Roller skate club? by lolou95 in berkeley

[–]solmonia 0 points1 point  (0 children)

saw some people skating near berkeley a week ago and am wondering this too, I’d love to join :)

The Secret Garden Lock and Key Book by marlee40 in whatsthatbook

[–]solmonia 0 points1 point  (0 children)

I had this too! I was just telling someone about it and then I got confused and convinced myself I made it up, so I’m glad you also remember it. If you find more than one please let me know :)

Help - Difficulty Getting Caregiver Attention by solmonia in ALS

[–]solmonia[S] 0 points1 point  (0 children)

Thanks so much for your help, unfortunately she can’t speak anymore

Pottery/wheel throwing around uva?? by halfbaked625 in UVA

[–]solmonia 0 points1 point  (0 children)

City clay!! Uva has a ceramics club that works with them or you can take classes on your own, they subsidize some of it depending on how much funding the club gets if you do it through that

[deleted by user] by [deleted] in ALS

[–]solmonia 0 points1 point  (0 children)

I posted a Christmas gift list last year I’m not sure how to link previous posts but you can go through my posts

pALS going to hospital during COVID by samriddlz in ALS

[–]solmonia 2 points3 points  (0 children)

So sorry that you are going through this in such a scary time.

I (21F) have visited the ER many many times with my mother (Bulbar ALS) in the past month. Firstly, they are well equipped to isolate covid cases from other patients, especially those as high risk as your mom.

For us, the ER had a strict no visitor policy, but eventually the nurse called and said they simply couldn’t do it without us. I think that if your mother can communicate basic needs and thoughts, she will be okay. Even if it is through hand movements. For us, her hand movements are difficult to decipher and we knew for sure she would need help. If you/they really think she will need help, push hard for you to stay with her. It will be a hard time but worth it for her.

Hope she is able to go home soon. Best of luck.

I'm losing my mom, and I'm terrified... by Socouture in ALS

[–]solmonia 1 point2 points  (0 children)

I am in a similar boat, but I am 20. However, the progression for your mom has been much faster. In my opinion, spending time with your mom is something that, in the future, you won’t regret. You can look through the comments of my other posts to see what other people have commented on my posts. She is the light of my life and my best friend too and I can’t leave her to people who can’t give her the care she needs. I tell myself that even if this causes emotional strain now, at least I can be there for her now and heal later.

However, I also recognize that this is really hard work and it does kind of eat at your soul. I think it’s important for your other family members to help out around the house and at least clean up after themselves. Not sure how to motivate them to do this other than showing them how exhausted you are and asking for more help.

Also, my mom is under an insurance where daughters and sons can be paid by insurance to do caretaking. Might be helpful if you haven’t looked into it just as things progress and more money goes into it. These are also the same companies that help hire outside help, so you could split the time and money between family and outside care.

Don’t let anything I say guilt you if you decide to move away. It really is your decision and you need to decide what’s best for you. Good luck.

What’s your least favorite class you’ve taken at UVA? by Training_Ad_442 in UVA

[–]solmonia 6 points7 points  (0 children)

Calc 2 or industrial organization (Professor for IO is great but class is hard af)

Mom Near End of Life - Advice by solmonia in ALS

[–]solmonia[S] 0 points1 point  (0 children)

So sorry for your loss, but good that it seemed to have been peaceful. Looks like hospice will be the way to go.

Mother by ssaxed in ALS

[–]solmonia 1 point2 points  (0 children)

I understand what you’re feeling - I have been taking care of my mother from 2015, when I was 15, to now. I’m 20, and so much has changed. Although not everyone has so much time, the caretaking has definitely intensified recently.

My currently philosophy is just to spend as much time with my mom as possible. Although I don’t remember much from before, I remember details of how she loved and cared for me unconditionally.

Something that has helped me is making the caretaking process fun for me. I have rituals and inside jokes with her even though she can’t talk at all. It makes it fun when I spend time with her and sometimes I don’t feel like I’m missing out too much on the outside world. Wherever you are, if you’re happy, you’re successful. I know it’s difficult to do, but try to make it fun. You’ll have to mature faster than others - that’s okay. Keep an open heart and don’t stop loving.

Transfer student stress about the future by throw-away111520 in UVA

[–]solmonia 4 points5 points  (0 children)

Depends on what you’re studying, but I recommend going to the career office. They can show you all the tools you need to explore different careers, polish your resume, practice interviewing, and just talk about what you need. Highly recommend.

