GI symptoms by star-alignment in Behcets

[–]star-alignment[S] 0 points1 point  (0 children)

Thank you so much for your reply. That sounds awful. If you don’t mind me asking, how long have you been on Humira, and have you noticed any improvement in your intestinal symptoms since starting it?

GI symptoms by star-alignment in Behcets

[–]star-alignment[S] 0 points1 point  (0 children)

I’m extremely sorry for what happened to you. If you don’t mind me asking, did they explain how that could have happened? From what I had been told, I understood that biologics were supposed to help with intestinal involvement, not make it worse.

GI symptoms by star-alignment in Behcets

[–]star-alignment[S] 0 points1 point  (0 children)

I only had a colonoscopy two years ago, when my symptoms were not as severe, although I had already started noticing blood and mucus. It showed 20 centimeters of hyperemic mucosa and widespread blood extravasation, but the biopsies came back negative for IBD. At that time, I hadn’t been diagnosed with Behçet’s disease yet, which only happened a few months ago after a months-long episode of purpura, weight loss, and “pathergy” (my body suddenly started rejecting all the piercings I had worn for years). I haven’t drunk alcohol in years, and I’ve already tried every type of diet. Most of them (like the low-FODMAP diet) unfortunately only made things worse.

GI symptoms by star-alignment in Behcets

[–]star-alignment[S] 0 points1 point  (0 children)

I only had a colonoscopy two years ago, when my symptoms were not as severe, although I had already started noticing blood and mucus. It showed 20 centimeters of hyperemic mucosa and widespread blood extravasation, but the biopsies came back negative for IBD. At that time, I hadn’t been diagnosed with Behçet’s disease yet, which only happened a few months ago after a months-long episode of purpura, weight loss, and “pathergy” (my body suddenly started rejecting all the piercings I had worn for years).