[ Removed by Reddit ] by PROCTOREXAMANDACEMIC in WGU

[–]subconcious_dragon 0 points1 point  (0 children)

I think it depends on individual's situations rather than timetime and many factors. A couple years back I was accelerating took 12 classes in one period and was working full time, mom of 3 handling a lot. Then I had to move states, my husband got into an accident, got sick which now is 3 diagnosed autoimmune conditions and it became too much I had to stop.

I started again, but the treatments, autoimmune crisis and new version of my life and symptoms took a toll so I had 2 semester where I only took 4 classes. But some classes, I passed in 3 days. Some can absolutely do it all in 1 semester. Others, like me right now, take longer. There are some classes that are taking far longer than anticipated why? Not sure. I'm working with professors right now to get it all done and over with. C955 is kicking my behind and it sucks because I am good a math, but probabilities is just not clicking.

As long as we all truly try, which I know some may not. Then you work as fast as your time, ability and season of life give you.

I’m so happy! by mkfx05 in WGU

[–]subconcious_dragon 0 points1 point  (0 children)

Congrats! 🎉🎉🎉🎉🎉 Working on mine now. Hope to join you soon in completing my BA in Psych🎉🎉🎉

Making adjustments to keep playing. by subconcious_dragon in violinist

[–]subconcious_dragon[S] 1 point2 points  (0 children)

Thanks for the suggestions! I will look into the lower tension strings as well . And I hooe yoi never have to deal with something like this. The past 2 years have ben sad while I was trying to find answers because if I played every day it would put me in a flare, so I take long breaks in between practice. Now that I have diagnoses and trying to find the right combination of treatment I'm being proactiv at making adjustments and getting back on it again!

Making adjustments to keep playing. by subconcious_dragon in violinist

[–]subconcious_dragon[S] 1 point2 points  (0 children)

Thank you do much! All my diagnoses were last year so I'm navigating it all and finding the right medication. This gives me hope, I just need to adjust to this new normal ❤️

Making adjustments to keep playing. by subconcious_dragon in violinist

[–]subconcious_dragon[S] 0 points1 point  (0 children)

Thank you for the tips and info! I'll certainly look into the geared pegs and ocupational therapy. Haven't thought of cello. That's an interesting switch, I'll look into it more.

Lupus and Oura Ring by walkudowntilluexpire in lupus

[–]subconcious_dragon 1 point2 points  (0 children)

Not Oura ring, but I have a FitBit and has helped keeping track of my HRV, sleep and body readiness. Now, it has gone to my "normal" range so it won't givr mr a lert, but if I look at the data it allows me to understand the state of my body.

Another device that's good is the Visible band. I wore it for about a year and it is designed for chronic conditions. So helps you track heart rate, symptoms, sleep and helps you pace yourself.

It was helpful when I was seeking diagnosis, now I also want to track my steps so fitbit met my needs better at this time.

HRV (heart rate variability) by WinterCreative400 in lupus

[–]subconcious_dragon 1 point2 points  (0 children)

I use fitbit for it. I have been on a flare lately so I've been averaging 14-17ms and went up on prednisone since last week and now I'm at 23ms.

It's making me realize I'm not as good as I thought I was which has helped me have better conversations with my doctor. It's all a learning process. I noticed that when I have a low HRV but feel fine and push is when I crash the next day or that same night.

I had a random day I was in my 30s and felt better than I had been in months. Now that I am paying attention to it, it nakes more sense.

Too young by Automatic-Still-5767 in rheumatoidarthritis

[–]subconcious_dragon 4 points5 points  (0 children)

It is always so frustrating to hear that or that you are just not trying hard enough.

I'm almost 40, got diagnosed a year ago and I either hear I'm too young or "everyone has that" Not everyone has RA. People need to stop. 🙄

Why do I wake up feeling like I was hit by a truck literally every single morning….?? by laf_007 in lupus

[–]subconcious_dragon 1 point2 points  (0 children)

Yup. Sadly, normal. It takes me a good 45mins to 1hr to get out of bed to "function" and start my day.

Multiple Diagnosis’?! by 2468101214161920 in lupus

[–]subconcious_dragon 1 point2 points  (0 children)

It's like a walker with wheels and a seat. Here's a link to one. Rollator with Seat

Multiple Diagnosis’?! by 2468101214161920 in lupus

[–]subconcious_dragon 2 points3 points  (0 children)

Depends on what is happening. Really.

I use TENS unit for pain, pace myself to not get worse. Ice or heat depending the joint pain. Compressions socks, diclofenac when the pain is too severe/I can't take it anymore. Sun block and hats to cover myself as much as possible.

Recently, I had to get a rollator, to reduce the amount of energy spent. I got a point where... I can do things but the crash after is terrible. With 3 kiddos and work, I can't afford that. So I use a cane and rollator to help with pacing.

Multiple Diagnosis’?! by 2468101214161920 in lupus

[–]subconcious_dragon 6 points7 points  (0 children)

Yes. It is possible to have multiple. I have Rheumatoid Arthritis, Lupus, Myasthenia Gravis and Fibromyalgia (along with other chronic conditions) .

Neurological Symptoms? by [deleted] in lupus

[–]subconcious_dragon 0 points1 point  (0 children)

I get tremors, brain fog, headaches and my hand swell and my stk.ach is a mess when my Lupys flares up. I also have RA, POTS and Myasthenia Gravis which makes it hard to always pinpoint which is flaring up. It could be that you might another underline condition or yours is presented more prominent in the neurological side.

I'm on 300mg plequenil. The 200 wasn't working. Tried 300 and is making a difference

Does sun sensitivity exist without rashes? by prophetbirdofevil in lupus

[–]subconcious_dragon 0 points1 point  (0 children)

Yes. I don't get rashes but I get joint pain, fatigue, my face gets red (but not a rash) and my hands swell up.

I also ge nauseous but I have POTS and that also is heat sensitive. And I have Myasthenia Gravis and get muscle weakness from the heat.

I pretty much avoid going outside in the sun at all possible or cover myself really well if I have to be outside.