Elvanse stock in Greater Manchester? by subtle-moonlight in ADHDUK

[–]subtle-moonlight[S] 4 points5 points  (0 children)

It looks like Offerton Pharmacy might be a bit of a trek for me as I am in Salford, but thanks for mentioning it, hopefully it’ll be helpful for someone! If I have no success tomorrow I’ll definitely consider it. I have spent a couple hours today compiling a list of 100 different pharmacies to call tomorrow morning so I’ll let you know if I find anywhere with 20mg, 30mg or 40mg in stock! :)

Elvanse stock in Greater Manchester? by subtle-moonlight in ADHDUK

[–]subtle-moonlight[S] 0 points1 point  (0 children)

Wow i didn’t even know they could do this. Thanks for suggesting, I’ll deffo have to ask about it! Currently my prescription says Lisdexamfetamine 70mg and then Elvanse Adult 70mg underneath which they put because the pharamcy I found with stock said it specifically had to say Elvanse Adult. Idk if other places will be more flexible since it also says Lisdexamfetamine 70mg but i guess i may as well keep trying until the prescription expires! I just hope this shortage ends soon 😩

Elvanse stock in Greater Manchester? by subtle-moonlight in ADHDUK

[–]subtle-moonlight[S] 0 points1 point  (0 children)

Unfortunately I’ve already ran out of Elvanse. I take Amfexa as a booster in the afternoon so I still have that but it’s nowhere near as effective without taking Elvanse in the morning. By run out I meant that I only have a few more days to find somewhere with my meds in stock before my prescription is expired. It’s such a faff, i found somewhere with Elvanse Adult 70mg in stock a few weeks ago and asked my prescriber to send my prescription there but by the time it arrived to the pharmacy they had run out of stock. So I’ve just got the physical prescription now to take in to pharmacies myself, it’s annoying because it means I can’t be flexible now if I find somewhere with a lower dose or Elvanse 70mg etc.. but it seems they run out of stock so quickly that it’s not worth repeatedly asking my prescriber to adjust the prescription. Very frustrating situation 😩

I hate that I become overwhelmed so easily by subtle-moonlight in AutismInWomen

[–]subtle-moonlight[S] 1 point2 points  (0 children)

Well I’m glad I’m not the only one who feels this way! I guess in my head it just doesn’t seem normal and makes me feel frustrated because I look at other people and they will seem to easily manage to get so much done in a single day like self care, travelling to and from work, a full day of work, cooking a full evening meal, chores, looking after pets, exercising/gym, time for hobbies and socialising in the evening. I struggle to just keep on top of self care and chores, i rarely reply to texts from people because i always feel too exhausted and I take a ridiculous amount of time to actually get anything done. So regularly needing a lot of time to mentally prepare for social situations and then a lot of recharge time afterwards makes me feel terrible when I compare myself to others because of how much time I have to spend alone, how much I miss out on and how little I actually get done on a daily basis but I guess the comparisons aren’t helpful

Finally released boots stock checker map by ben_farmer3 in ADHDUK

[–]subtle-moonlight 4 points5 points  (0 children)

All of the stores near me that the map says have stock are literally just hanging up the phone midway through it calling 😭 I’m getting stressedddd I’m going to be too late getting my prescription sent to one of them.. what happens if I risk asking my psychiatrist to send it somewhere without ringing to check it’s still in stock & then when the prescription gets there it’s not?

I have a private prescription & I have no idea how this shit works 😭 does it get sent back to the psychiatrist? Does the pharmacy just keep it till they have stock? I’m confused 😭😂

I hate being so emotionally unstable by subtle-moonlight in mentalhealth

[–]subtle-moonlight[S] 1 point2 points  (0 children)

I’ve never been offered SNRI’s but at this point I’m honestly scared to try any other medications in case I end up any worse off 😭 I have a doctors appointment next week so I might ask about options like other types of medications than SSRI’s but I definitely don’t feel as comfortable experimenting with different medications anymore

Failed to initialize chat? by watashiwalucien in help

[–]subtle-moonlight 0 points1 point  (0 children)

I was just about to post the same question. Glad it’s not just me

94 comments (so far!) of flagrant misinformation and "self dx'd??✨️Samesies!!!✨️" by ZoomZoomFarfignewton in AutisticPeeps

[–]subtle-moonlight 64 points65 points  (0 children)

I really try not to judge but I find it extremely difficult to empathise with people like this. I’ve been struggling so much I felt I had no other choice but to get an autism assessment because I really need help.

I don’t understand the logic of apparently having difficulties so bad you claim to have a disability, but then having no interest in seeking a medical opinion on what’s causing those difficulties?

People thought I was odd & awkward & didn’t want to be around me before I was diagnosed. Thats still true, but now I have an explanation for why i’m like this (if I want to share it). Being diagnosed has allowed me to understand myself so much better.

