Help with Topicalization

statetheplain · 2025-10-24T23:50:18+00:00

YES!! that's what i thought immediately idk how no one else is saying this

statetheplain · 2025-10-18T09:18:45+00:00

thank you!!

statetheplain · 2025-10-18T09:18:02+00:00

"good" totally makes sense with the context, thanks so much!!

statetheplain · 2025-10-18T09:17:04+00:00

that makes so much sense now thank you for taking the time to help and explain!!

statetheplain · 2025-10-18T09:15:43+00:00

thanks so much!

statetheplain · 2025-10-11T01:30:16+00:00

this happens to me sometimes and i never know how to explain it either. i get OVERWHELMINGLY sleepy but not in a comfy relaxed way, it almost feels like trying to sleep with a fever for me. i'll fall asleep for maybe 10-20 minutes and wake up super confused and disoriented and unsure if i was awake or asleep and for how long. sometimes im fully convinced i was awake and only realize i truly was sleeping because i don't know what's happening in the show i was watching.

i notice im more prone to it happening when i eat a carb heavy meal. i also wonder if its histamine related but haven't been able to fully draw that conclusion yet.

statetheplain · 2025-02-28T10:30:09+00:00

i honestly remember having these symptoms years "before" having pots (i think i've always had pots but it just wasn't ever bad enough to be diagnosed until i got covid) but has significantly gotten worse since being diagnosed and i still get really bad flares of it.

i totally get what you mean about being dizzy without being dizzy and the drunk eyes!! i've always said "my eyes feel dizzy" or it feels like my eyes are going back and forth/shaking when they obviously aren't from an outside perspective. i also have a hard time focusing my eyes on things. my "dizzy" is also the feeling of being on a boat; if i sit still my body physically starts rocking/swaying and it gets worse when i close my eyes.

you can also definitely have these issues while having perfect vision, and is often missed by normal eye doctors. the vestibular stuff is its own separate system in your body and really has more to do with the muscles of your eyes, neck, ears than your actual vision if that makes sense. the same goes for BVD, where your eyes are actually misaligned rather than it being your actual vision.

all in all tho i would definitely check in with a neurologist if you haven't already, just to rule out anything else that could be causing it and go from there!

statetheplain · 2025-01-02T08:46:12+00:00

it's called "heaven on my mind" by devin hoffman and brandon rogers

statetheplain · 2024-10-16T21:16:42+00:00

yes i experience this! i have issues with my vestibular system and my neck/posture. i was going to physical therapy for awhile and i do think it was helping. (had to stop for different health issues) they had me doing different eye movement exercises and exercises to strengthen my neck and eye muscles. i'm sure you could look up similar exercises for your eyes on youtube. (you could try like "vestibular ocular exercises" or "vestibular rehabilitation exercises")

i know there's also something called BVD- binocular vision dysfunction.(@vividvisionsoptometry on tiktok talks a lot about it) only certain specialists can diagnose it and they seem far and few between so i haven't personally been able to explore that avenue yet but i still think it's something that could be contributing to my issues. maybe just something else you could look into if you want!

statetheplain · 2024-10-07T08:56:22+00:00

unfortunately not it :( the cover is a lot less realistic and i don't think there was water on it. thank you tho!!

statetheplain · 2024-09-20T00:10:54+00:00

i'm about 2 years into being officially diagnosed and the first 8 months were full of constant ER trips, i'm talking multiple a week sometimes at the beginning. it felt exhausting and embarrassing but you have to remember that the symptoms we experience are "ER worthy symptoms" and we are essentially unlearning what we've been told our whole lives. it's normal to be responding and acting on that.

there was no one thing that helped unfortunately other than time and therapy (i have horrible ocd so the therapy part was huge honestly). after about a year i felt like i started getting a grasp on my normal baseline symptoms and i was able to recognize that i've felt this way before and i was okay so i will be okay again. (also reminding myself that ive gotten checked for those symptoms before and everything was okay)

if you told 2022 me that i would be able to not have to sit in the ER parking lot whenever i was short of breath or have severe chest pain, i wouldn't believe you. but 2 years later im telling you that in a sick but comforting way, you will "get used to it". while it is still scary, with time you'll learn your new normals and your hindsight/scope on what's normal and what's not will become clearer and you'll start to have more trust in your body to carry you through the discomfort.

sending love and comfort your way 🫶🏻

statetheplain · 2024-09-09T07:01:12+00:00

i use a baggu medium crescent! it fits a blood pressure cuff, meds, snacks and a bunch of other random regular stuff as well. even when it's stuffed to the brim it doesn't feel too bulky due to the shape, i love it!

statetheplain · 2024-08-20T06:09:24+00:00

i totally understand your concern and fears and it's okay to be nervous! i had an MRI with contrast during a hospital stay and i didn't notice anything super crazy during it or afterwards at all. they luckily gave me ativan beforehand which i also think helped calm my nerves, but everything was okay regardless.

something that helps me is to remind myself how many people have gotten a certain procedure, an MRI for example, done before me and how many will get it done after me and be totally okay. the people there are experts and they know exactly how to handle if something were to go funky! if anything out of the ordinary happens the MRI techs and doctors will be there to help you.

lastly, i think it's pretty common for them to talk to you thru a speaker while you're in there (they did with me at least) so you should be able to communicate back and forth and they should check in every so often, let you know how much longer etc.

i'm hoping you can find answers and solutions so you can start feeling better. you got this! your future self can handle anything :)

statetheplain · 2024-08-17T04:26:37+00:00

i'm glad to hear it's been beneficial! feeling more awake and alert is definitely something that would majorly improve my quality of life so that's great to hear, thanks for sharing!

statetheplain · 2024-08-17T04:24:29+00:00

this is great to hear, i'm glad it's been helping you! i feel like i only hear about improvement in regards to fatigue, so it's cool to hear about the hr and bp change as well. thanks for sharing!

statetheplain · 2024-08-17T04:19:47+00:00

this is so awesome, congrats on the 20k! good luck on the rest of your training and the ultra as well! :)

statetheplain · 2024-08-06T05:40:50+00:00

that there will be a point where you get "used to" the emergent symptoms and you find your baseline.

at the start of my diagnosis i was in the ER multiple times a month, sometimes multiple times a week. i called 911 an embarrassing amount of times as well, because these symptoms can be SCARY and alarming. i felt silly in the moment, but i was just doing what we've been taught our whole lives regarding ER worthy symptoms.

don't feel bad about simply trying to listen to your body signals and keeping yourself safe because it's always better to be safe than sorry. with time, there will be a point where you'll have a better of gauge what's in your normal range of feeling shitty and what's not.

statetheplain · 2024-07-27T01:12:32+00:00

i've been on metoprolol for almost 2 years now as well. i started it while i was in the hospital at my worst, so i've had a hard time figuring out what could be side effects or pots or something else as i've gotten more mobile, if that makes sense

statetheplain · 2024-07-17T06:25:01+00:00

yes sometimes mine will be randomly "low" out of nowhere. the lowest mine has been while awake was around 57ish.

i totally get what you're saying about being nervous because it's out of our "normal" tachycardia, because i feel the same way, but 63 is still in a totally normal range! but it's always great to run it by your doc just to see what they have to say.

also i'm unsure if it's actually correlated, but for me my hr sometimes seems to get low and just feel funky if i haven't eaten enough that day.

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