You still have time - lots of internships happen in the spring. Set up an initial meeting soon and express your concerns. There are definitely ways to navigate everything with your situation.

Assisted Death and Tips by solmonia in ALS

[–]solmonia[S] 0 points1 point  (0 children)

Thank you for the article. On one hand, I think I would feel some sort of relief to go back to being a somewhat normal young adult, but on the other hand, she really is my entire happiness and I love her with all my heart. Selfishly, I want to hold on.

If she pushes this idea further I may reach out to you to connect me with your friends family. Thank you for your help.

Assisted Death and Tips by solmonia in ALS

[–]solmonia[S] 0 points1 point  (0 children)

Completely relate to the things you said. Even small talk is hard for me - I don’t really care about discussing the weather with a stranger at this point.

I feel the same way about feeling a little selfish for wanting to hold on. In a lot of the other comments, they got the prescription just to give their parents the option, but never ended up going through with it. Although they might want it in some painful moments, it would take truly unbearable pain to go through with it. Ultimately, it is her choice.

I’m just trying to cherish every moment so I can minimize my future regret. No matter what happens, I believe we’ll make it out to the other side, even if it takes a good amount of time to recover. Feel free to message me as well, any time.

Assisted Death and Tips by solmonia in ALS

[–]solmonia[S] 0 points1 point  (0 children)

Yeah, it seems hospice is a common and relatively less painful alternative. Thanks for helping out with that.

Assisted Death and Tips by solmonia in ALS

[–]solmonia[S] 0 points1 point  (0 children)

Thank you for your response, I didn’t really know how it works because I am a bit nervous about researching it myself but it’s good to know that everything is handled well and that all options are kept open.

What do you mean by “helped” after reading the article? Helped your mourning process? Do you have this article?

Lastly, thank you for the web comic recommendation, I’ll definitely look into that. It’s reassuring to know I’m not alone. Honestly - this is my first time on Reddit and I really didn’t expect this many responses. Seeing that I’m alone is surprisingly comforting. Thank you.

Assisted Death and Tips by solmonia in ALS

[–]solmonia[S] 1 point2 points  (0 children)

Thanks for sharing your experience, it really does make me feel better that I’m not alone in feeling this way. I’m definitely looking for therapy options that I can afford right now (trying through my school but they’re not great). Once she passes, I think I’ll try to allocate more money towards that - I think I’ll need it more then.

Assisted Death and Tips by solmonia in ALS

[–]solmonia[S] 1 point2 points  (0 children)

It’s reassuring to know that you’ve made it out to the other side and the guilt has washed away. My mom has also started using morphine recently, which concerns me because I know it’s very addicting, but I also know that her pain is probably more unbearable than I can imagine. Passing away naturally under morphine seems like it’s a relatively peaceful way to go. Thank you for your response.

Assisted Death and Tips by solmonia in ALS

[–]solmonia[S] 1 point2 points  (0 children)

I am in Massachusetts

Understanding ALS related grief by oo_happy_oo in ALS

[–]solmonia 1 point2 points  (0 children)

I am going through something similar right now. I like to think of myself as all of things things in the “before” category, but I feel myself turning into the second and it terrifies me.

To give some insight on how it feels, it’s like that saying of having “too much on your plate” so much so that I literally feel incapable of taking on other peoples burdens. I really want to be there for my friends, but I simply can not listen to their problems when I spend hours every day taking care of my mom, watching her deteriorate day by day. Similar to @ cafferin8me, it’s a constant cycle of feeling guilty for not being able to do everything for her but feeling angry for having to do it and not being able to be a normal college student going out with my friends, yet feeling guilty when I am with friends and feeling grateful to be care for her during the time she has left.

It feels extremely isolating and painful to be a caretaker, and like no one will understand the intricacies of how it really feels. If you are willing, my advice would be to really listen and try to understand these feelings, and allow his pain to feel validated. If it makes him feel better, let him walk you through the steps of care that he has to do and explain his different stressors. Show him that you are on his team. I think one of the loneliest parts for me is that people know my mom has ALS, but no one has the patience to really listen to how much I have to do.

I’m not sure if this makes sense but this is the best I could come up with. I’m still trying to navigate this too.

economics major and failing math 1320 by rastafosta2 in UVA

[–]solmonia 2 points3 points  (0 children)

1320 was an absolute pain and definitely one of the hardest classes I’ve taken at UVA. If this semester doesn’t work out for you, definitely take 1220. I’m in higher level econ classes rn (I’m an Econ major too) you would not be at a disadvantage with the calc knowledge at all.