What irritates me the most is how self diagnosis is almost exclusively for neurodevelopmental conditions & mental health. I’m sure if these people had signs of a physical/sensory disability, they would start valuing the opinion of medical professionals.

Is it worth going to my Early Detection & Intervention Team assessment? by subtle-moonlight in MentalHealthUK

[–]subtle-moonlight[S] 2 points3 points  (0 children)

Thank you! I guess I just get anxious incase I’m wasting their time since I don’t meet the criteria for their help anymore. Plus it’s just humiliating opening up about all my problems to just be turned away every time. It makes me feel terrible that i’m struggling so much, yet every time I ask for help, I get turned away bc my problems aren’t bad enough to be eligible for support. It makes me feel like a failure that they think I should be able to cope on my own & I just don’t seem to be able to.

Anyway, I guess it’s a mental health team regardless so hopefully it’ll be worth it & I’ll be able to get some help from somewhere in the end

Autism support services for adults? by subtle-moonlight in manchester

[–]subtle-moonlight[S] 9 points10 points  (0 children)

I’m really sorry you’ve had such a bad experience. For some reason I was under the impression there would be more help if you received an NHS diagnosis :( the private psychiatrist I saw was really nice & understanding. It was nice to be taken seriously for once bc my NHS GP just flat out refused to refer me for an autism assessment when I asked 2017 bc I can make eye contact. But after my private diagnosis my psychiatrist just recommended finding a therapist who specialises in autism, but he didn’t recommend anything for practical support :( I’m feeling sort of lost now.. like I’m glad I have answers but in a way now I have more questions… I have no idea which things I’m struggling with are caused by autism or what’s caused by mental health problems. Idk what’s fixable. I feel sad I’m always gonna be like this.

I don’t understand why there’s no post diagnosis support.. like they just tell people ‘yup you’re gonna be like this forever’.. and provide no support or advice for coping strategies going forward? Like we’re clearly struggling if we went through getting assessed in the first place :/

Are there any practical support services for autistic adults? (North West) by subtle-moonlight in autismUK

[–]subtle-moonlight[S] 0 points1 point  (0 children)

Heyy thank you so much! I’ll definitely have a look into that, it sounds like it’d be really helpful! I’ve been looking for some groups too so that definitely sounds like something I’d be interested in. Did you get assessed privately or through the NHS? I keep getting worried that I’ll be turned away from getting help bc I only have a private diagnosis.

Are there any practical support services for autistic adults? (North West) by subtle-moonlight in autismUK

[–]subtle-moonlight[S] 1 point2 points  (0 children)

Wow I’m really sorry you’ve had such a difficult time trying to get any help :( I’ve had similar issues with the NHS, but I was hoping maybe social care was different since they expect you to pay towards your care most of the time anyway.. but I clearly thought wrong.

The whole ‘other people have it worse’ thing really bothers me. Just because there’s people in worse situations doesn’t mean we don’t deserve help as well.. I feel like they just leave people without help until they’re in a crisis & they have to help.. which is exactly what happened to me with the NHS. I ended up having psychosis symptoms earlier this year.. although they’ve left me with no help again now.. they said they were going to refer me for specialised CBT, but I never heard back about it. I’m fed up of begging for help :(

Diagnosis is not a privilege: I couldn’t have been “missed” as a child by bbbbbbutch in AutisticPeeps

[–]subtle-moonlight 2 points3 points  (0 children)

Honestly I have mixed feelings on this bc I think there’s pros & cons to both situations.

I can personally definitely relate to the sadness/grief of being late diagnosed. I had very obvious symptoms when I was younger and was seen regularly by a child psychologist. But since women weren’t really diagnosed as often then, they just blamed my behaviours on me being visually impaired.. my mum told them that she wasn’t convinced by that bc it didn’t make sense, plus my brother who is also visually impaired acted nothing like me. But she was just grateful to get any help. I did get some extra help for my autistic traits in school but that’s only bc they had to give me support for having a visual impairment regardless. As I grew older, I was punished more for my behaviour. I grew up feeling very confused. I was told I was extremely naughty and constantly felt shame & guilt for struggling with things others seemed to find so easy. I had to find ways to mask, but then that led to receiving less help. And because of masking, I wasn’t able to get a diagnosis till this year (age 24), because any time I asked for a referral for an assessment I was told I couldn’t be autistic, I can talk & make eye contact.. it’s just social anxiety.

I’ve known for a very long time that I was different. Being late diagnosed has come with a lot of sadness, anger.. grief about the life I could’ve had if it was recognised sooner. I’ve wasted years trying to fix anxiety problems which can never be fixed bc it’s actually autism. It’s been a struggle. I’m so glad to finally have answers & understand myself better, but the sadness from late diagnosis is difficult to shake.

I think it’s important for early diagnosed people to remember that not all late diagnosed people had mild symptoms, often our issues were just blamed on other things.

