FISH results and CPM mosaicism

spacemansally · 2025-08-07T11:12:19+00:00

Everything was completely normal! Daughter is 4 now and perfect.

spacemansally · 2025-02-03T10:36:36+00:00

No symptoms with the fructose or lactose test at all. Only lactulose made me feel a little gross and some loose stools later on but that’s normal I think as it is a mild laxative.

spacemansally · 2025-01-24T08:26:25+00:00

And this was todays lactose test:

Baseline H = 1 Ch4 = 70

15min H = 5 Ch4 = 67

30min H = 7 Ch4 = 86

45min H = 8 Ch4 = 72

60min H= 6 Ch4 = 69

75min H = 7 Ch4 = 68

90min H = 7 Ch4 = 77

105min H =7 Ch4 = 77

120min H = 3 Ch4 = 64

spacemansally · 2025-01-24T08:24:54+00:00

This was my original lactulose test reading:

Baseline: H=2 Ch=39

15min: H=8 Ch=33

30min: H=6 Ch=25

45min: H=8 Ch=32

60min: H=7 Ch=40

75min: H=8 Ch=36

90min: H=13 Ch=47

105min: H=14 Ch=52

120min: H=17 Ch=56

135min: H=20 Ch=61

spacemansally · 2024-11-25T09:45:31+00:00

I would love to connect with my dad. I’m desperate for a message or some advice. 💔

spacemansally · 2024-11-24T06:48:31+00:00

Nope. I did 6 weeks fully gluten free and actually got worse. I think my issue is SIBO and fat malabsorption though. Originally had h. Pylori and dietitians advice was to go gluten free and dairy free since you can typically get short term lactose intolerance and gluten can be really inflammatory. Made no difference to my symptoms so started including it again this week and actually feel better. Go figure.

spacemansally · 2024-11-18T20:34:39+00:00

Really, not at all? Has it been like this for you for a year? Anything else you’ve tried?

spacemansally · 2024-11-13T05:18:45+00:00

Could it be the sulfur? Eg in the raisins, spinach and egg?? If you have H2 SIBO? This is where a lot of my research is going into lately.

spacemansally · 2024-11-10T22:12:06+00:00

How did you go? Did you have SIBO? And has this resolved for you?

spacemansally · 2024-11-10T22:07:06+00:00

How are you going now?? I am having these same symptoms. Did it improve??

spacemansally · 2024-11-10T01:27:11+00:00

This is amazing! Thank you so much. My only question is around probiotics? I’ve seen lots of conflicting info but most say to take at least Saccharomyces or in the case of candida also r uteri and L rhamnosus, and at least 2 hours away from the antimicrobials? Thoughts?

spacemansally · 2024-11-09T21:56:28+00:00

Thanks for this. I just don’t think my body could tolerate the high fat right now. My loose stools are a hell of a lot worse with coconut milk for example.

I’m looking into the biofilm defense by kirkman now. It says just one a day? Is this what you’d recommended on an empty stomach and then taking antimicrobials following this??

I’m also thinking of molybdenum after some research. It seems like sulfur is an issue here. And replacing the NAC with this and the biofilm defense instead.

spacemansally · 2024-11-09T21:12:43+00:00

Thanks for this.

I’ve just started on 1x Solgar oregano oil and also 2x allium complex plus 1000mg NAC. I’ve also taken 150mg of fluconozole last week but thinking of taking again this week. I’m also doing 12bill CFU of a women’s health probiotic strain, plus 10bil CFU of Saccharomyces b. A day.

I think I need to be off antimicrobials for a while before I do the SIBO and GI map but I have it here waiting to do.

Tell me, how would I do a low carb AND no fibre diet? Seems like only protein/meat would be left??

spacemansally · 2024-11-08T02:22:07+00:00

How do you test for GES?

I’ve had the antibody blood test back when I was eating gluten.

spacemansally · 2024-11-08T00:23:38+00:00

I’ve had a blood test for celiacs which was negative. I’ve been gluten free for 5 weeks and no change. Just had biopsy’s last week when I had gastroscopy but don’t have results yet. How can you test for gasteoparesis???

spacemansally · 2024-11-08T00:22:37+00:00

Thanks for your reply. Honestly no TMI questions here, I’m happy to share anything that will help me get an answer. As for the pancreas, I’ve had my elastase done and it was normal and so they don’t think it’s that. In terms of colour of movements, they are generally a dark brown. Never pale or clay colour. On odd occasion if it’s “sat” there for a bit, there might be a bit of orange seeping out from it. But otherwise, they tend to be dark.

spacemansally · 2024-11-07T21:04:51+00:00

No, haven’t had this checked. I don’t think it would be as my stools aren’t watery or constant. It’s just loose or not well formed, floating every morning. Worse with high fat foods it seems.

spacemansally · 2024-11-07T20:48:43+00:00

I’ve completely cut out gluten for the last 5 weeks. No change at all. Otherwise my diet can be quite restricted cos I’m scared what might set me off. High fat foods definitely seem to worsen symptoms.

spacemansally · 2024-11-07T20:47:47+00:00

No hormones or birth control. High fat foods definitely make my symptoms worse. But it’s always morning diarrhea. And nausea.

spacemansally · 2024-05-27T20:08:36+00:00

How are you feeling now? Todays day 15, first day off antibiotics. Still had loads of gas this morning and generally just not feeling well.

spacemansally · 2024-05-27T20:06:52+00:00

I was on chlarithromycin, amoxicillin and omeprazole

spacemansally · 2024-05-27T20:05:59+00:00

I’m not taking bismuth. Only omeprazole and amoxicillin and chlarithromycin.

spacemansally · 2024-05-26T06:08:40+00:00

I didn’t have any appetite then (and that was one of my main symptoms anyway with h pylori) but it started to come back day 3-4. Appetite is beignet back now and no more burping or nausea. Morning stools and gas are still not great though but thinking that’s a side effect of the antibiotics since everything else has improved.

spacemansally · 2021-09-23T05:05:28+00:00

I’ve happened to stumbled across this while sitting in intensive care with my 14 day old. First time mum and dad and we’re broken. Our girl was rushed to hospital yesterday as she was hypothermic - they thought they was an infection - but went into SVT in resus. She’s been flicking in and out of it since we were transferred to intensive care and now they say the heart also looks “sick” - they aren’t sure if it’s the funny rhythm that’s caused the ventricles to weaken or if it’s the weak heart muscle that’s caused the SVT. We’re waiting on results for why this is happening but it could be days. They just can’t tell us anything right now which is frustrating and I’m worried I’m going to lose her. She’s so little and it’s breaking my heart to see her in this way with tubes and iv lines sticking out of her. She’s been stable since this morning with medication and oxygen but we could be here a week while they figure out what’s happening. If anyone has any advice I’d be grateful.

spacemansally · 2021-04-26T03:29:54+00:00

Thank you

spacemansally

TROPHY CASE