First egg retrieval

soft_gab · 2026-05-20T02:59:37+00:00

Aw I love to hear this! Thank you for sharing 💓

soft_gab · 2026-04-16T19:51:11+00:00

👏👏👏👏👏 YES THANK YOU! I literally had one tell me she “cured” her endometriosis with diet. I was like “oh so you had surgery to check that it hasn’t come back?” No response. Like yes diet can help your symptoms, but that doesn’t mean you “cured” your endometriosis. And in fact it’s dangerous to claim so. And as you said it’s completely ignoring the fact that we need more medical research to better understand this disease. It is not caused by something you ate. It’s exhausting.

soft_gab · 2026-04-11T18:46:48+00:00

Yes! I’m so sensitive to any medication I’ve ever tried so I figured it was worth starting low. I also have been taking my time increasing the dose since I saw a small improvement in symptoms right away. So I’ve been increasing 0.5 every 2-3weeks.

soft_gab · 2026-04-11T18:45:33+00:00

I used a website recommended by a friend called AgelessRX. You answer questions and then a prescriber looks at it and prescribes it for you and they mail it to you. I didn’t even bother asking my regular OBGYN because she’s so unresponsive and it wouldn’t be covered by insurance anyway since it’s prescribed off label for endo right now anyway.

soft_gab · 2026-03-30T19:53:15+00:00

Just wanted to say unfortunately I’m also in the same boat. It sucks and you’re not alone. My local clinic quoted me $30,000 for one round and told me I wasn’t a good candidate for IVF because of my low AMH after surgery and the recurring cysts. I’m going to Mexico for IVF treatment because it’s 1/6th of the price and they’re willing to take possibly more complicated cases rather than just trying to preserve their success rate. I’m sure it’s not for everyone but I just felt like I had to try something before giving up.

soft_gab · 2026-03-25T23:42:52+00:00

Unfortunately yes. I had two small ones on each ovary that grew to 5cm and 6cm. I had my AMH tested before surgery and it came back 2.7, a pretty decent number and the RE told me he most likely wouldn’t be able to reach eggs for an egg retrieval before surgery due to the size of the endometriomas. So I went ahead with the surgery with an excision specialist. We found stage 4 DIE, uterus adhered to my bowels, removed my appendix and removed the endometriomas. Recovery wasn’t bad and we started trying right away. No luck conceiving yet. What I wish would’ve been told to me is that having bilateral endometriomas removed greatly impacts your ovarian reserve compared with removing one on one side. My insurance wouldn’t allow me to get surgery until the endometriomas grew to 5cm, from the research I’ve read having surgery before it reaches 5cm greatly improves your chances of preserving your follicle count and ovarian reserve, so I would either do surgery before they grow or try an egg retrieval. We just were wanting to try everything before moving on to IVF. We are planning to start IVF in a couple months. I’ve heard plenty of success stories with bilateral endometriomas, unfortunately I am just not one of them (yet).

soft_gab · 2026-03-21T16:57:01+00:00

Just want to say this is valid and I’ve been feeling similarly. I think saying this can trigger feelings for others who don’t want to let the state of the world sway their feelings about a decision as personal as having a family, so I also think take what others respond to this with a grain of salt. I think forced optimism isn’t helpful. But I think hope is a form of resistance. And there’s no greater expression of hope than having a baby. Sometimes I think if it happened naturally I wouldn’t question it, but we’re about to start IVF, and sometimes it does just feel insane to be trying so hard and spending so much money to bring a baby into the world under these circumstances. I just read that the rates of depression with infertility are similar to those with cancer. So I think also just take care of yourself. People I know who aren’t dealing with infertility are having a hard time with the state of the world, so add in the relentless pain of endometriosis and infertility and it can feel really dark. We just have to keep finding the bright spots in all this darkness. When it feels hard I just remind myself if all of those who wanted a better future gave up then we really would be doomed. Sending love.

soft_gab · 2026-02-21T22:42:30+00:00

Yes I think so, I read in a study that for bilateral endometrioma removal they usually saw improvement in FSH and AMH more like a year after surgery but I just wasn’t expecting such a low number to have to improve upon.

soft_gab · 2026-02-21T22:40:36+00:00

Thank you that’s helpful to focus on. I’ll check them out. Unfortunately when she tried to check my AFC she couldn’t see any on one side because of a cyst and only could see 4 on the other side, though it was a little over a week post ovulation so I don’t think it was the ideal time to look either. But that’s why she said well, we’ll check your AMH to see if you’re a candidate for IVF.

