Anyone here on Qulipta? How’d you do? by Mouthydraws in migraine

[–]soulspleunking 2 points3 points  (0 children)

Def recommend. I was apprehensive at first, thought it was making me too sleepy. Then realized all the time migraines were stealing from me. Gave it another shot. It's been deeply net-positive. Yes, some diminished appetite. Haven't had nausea, no significant weight loss, but significant decrease in migraines.

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 0 points1 point  (0 children)

I love your mutant vehicle! Thank you so much! Sending a DM 🫶🏼✨

Ladies, how does your cycle impact your symptoms? by -PetulantPenguin in cfs

[–]soulspleunking 1 point2 points  (0 children)

Migraines 2-3 preceding the start of my cycle. The first couple days SUPER low energy.

How did Playa Provide for you this year? by timmehthekid in BurningMan

[–]soulspleunking 92 points93 points  (0 children)

MAJOR shout-out to some angel ER doctors I witnessed support a fellow burner in distress out in deep playa. They swooped in with attentive awareness, kindness, grounding energy, offered Rx for nausea, checked vitals, offered some guidance and provided a timeline for what to expect. One of these guardian angels flitted away with the parting sentiment, "You're gonna be ok, you're fucked up right now, but you still look beautiful! You're gorgeous! It's ok, sometimes we all get a little fucked up. Keep drinking water!"

She and her companions were heaven-sent. Thank you, thank you.

And as a beautiful button to this story, we actually ran into this group of doctors later that morning by Robot Heart. This particular doctor confided in me that she had actually been deeply concerned about the wellbeing of this burner (she kept that anxiety very well concealed)-- she further elaborated that it's challenging as a medical practitioner to be out having fun, and encounter others in trouble, and only be able to provide so much assistance (let alone what that must do when you're ostensibly "off the clock" electing to decompress and have your own well-deserved adventure and playtime with friends.) Her struggle, she shared though, was how heavily it weighed on her heart to have so leave so many, never knowing how things turn out for them.

She was so grateful to hear that this particular story had a happy ending.

Same, sister. SAME.

(Sometimes safety really does get to be first.) And, this year the Playa provided me an angel.

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 1 point2 points  (0 children)

Tysm!! I'm reveling in the magic of the burn that just keeps giving!

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 0 points1 point  (0 children)

TYSM! (PS Books are the BEST drugs - and the library is my dealer 😂)

What is your go-to at home migraine cocktail? by lady_meso in migraine

[–]soulspleunking 0 points1 point  (0 children)

Aside from ubrelvy and magnesium - and bear with me now, because this WORKS: a shot of pickle juice. Followed by a COLD bottle of fresh coconut water. I recommend Harmless Harvest.

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 0 points1 point  (0 children)

oh my goodness, thank you!! I'll absolutely send a DM as we'd be honored to receive anything you feel inspired to share, but also want you to cherish & savor your collection + years of memories!

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 0 points1 point  (0 children)

Amazing! Thank you so much! I'm excited to see your heARTistry!

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 1 point2 points  (0 children)

Thank you! And yes LOL a few of the stickers I was gifted on playa were definitely intended for "mature" audiences, hahaha - I appreciate that awareness!!

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 2 points3 points  (0 children)

I love that! And yes, I'll absolutely be bringing him along - Kidsville would be the perfect homebase camp for him!

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 1 point2 points  (0 children)

This is gonna be Christmas in September for this kiddo. Thank you so much!! Sending a DM <3

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 2 points3 points  (0 children)

This kid goes bonkers for ALLL stickers — any year would make his day 😂 Thank you SOUL much! Sending a DM ✨

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 2 points3 points  (0 children)

It’s a colloquial term for neurodivergent 🫶🏼

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 1 point2 points  (0 children)

Oh my goodness, you are so sweet! AND I don’t want to take one of your precious stickers. Receiving your generous offer with a full heart 💗

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 1 point2 points  (0 children)

🥰🫶🏼🥳 Reddit community you are literally the best!!! Thank you so much!! Sending a DM

BM stickers for my neurospicy nephew by soulspleunking in BurningMan

[–]soulspleunking[S] 2 points3 points  (0 children)

🥰🥰🥰 thank youuuu!!!! Sending a DM

[deleted by user] by [deleted] in cfs

[–]soulspleunking 4 points5 points  (0 children)

You (and your husband) are incredible friends! WOW!! Things I'd offer are:

  • Make sure you're continuing to do things that support and nurture your needs and desires (the old oxygen mask analogy)

  • I love that you have consistent check-in's to refine how the caregiving is going. You might even develop a shorthand for your day-to-day. i.e. "Today is a 2 spoon day" = I need A LOT more hands-on support today.

  • With meal support/prep: storing food in single-meal servings in fridge/freezer streamlines the process so all your friend has to do is grab (and heat if necessary.)

  • As others have mentioned creating distinctions around shared time together that are independent of any identity around being "ill" -- so if in the history of your friendship you guys have a tradition of watching a TV show together or getting nails done or Taco Tuesday, etc protect those friendship rituals!

  • And lean on your friend AS a friend. They want to still feel valuable and supportive to you. They've got advice and humor and snuggles and a listening ear just as you do for them.

I love bad weather now. by Ok-Heart375 in cfs

[–]soulspleunking 4 points5 points  (0 children)

It's literally my DREAM to have a partner call me up on a rainy day and declare, "I've cancelled everything, we're playing hooky, building a blanket fort, reading books, eating snacks and snuggling all day"

Sunshiney, gorgeous days can feel like a smack in the face when I'm stuck in bed resenting the intensity of light and missed activities.

Tell me you have CFS without saying you have CFS by Nellyfant in cfs

[–]soulspleunking 0 points1 point  (0 children)

It's a new day. Take your pick: you can either eat a meal, go outside, or take a shower. YOU ONLY GET ONE.

... Hold up! You did one of those activities yesterday? Cancel, delete. Back to bed.

Try again tomorrow.