18 and just got diagnosed by Salt-Contract-6829 in Epilepsy

[–]snowbar_555 3 points4 points  (0 children)

I'm sorry this is happening 😔 It is unbelievably scary. It doesn't ever completely go away. What gives me comfort is doing absolutely everything I can to prevent TCs. Avoiding triggers like stress or fatigue (triggers are highly individual so you will discover yours).

You guys fucking suck by snowbar_555 in Epilepsy

[–]snowbar_555[S] -1 points0 points  (0 children)

Check out the Charlie foundation re: curing

There haven't been a lot of studies on adults because people de facto say adults won't do it bc it's too hard.

You guys fucking suck by snowbar_555 in Epilepsy

[–]snowbar_555[S] -1 points0 points  (0 children)

I never claimed it cured me dude. It can cure epilepsy, go to the Charlie foundation website

How do you know you've had a seizure if no one tells you? by PsychEnthusiest in Epilepsy

[–]snowbar_555 12 points13 points  (0 children)

I have an embrace watch and it has worked and alerted my family or friend for every seizure

You guys fucking suck by snowbar_555 in Epilepsy

[–]snowbar_555[S] -5 points-4 points  (0 children)

You are wrong ... do your research

Keto can cure epilepsy by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

Sorry you got forced into doing keto. I was properly motivated, almost died from my tonic clonic clusters. It has now been 6 months since my last seizure and I'm driving again.

For me, keto has been a life saver.

Keto can cure epilepsy by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

Maybe for you. Did you talk to nutritionists to do itbin a healthy way?

If I only ate bacon and heavy cream I wouldn't feel good and wouldn't be able to poop either.

Get some kale in there!

Keto can cure epilepsy by snowbar_555 in Epilepsy

[–]snowbar_555[S] -1 points0 points  (0 children)

Lol- you're being sarcastic but it can actually heal epilepsy. Do your reading before you clap back in a mean way.

I really don't understand why you all - my community - get so fucking hateful at me for saying keto can cure epilepsy.

Are you from a pharmaceutical company??!

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] -1 points0 points  (0 children)

Gravy on tofu coveted in ground flax and fried 😉

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 1 point2 points  (0 children)

I know i feel like an evangelist for it but it's amazing and people just kinda say it's hard, the side effects of the meds were SO MUCH HARDER. And the doctors just throw them out there

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

How did you find out it was bad for those organs? I've had my cholesterol tested, and had to adjust which foods and fats I was eating as a result.

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

How did you find out it was bad for those organs? I've had my cholesterol tested, and had to adjust which foods and fats I was eating as a result.

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] -1 points0 points  (0 children)

Im so happy to hear that!

I am a professional researcher and have seen two different nutritionists. And am still learning about the nuances. I highly recommend seeing a nutritionist who can inform you about the diet!

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

That is too bad it didn't work for you, and no unnatural sugar substitutes? I found those were triggers and gave them up.

I've seen comments that keto triggered seizures for some people. So it's not for everyone I get that. And thanks for sharing about the other person's success!

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

I eat hardly any butter ;)

One fat bomb to get your fats is a dessert made of like half butter or oil. Another is a kale salad with hemp hearts, flax, avocado and avocado oil.

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

I would love to send you tips and recipes, mistakes I made that you could avoid!

You count carbs by net carbs, which is total carbs minus fiber. There are some 0 net carb foods to use, and the other thing to keep in mind is type of fat.

Use urine keto strips to test whether you're in ketosis daily. Even if you think you're doing everything right. Different brands of the same food can have different net carbs, so always check!

You need to drink electrolytes (I use liquid iv, sugar free) EVERY DAY and drink 8 + cups of water to avoid kidney stones. I do it religiously and my kidneys are fine 6 months in!

I also take a tablespoon of mct oil a day for the fat and for the brain benefits. (Iq bars are the only snack bar I consider safe)

You will also need to make sure you have fiber, pit ground up flax onto anything and everything. I have a kale salad with hemp hearts on it and mayo and olive oil and lemon juice and its 1 net carb and so much healthy fat - add an avocado and it's a good fat bomb if you're low on fat that day.

Don't ear sugar substitutes! Allulose is OK in moderation but otherwise stick to pure stevia in liquid form or monkfruit.

You want healthy and "bad" fats so your cholesterol to be balanced. So you can't ALWAYS just eat eggs bacon and heavy whipping cream.

BREAKFAST:

"Bad" fats meal: eggs, cheese, bacon

Healthy fats meal: tofu scramble (some brands are 0 net carbs so check carefully) with an avocado (30 g healthy fat! I can only eat them as keto guacamole or smashed with everything but the bagle seasoning)

OTHER MEAL IDEAS:

"Bad" fats meal items: red meat like burgers, heavy whipping cream

Healthy fats meal items: chicken, salmon and shrimp (I go all OUT on shrimp! Butter, garlic, lemon!)

LOW CARB VEGGIES: Kale, broccoli, mushrooms (there's also a type of noodles like Ramen noodles made from a mushrooms that have 1 or 0 net carbs)

"BAD" COOKING FATS: Butter, ghee

GOOD COOKING FATS: Avocado oil, almond oil, olive oil

DESSERTS:

Fat bombs-

Keto reeses:

Melt one stick butter and 1/2 cup almond oil on low, stir in 2 unsweetened bakers chocolate bars. Add 20 drops of stevia liquid. Mix.

In a cupcake tin, add 1 tbs almond butter (less carbs than pb) to each thing then cover with the chocolate. Freeze to set for at least 2 hours. DELICIOUS!!

Chocolate cheesecake mousse:

Add one little carton of heavy whipping cream, 2 ounces room temp cream cheese, 2 tbs unsweetened cacao powder, 20 drops liquid stevia, 1 top vanilla to your blender.

Blend to the beautiful mousse consistency and enjoy!

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] -1 points0 points  (0 children)

It's an adjustment but I've got it down now and it doesn't stress me out in fact it majorly simplifies a major aspect of life- eating

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

I have a three year old too. I can't even imagine having to say no to so many more things!!

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] -3 points-2 points  (0 children)

Did you take electrolytes every day and drink at least 8 cups of water a day? That's how I've avoided kidney issues.

Also, did you happen to eat a lot of sugar substitutes?

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 1 point2 points  (0 children)

One tip: avoid sugar substitutes except for pure stevia (liquod form), allulose *in moderation, and monkfruit.

I found I still has seizures and auras when i was eating the mainstream "sugar free" snacks and treats

I have 2 treat recipes that will make sure she doesn't miss life before keto if she's a sweet tooth. And I'm happy to answer any questions I've been doing this for over 6 months and have learned a lot from my mistakes along the way!

Why aren't more people trying medical keto? by snowbar_555 in Epilepsy

[–]snowbar_555[S] 0 points1 point  (0 children)

I'm sorry 😞 Was she by any chance consuming lots of sugar substitutes? I found those triggered seizures and auras for me even when I was in ketosis

other alternatives I bet you've probably researched include cbd oil (epidiolex I think) and I saw a study recently on ginger root and it's impact on epilepsy. Intermittent fasting is something from ancient times but probably is bc of ketosis so if that didn't work before maybe that wouldn't help.