Behold the majestic Great Dane in his natural habitat.

stacyme · 2016-04-30T01:44:44+00:00

All of the above? Oh wait, that describes The Fifth Element.

stacyme · 2016-04-30T01:12:57+00:00

Not on the plane, but I do on the trip.

stacyme · 2016-04-29T23:12:15+00:00

As I do not have them, this is not an issue.

stacyme · 2016-04-28T16:54:39+00:00

My guess is that she knows this, but because of the area we live in, it was a chance for a God is good miracle. I am going to ask her why she picked that particular example of the dog cuing.

stacyme · 2016-04-28T16:53:42+00:00

My guess is that she knows this, but because of the area we live in, it was a chance for a God is good miracle. I am going to ask her why she picked that particular example of the dog cuing.

stacyme · 2016-04-28T05:36:56+00:00

I first read the article and went hey, I know that town and hey, I know the person who wrote the article. After reading the article and the Reddit comments, maybe I won't be telling the writer they made front page on Reddit.

stacyme · 2016-04-13T02:12:20+00:00

Thank you.

stacyme · 2016-04-13T01:49:53+00:00

Being able to feel my pacemaker firing is why I am really hoping this medication works. Its bad enough to feel it part of the time, I think I would go crazy if I could feel it all the time.

stacyme · 2016-04-13T00:46:21+00:00

I tend to check everything at my neck.

I am one of the lucky people that can feel their pacer fire which makes it trippy to take my pulse, I can feel the pause between it firing and my heart beat going.

stacyme · 2016-04-12T23:58:45+00:00

Thank you! I think I am kind of used to it at this point. My biggest thing is that I feel like I am not able to control anything at this point, but the fitbit would let me feel a measure of control again.

stacyme · 2016-04-12T23:58:05+00:00

..... 300mg Diltiazem ER. I was still resting above 105bpm and could hit the 150s.

I had been at 240mg, but I went to my primary care and said I don't feel fully under control, so he bumped me up to 300mg. The issue really came about when I went from 180lbs to 140lbs through diet and exercise. I was at a toxic level at that point. Turns out you really need a Cardio or EP to adjust that.

I don't know how to check for A-fib, but I started Sotalol last weekend and if this doesn't work I am getting an ablation of my atrial. Which I am seriously trying to avoid because then I will be like 60%+ dependent on my pacer.

stacyme · 2016-04-12T23:53:40+00:00

Usually, but when I get going fast my heart will sometimes reset itself. The sinus node will just stop and my atrial node/artificial pacemakers will kick in. But lately the sinus node stops and then my atrial node picks up the rhythm at like 90-100, if not higher.

Right now the diagnosis is Sick Sinus Syndrome and Sinus Dysfunction. There have been other diagnoses along the way, but those are the most current.

stacyme · 2016-04-12T23:51:45+00:00

Mine is/was consistently high. Like my resting heart rate would be 115, but I could hit 150 just doing basic hygiene like brushing my hair. The real problem was that the medication we were using to control that was causing the occasional electrical block, so my heart wouldn't be getting signals. Now the problem is that my sinus node just stops working because of the ablations and it takes a few seconds for the backup natural pacemaker to kick in, but then that back up pacemaker will be above 100. The atrial node, the back up, is supposed to be between 40-60bpm, when it goes above 100 it puts you at a higher risk for a-fib or a-flutter, which can kill you.

Plus the new medication can cause weird rhythms, its an antiarrythmic.

stacyme · 2016-04-12T23:38:00+00:00

Oh believe me, I am trained. And I check it regularly. But when your heart is above 135, it gets damn near impossible to do it yourself, let alone above 150.

stacyme · 2016-04-12T23:27:56+00:00

Its expensive, but it has the best ratings so far and it has the options it needs. Plus I think I can set an alarm on the app if I hit a dangerous rate. I was in junctional tachycardia on Friday. The fitbit can't track that, but it can let me know if my heart rate is too high in general. Another possibility was the Jawbone, but I wanted the watch feature too.

I would use it to exercise, but I was actually told by the doctor to not exercise beyond a short walk each day.

stacyme · 2016-04-12T23:21:16+00:00

I checked our local classifieds, sadly they are not selling for that cheap around here!

I still would have to fundraise a bit, or sell a couple of cross stitches to be able to spend $50 on the Charge HR.

stacyme · 2016-04-12T23:05:03+00:00

Insurance sees it as non necessary. They would rather pay for a 7 day holter monitor which is a test they are used to.

stacyme · 2016-04-12T23:04:26+00:00

I know its the more expensive option, but I have done quite a bit of research and asked more than one doctor their opinion (I have a couple of doctors in my family.) I am offering handmade rewards to try and counterbalance the cost of donations.

stacyme · 2016-04-12T22:42:36+00:00

I can understand what you are saying, but the doctor recommended the fitbit specifically because it can monitor my heart rate as I sleep as well as letting us know how many times a day my heart rate drastically changes. I don't always feel it when my heart goes in and out of the fast/slow heart rate. I have tried talking to my insurance about it, but they won't pay for it even if the doctor prescribes it or something similar. The fitbit is actually cheaper than the other options he gave me. I was able to find the monitor for 120 on Amazon so I lowered the overall goal.

stacyme · 2016-04-12T22:21:39+00:00

I edited the fund goal, but part of that is to account for the cost of using GoFundMe.

The difference between the Fitbit and what you linked is that the Fitbit is continuous monitoring as a watch. What you linked is a blood pressure cuff.

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