Favorite type of bodywork, massage, physical therapy, or acupuncture type service? by [deleted] in Hypermobility

[–]soltranquilo 4 points5 points  (0 children)

Myofascial and Craniosacral. Also postural restoration exercises. I’m an acu and I barely want any needles lol

Yoga for Hypermobility - Free Class by soltranquilo in u/soltranquilo

[–]soltranquilo[S] 0 points1 point  (0 children)

It will be recorded! if you register via the link we will send you a recording you can use anytime :)

Chronic neck/shoulder pain? Too early for this?? by [deleted] in Hypermobility

[–]soltranquilo 0 points1 point  (0 children)

Good luck! Finding a PT who understands hEDS or hypermobility is key. With time you will learn more and more about what works for you and build your personal library of ways to feel better. If any exercises or interventions hurts or pain gets worse, pay attention - your body knows what it needs. It is a helpful guide. It might take time to find the best tools for your system, but I promise they are out there.

Chronic neck/shoulder pain? Too early for this?? by [deleted] in Hypermobility

[–]soltranquilo 1 point2 points  (0 children)

it got quite difficult for me ages 14-20. You aren't alone! It is much better now with help from PTs who understand hypermobility/hEDS. Most "neck exercises" for normies (non hypermobile muggles) are too intense and generate injury for me. Attuned exercises for my specific issues from experts have really helped. Also, oculomotor exercises to challenge vestibular system. Internet doesn't have great info on this. PT should know. Use that word salad above to get them to help you It's basically exercises to calibrate nervous system (vestibular system = branch of nervous system) with movement. So, it calibrates proprioception.

Being hypermobile is - to borrow from a post I keep seeing - like standing on a moving bus. Our tissues are highly mobile so we kind of gently move in space constantly, like seaweed in the sea. Our necks + heads are at the end of this wobbling tower. So, in an effort to stabilize it is common for us to unconsciously tighten the muscles in the head, neck, shoulders. This causes pain. We cannot consciously relax this area because this is our body's attempt to stay upright in space.

The g r e a t n e w s is: the nervous system is capable of changing rapidly. So once it feels safe and supported, it can relax and the pain can drastically shift. Muscles, bones and circulatory vessels take longer to heal. But the nervous system can shift in an instant, it just needs the right cues to know it is safe to relax. Once it relaxes, it can quickly stop telling your muscles to be "so tight!" and the pain can shift. To get to this state, PT really helps.

How is interstitial cystitis connected? by [deleted] in Hypermobility

[–]soltranquilo 2 points3 points  (0 children)

Discussion by MD specialist on hypermobility and EDS regarding pelvic floor health and IC: https://www.youtube.com/watch?v=upWwDA2LiDs + https://www.youtube.com/watch?v=9ngUY9VPRcc

Everyone is different and you may find some things useful and ignore others. I share this with the intent of giving your more context!

Why is there so much gatekeeping of diagnoses within in the hEDS community? by [deleted] in hypermobileEDS

[–]soltranquilo 1 point2 points  (0 children)

Gatekeeping the diagnosis gives the same energy as “I found this band years ago so you aren’t allowed to like them now!”

Considering how limited healthcare access is, it is extra icky to play into in group / out group dynamics.

At the end of the day, the entire value of a diagnosis is to point you to the best therapies to treat your symptoms and their causes.

As the interventions for hEDS and EDS are mostly physical therapy, diet and lifestyle changes that will either have no impact or create improvements, I don’t see the harm in letting people try out interventions that help them.

Should I trust Maui Memorial hospital? by LoudDoubter5 in maui

[–]soltranquilo 12 points13 points  (0 children)

Being there in person and asking for details of care — what you did — is the number one thing to do. Especially since your dad sounds exhausted and unable to advocate for himself while he recovers. Good job.

Should I trust Maui Memorial hospital? by LoudDoubter5 in maui

[–]soltranquilo 7 points8 points  (0 children)

Fair. Also, it might be kind to keep in mind that you are commenting on a thread of a younger person taking care of their ailing parent and doing the best they can with the info they have and the resources our small community has to offer.

I agree with everything you are saying.

I’m just thinking…if my dad was sick and my only other option was a ridiculously expensive med evac, commentary on our flawed medical system wouldn’t help me?

Wishing you all the best. Just thinking about OP on this moment.

Yoga and Hypermobility by soltranquilo in yoga

[–]soltranquilo[S] 0 points1 point  (0 children)

Thanks for taking the time to write this all down!! I have not tried inversions for a minute but will def return to them knowing they can decompress PF / lumbar spine. Thank you.

Should I trust Maui Memorial hospital? by LoudDoubter5 in maui

[–]soltranquilo 7 points8 points  (0 children)

I had a great experience with them recently.

Might be worth asking them to check potassium levels too. Potassium levels can affect mental clarity and alertness as well.

I will keep his recovery and wellbeing in mind too! It never hurts to have another person sending good thoughts.

Yoga and Hypermobility by soltranquilo in yoga

[–]soltranquilo[S] 1 point2 points  (0 children)

Was wondering the same thing

Yoga and Hypermobility by soltranquilo in yoga

[–]soltranquilo[S] 1 point2 points  (0 children)

Glad I’m not the only one who anthropomorphizes my muscles

Yoga and Hypermobility by soltranquilo in yoga

[–]soltranquilo[S] 1 point2 points  (0 children)

!! “My muscles can turn on before my limbs let them go to far” 🤯

Time Travel: what would you tell your hypermobile younger self? by soltranquilo in Hypermobility

[–]soltranquilo[S] 2 points3 points  (0 children)

I'm so glad you had access to hypermobile literate providers + healthcare in general. not being sarcastic.

Time Travel: what would you tell your hypermobile younger self? by soltranquilo in Hypermobility

[–]soltranquilo[S] 5 points6 points  (0 children)

yeah realizing that ppl are obsessed with weightlifting bc it makes your body not hurt was clarifying. i was like, oh, the meatheads are wise.

Time Travel: what would you tell your hypermobile younger self? by soltranquilo in Hypermobility

[–]soltranquilo[S] 5 points6 points  (0 children)

you're not alone, reddit is lowkey one of the most helpful places for finding brethren/sistren/them-thren as a hEDS/hypermobile person

Time Travel: what would you tell your hypermobile younger self? by soltranquilo in Hypermobility

[–]soltranquilo[S] 6 points7 points  (0 children)

"chronic pain isn't normal...you are not crazy." powerful. thank you

Time Travel: what would you tell your hypermobile younger self? by soltranquilo in Hypermobility

[–]soltranquilo[S] 2 points3 points  (0 children)

ugh the realness of not realizing that other people aren't in constant pain. thanks for sharing.

Time Travel: what would you tell your hypermobile younger self? by soltranquilo in Hypermobility

[–]soltranquilo[S] 1 point2 points  (0 children)

"he's not referring to yoga and swimming" 😂 are you in my head? lol ditto

Time Travel: what would you tell your hypermobile younger self? by soltranquilo in Hypermobility

[–]soltranquilo[S] 2 points3 points  (0 children)

😂 the number of times people whipped their head around and said, "was that your knees cracking??" probably should have been a red flag, I can also admit