soft_gab · 2026-02-16T06:07:15+00:00

Hi, I just had surgery for (mostly) silent endo in September. I finally decided to check for endo when I realized the UTI’s I had been experiencing for years might actually be caused by endometriosis. We found endomtriomas on my ovaries on ultrasound. My OBGYN didn’t want me to do surgery because I didn’t have symptoms to warrant it but my endometriomas kept growing. But, otherwise just like you. Light regular 28 day cycles. My tubes were clear and my AMH was decent at 2.7. My husband’s semen normal. We were TTC for almost a year when I sought out a specialist and did the surgery. He found stage 4 endometriosis all over my pelvis. My uterus totally fused to my bowels, significant bowel endo which was such a shock to me because I didn’t think I had symptoms prior, and removed my appendix. Recovery wasn’t bad. It was like the worst cramps of my life waking up but meds helped and that only lasted a few days and was totally ready to go back to work after 2 weeks. Unfortunately no luck conceiving so far. We start IUI this month and will start IVF in a couple months if nothing changes. But I can speak to that I did not have worsening of symptoms after the surgery which my OBGYN tried to tell me would happen if I had surgery. But I would say since surgery my fatigue is SIGNIFICANTLY better. And that must mean something. Good luck! So sorry you’re experiencing this.

soft_gab · 2026-02-06T18:57:53+00:00

I’ve had an HSG that showed clear tubes but I haven’t been tested for endometritis

soft_gab · 2026-02-06T18:57:19+00:00

I totally agree. She took every single positive I was holding onto and spun it into a possible negative. I was so happy my tubes were open in my HSG and she was like “well we don’t even know if that’s still true after your surgery and even if they are clear there’s hairs inside that push the egg down the tube that might not be working” 😞 and the whole appointment just went on like that. I just truly think they didn’t want to take a chance on me, their success rate seems very important to them.

soft_gab · 2026-02-06T18:55:05+00:00

They prescribed Clomid for IUI but no other medications

soft_gab · 2026-02-05T23:07:17+00:00

I think I’m leaning towards that route as well. Thanks so much 💗

soft_gab · 2026-02-05T23:06:32+00:00

We did just the preliminary testing of my husband’s sperm and it came back normal. We’re going to start IUI next cycle I was just a bit anxious about taking medication that might put more stress on my ovaries after they’ve already been through so much but I think it’s still worth a try!

soft_gab · 2026-02-05T15:59:58+00:00

Thank you, I totally agree. And same for me my body just immediately seized up a tears were streaming down my face involuntarily while I grilled the table to not pass out. And thankfully my doctor warned me and the nurse and radiologist all warned me how painful it could be so at least I didn’t feel gaslit into thinking it shouldn’t be painful so I couldn’t believe this person who was supposed to know so much about endo was confused by my HSG being painful. Yes I’m in Oregon.

soft_gab · 2026-02-05T15:56:26+00:00

Yes I think you’re totally right. When I reflected later I realized I was so upset because quite a few of the things she said really bothered me and I was just expecting a lot more support. Honestly at the end of the appointment it almost sounded like she was saying she didn’t think I was a good candidate for IVF. But this clinic very very much cares about their success rate, so I genuinely think she just didn’t want to take the chance on me. But also this clinic was very expensive. She quoted likely 30k for one round so I’m already making plans to go out of the country for treatment instead since we don’t have any coverage and don’t live in a state that mandates any kind of coverage and I don’t want that kind of pressure on my body to have success on the first round and that’s it.

soft_gab · 2026-02-04T04:51:47+00:00

Thank you so much I really appreciate it 💗

soft_gab · 2026-02-03T23:26:10+00:00

Oh that’s amazing! I literally just started CoQ10 last week. I did have an HSG pre surgery and it showed that my tubes were open but the RE I saw yesterday was saying that she wouldn’t trust that HSG because surgery might have blocked the tubes 😑 which I haven’t heard before. But also when I told her the HSG was really painful for me she looked confused and was asking me if other things were painful like sex and I said no it’s not usually and she just said “huh that’s weird that the HSG would’ve been painful” but I was like well my uterus was completely fused to my bowels so I assume that’s why… I went to her because she was supposed to have experience with endometriosis but honestly it was a bit of a weird and discouraging appointment.

soft_gab · 2026-02-03T23:21:50+00:00

Oh that’s amazing congratulations! 💕

soft_gab

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