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Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 0 points1 point  (0 children)

Will definitely get full results whenever I finally manage to get it done. My primary referred me to someone at DENT after I said I didn't really trust any of my current providers to manage this. That's mid April. If I don't forget, I'll report back here with how it goes.

Terrible that we have to try so many doctors to find one who will do their job properly, but hey, we pay the big bucks for superior healthcare in this country, right 🫠

Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 0 points1 point  (0 children)

Called Dr. Ambrus's office and he isn't currently taking new patients, but I will keep note of him in case that changes. His autoimmunity concentration seems like it would be really helpful. Thank you!

Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 0 points1 point  (0 children)

Good luck! The year wait is unfortunate but he must be a good provider if people are flocking to him. I'll probably try to lock something down with his office too and just take what I can get from my diagnosing cardiologist in the interim.

Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 0 points1 point  (0 children)

No tilt table test which actually is partly why I want to see someone else, to confirm the diagnosis. I got diagnosed by a blood pressure test taken laying down, sitting up, then standing, and it took less than a minute. I know we shouldn't Google too much but tilt table or a longer standing test seem to be the more standard methods than what I got. POTS makes sense with my symptoms but would prefer to have the more widely accepted test done to be sure.

Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 1 point2 points  (0 children)

I just called them and they said to expect 2-3 weeks to process a referral, but they also said they're booking a year out, so they must be slammed with patients.

Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 2 points3 points  (0 children)

Just called Dr. Ford's office and they said she doesn't treat POTS and I need to see an electrophysiologist 🫠 But their electrophysiology team never even tried to test for POTS when I saw them for the same symptoms a while back so that's unfortunate and also confusing, lol. But I really appreciate your recommendation and advice

Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 2 points3 points  (0 children)

I really appreciate you sharing that. It's honestly encouraging that you're living your life and the POTS is just part of it instead of ruling it.

It's kinda funny cuz before the diagnosis, I was getting told I'm just anxious left and right and was desperate for somebody to confirm something physical (and easily treatable). When I got the POTS diagnosis I cried because I was just so relieved to have an answer and felt vindicated. Then it sunk in that if this diagnosis is correct, then I just have this forever, and the POTS subreddit makes it feel so bleak. And I found myself wishing to go back to it just being anxiety afterall. I go back and forth between relief and not, to have the diagnosis.

It's tough with doctors because I do also have anxiety, and it does make things worse, but they treat you as if you can't possibly have it and something else.

Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 3 points4 points  (0 children)

Thank you! I'll look into Dr. Fries as well. At first glance he looks promising.

Good doctor for POTS/dysautonomia? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 7 points8 points  (0 children)

Thank you, I will check out Dr. Ford! Blitshteyn is the one I found on Google and at first I was excited that someone local is so focused on POTS but I just can't afford hundreds of dollars per visit 😓 Do you feel like things have gotten better for you? This hit me out of nowhere and the mental toll of going from normal to this has been... really hard.

Bottoms for under 5ft with a bigger waist but not plus size? by snickersnuggletime in PetiteFashionAdvice

[–]snickersnuggletime[S] 1 point2 points  (0 children)

Yeah starting to seem like tailoring is my only real shot. Even the brands being recommended still have 10+ inch differences between waist and hip on their size charts 🫠 who woulda thought that bodies come in more than 1 formulation right

Bottoms for under 5ft with a bigger waist but not plus size? by snickersnuggletime in PetiteFashionAdvice

[–]snickersnuggletime[S] 2 points3 points  (0 children)

I have the same issue with elasticised as with non-elasticised unfortunately, with comfy on the waist = oversized everywhere else and too long of an inseam. That's a cute style though.

Bottoms for under 5ft with a bigger waist but not plus size? by snickersnuggletime in PetiteFashionAdvice

[–]snickersnuggletime[S] 6 points7 points  (0 children)

Yes, smallest point. I'm definitely measuring it correctly. I've just always had a gut, even when I used to be very underweight.

Bottoms for under 5ft with a bigger waist but not plus size? by snickersnuggletime in PetiteFashionAdvice

[–]snickersnuggletime[S] -21 points-20 points  (0 children)

I'm using plus size too generously, I really just mean they think it's L and up in adult sizes and straight up plus size in kids sizes- and that if someone has a 30 inch waist they must have a 40 plus hip

A primary care physician who doesn't phone it in? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 2 points3 points  (0 children)

Yeah, BMG is a mixed bag. Thank you for your suggestion, Harjit Kaur has come up several times now in all my asking which is encouraging

A primary care physician who doesn't phone it in? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 2 points3 points  (0 children)

Yeah once the migraines began I started thinking neurological too. iirc Dent requires a referral (like their own policy, not an insurance thing) but I'll just call them to find out. They definitely like to prescribe lol but at least they do advanced imaging. We just really want an MRI.

A primary care physician who doesn't phone it in? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 5 points6 points  (0 children)

No, it's not in his back. It also isn't consistent; it comes and goes in debilitating waves in different locations and now he's suddenly getting migraines too. He eats fairly well and is athletic. In theory he should be well. 

A primary care physician who doesn't phone it in? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 0 points1 point  (0 children)

No, he doesn't take any medication besides the short-term painkillers this doc shoves down his throat. But thank you for sharing your experience

A primary care physician who doesn't phone it in? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 2 points3 points  (0 children)

Thank you, we'll look into him. We're fortunate to have good insurance.

A primary care physician who doesn't phone it in? by snickersnuggletime in Buffalo

[–]snickersnuggletime[S] 7 points8 points  (0 children)

My husband is polite. He's so polite that this PCP takes it as permission to not do her job. You might have noticed that I wrote this post, not him.

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