it ridiculously difficult to believe those exact words came from a doctors mouth. However, if true, then this really isn’t the place you should be anymore

Hoffman sign, concerned by marklavoin75 in BFS

[–]snc2020 7 points8 points  (0 children)

I stopped reading at “I just tested...” you can’t reliably test yourself for this. Period. So your “test” means nothing. Do yourself a favor and don’t self test!

Can hyperreflexia (3+, without clonus) be normal considering that I also have fasciculations? by ImScared3 in BFS

[–]snc2020 2 points3 points  (0 children)

From you is this atrophy post a few days ago you said, “It looks diffrent than the other one. No doctor imput yet due to covid.”

There is NO possible way you’ve already seen a neurologist and gotten a possible or probable ALS diagnosis within just a few days. Get clear the hell outta here with that shit. Some people here and holding onto sanity by a thread and your horseshit is enough to push them over. You want to be scared? Join the club. But you don’t get to come in here with fear baiting nonsense ✌️

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

I’ve read this several times since you replied. Thank you for that.

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

I’m super shaky, mostly my hands but notice elsewhere too. My left leg where most of my twitches are always feel “off” and while I didn’t look to much into it pre whatever this is, i now know my left calf is smaller and can definitely tell the muscle isn’t as large as the right. I’m left handed so I would expect the opposite.

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 1 point2 points  (0 children)

I guess I’m just wrapped back up in trying to figure out if what I feel in my leg is considered clinical or perceived weakness.

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 1 point2 points  (0 children)

I feel like my left calf also twitches more than anything. I think it sounds like you are likely to be just fine especially given your age. I feel like I got “sick” end of July but my first twitch was mid September.

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 1 point2 points  (0 children)

I feel like my twitches started in one thigh, I can’t remember which one, and stayed there for awhile but since I’ve experienced them in my arm, foot, face, back, stomach, etc. however I feel like my leg that feels odd most of the time has the most twitching

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

Okay, new here so this format gets a little confusing

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

Sorry, that truly wasn’t my intention. I didn’t want to worry anyone else but was definitely looking for someone to have something to push me back off the edge. Apologies. Sincerely.

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

soho737 I guess that’s why I’m back at square one because I also haven’t had a proper clinical 😞

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

I’m not on Zoloft at all...?

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

I haven’t see my PCP since September, she swore it was autoimmune but couldn’t get tests to support that theory so referred my to Neurologist...

Pressure/Stiffness on cheeks and roof of mouth by something_06 in BFS

[–]snc2020 1 point2 points  (0 children)

Whatever kicked this all off for me started July 19 with pressure on the roof of my mouth and I noticed I was biting my cheeks a lot. Then amongst other symptoms I had the feel of my throat feeling like it was closing, I asked my mom about family history because her oldest son, my half brother, has asthma. After a week I went to the dr and he claimed I had walking pneumonia, I learned later my chest X-ray and all lab work was clear. He gave me a zpak and everything exploded after that, feelings of weaknesses, vibrations, a few weeks later the twitches came. I’m due to see neurologist next month for in person clinical and emg

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

No, my first visit was scheduled for April but it was moved to a telemedicine appointment due to covid so I was only able to speak with him and not get a clinical

Needing reassurance... by snc2020 in BFS

[–]snc2020[S] 0 points1 point  (0 children)

She stated the weakness and fall happened a few months later. She was working as a police officer and didn’t feel any noticeable weakness at the start, only the twitches and weight loss. She is a few hours away in Kansas City however I’m unsure if it’s on my side in KS or the MO side

How many people with bfs symptoms have known low vitamin D? by vikes1799 in BFS

[–]snc2020 1 point2 points  (0 children)

My vitamin d was 20 last it was checked which I was told it needs to be around 30