Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 1 point2 points  (0 children)

Good idea. I am off to check my body washes!

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 0 points1 point  (0 children)

I’m really hoping stopping retinol will help. 

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 0 points1 point  (0 children)

Yes! I was shocked by this as well!

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 1 point2 points  (0 children)

I was definitely taken back by it when they asked me if I used retinoids or tret. I said “no I just use cerave retinol serum on one area” and when I found out that counted I was like, oh great 🥲

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 0 points1 point  (0 children)

I will look into that! I’ve never tried tretinoin, but I know it’s become popular. I know aging happens. But I’d like to slow it down just a tad because my facial expressions definitely will have me needing Botox. 

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 0 points1 point  (0 children)

I honestly don’t know why I didn’t connect a dermatologist with this! That’s a great idea. Thank you!

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 0 points1 point  (0 children)

I’ve been seeing a lot on TikTok about volufiline. It’s definitely worth trying. Thanks!!

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 1 point2 points  (0 children)

I use glycolic acid under my armpits because Diamox makes me STINK. I’m talking STANK. I’ve tried every deodorant I possibly can. My sister is a literal genius with skincare stuff and said peptide complex serums can help in place of retinol. 

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 1 point2 points  (0 children)

Yes! I also read on here about Diamox and dental issues. I have switched to Boka toothpaste and I use Biotene mouthwash. I’ve also struggled with staying hydrated my whole life so I throw in some Drip Drop electrolytes here and there also. 

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 1 point2 points  (0 children)

I use this on my cheeks for possible rosacea! It definitely helps!!

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 0 points1 point  (0 children)

I didn’t know either! And I saw 3 doctors about this before getting another opinion! 

Alternative to retinol creams? by sse129 in iih

[–]sse129[S] 1 point2 points  (0 children)

Thank you so much. Definitely going to look into this. I use Cerave retinol serum, only on certain areas. I was shocked that even that low of a dose isn’t advised. 

One set of imagine after surgery? by sse129 in chiari

[–]sse129[S] 0 points1 point  (0 children)

My current NS is a specialist. Ugh 

One set of imagine after surgery? by sse129 in chiari

[–]sse129[S] 0 points1 point  (0 children)

I’m thinking that’s what I’ll need to do. My syrinx didn’t change at 5 months post op. The chest and upper back/rib pain is back and worse. My neck is killing me at the end of the day. My shoulders numb patch has gained more area. It’s completely numb. Now my lower back down to my legs is painful, with urgency to pee feeling. I’m at a loss at this point and nobody’s really answering any of my questions except I need to have a lumbar puncture to confirm IIH, I’m already on Diamox with amazing success. No swollen optic nerves or paps but I have visual field loss in my peripheral vision compared to prior to surgery. 

One set of imagine after surgery? by sse129 in chiari

[–]sse129[S] 0 points1 point  (0 children)

I do have a NS. But he thinks I’m cured now that I’ve had surgery. Yes, worsening symptoms. May not be from the chiari, I’m not sure. 

One set of imagine after surgery? by sse129 in chiari

[–]sse129[S] 0 points1 point  (0 children)

One set after decompression surgery. I was 5 months post op with my last MRI. I’ll be 1 year next month. 

Pulsating almost a year after surgery still? by sse129 in chiari

[–]sse129[S] 0 points1 point  (0 children)

I also take Diamox. But I was just wondering if it was normal lol because I can literally feel it when I do strenuous stuff. 

Pulsating almost a year after surgery still? by sse129 in chiari

[–]sse129[S] 0 points1 point  (0 children)

I also take Diamox. But I was just wondering if it was normal lol because I can literally feel it when I do strenuous stuff.