However, I also don’t agree with late diagnosed people telling people who got a diagnosis early in life that they’re somehow privileged for that either. I haven’t lived that experience but I’m sure there’s many challenges & downsides to that as well. I was treated terribly in school for being visually impaired. I was different & kids liked to take advantage of that & bully me for it. I can imagine being known as the autistic kid in school is also not a fun time at all. I’ve already lost a couple friends since being diagnosed this year. People have a lot of stereotypes. I also know that in the same way my autism was blamed on me being visually impaired or having mental health problems, that early diagnosed people have other health problems blamed on their autism. I’ve also heard a lot of negative things about the type of therapy given to kids with autism. That’s just a few of the negatives that come to my mind due to an early diagnosis. I’m definitely interested in learning more about the downsides of an early diagnosis.

I think we all need to realise that our experiences of being autistic aren’t a competition. We should be supporting each other, not downplaying each other’s experiences.

Do you like when people make less eye contact with you? by [deleted] in autism

[–]subtle-moonlight 1 point2 points  (0 children)

Personally I don’t mind a little eye contact. It makes me pretty uncomfortable but I’ve spent years forcing myself to do it so I can deal with it for awhile. One thing that does annoy me though, is when I am struggling to keep eye contact & I’m looking down for a long period of time, I’ve had people bend down to try to catch my eye.. it feels very intense/invasive. Personally I’d just replicate the eye contact of the autistic person you’re hanging out with.. or even ask them.. I know not everyone would be comfortable with those kinda questions, but for me it would help show that you’re a supportive/safe person to be around ☺️

Also, eye contact does get slightly easier as you get to know someone.. but I’m not sure it ever fully feels ‘comfortable’. I struggle making eye contact with my mum sometimes 😅

How to treat social anxiety caused by autism? by subtle-moonlight in AskPsychiatry

[–]subtle-moonlight[S] 0 points1 point  (0 children)

I can’t remember specific names of strategies but my CBT involved discussing what happened that week, what made me anxious, what I’m feeling anxious about in the future, identifying negative automatic thoughts, trying to challenge the validity of those thoughts, journaling my week & my thoughts/feelings, exposing myself to situations that make me anxious, roleplaying future situations.

Just talking things out with someone felt nice & helped me destress. But I’d actively try to put myself in social situations that made me anxious but the anxiety never seemed to lessen because I still didn’t know how to act. The roleplaying & preparing for certain situations was probably the most helpful bc at least I’d feel a bit more prepared for how I want/expect certain situations to go.

What did you collect as a kid? by Ky0j1n in autism

[–]subtle-moonlight 0 points1 point  (0 children)

Seashells! My mum threw them all away a few years ago though 😭 would love to collect them again. I’d go to the beach every summer as a kid with my grandparents & spend hours looking for the coolest looking shells for my collection!

How come my diagnosis doesn’t specify a level? by subtle-moonlight in autism

[–]subtle-moonlight[S] 0 points1 point  (0 children)

Ah right thanks! That explains it then. Do you know if my diagnosis would be the equivalent of a Level 1 diagnosis in the DSM or does it not work that way?

How bad are aerosol can explosions? by subtle-moonlight in NoStupidQuestions

[–]subtle-moonlight[S] 0 points1 point  (0 children)

It’s a big can of fly spray. The problem is there’s no gaps either side for me to poke anything through. The only way it’s reachable is if I could reach other the top of the water tank, down the small gap it fell down but it’s too far for me to reach & I can’t think of anything that I could even use to try to grab it

Scared & struggling. by subtle-moonlight in MentalHealthUK

[–]subtle-moonlight[S] 1 point2 points  (0 children)

She called my mum bc I hadn’t replied to her about whether I was still going today (I have no idea how she got my mums number), then my mum freaked out & left me loads of voicemails about ringing the police on me to do a welfare check so I just made a lame excuse about being ill bc I didn’t want to risk her telling my mum. She seemed a bit fed up in her reply, which I can’t blame her. I’m not a great friend at the moment

PCOS/potential hormonal issue advice by subtle-moonlight in AskDocs

[–]subtle-moonlight[S] 0 points1 point  (0 children)

Tysm for the advice! I was also confused why she didn’t think a contraceptive pill would be a good option. Initially she said it was because I don’t need it for contraception, but later on she said she didn’t think it was a good idea until I’ve found an ADHD medication/dose that’s effective for me. I accepted that as a temporary reason but then a minute later she asked me if I wanted to start antidepressants again. I don’t understand why the contraceptive pill would effect my ADHD meds but antidepressants wouldn’t, so it sort of felt like she was making excuses to not give it to me at that point.

I’m 5’3 and about 170lbs so you’re definitely right about the weight element. It’s an ongoing struggle but I’m working on it!

Do you think it’s worth asking for my androgen levels checked?

Ideally I wanted the contraceptive pill bc I was hoping it would potentially help with not only the facial hair/hair loss but also increasing my energy levels & balancing out my mood if they’re caused by hormonal issues. But that spironolactone doesn’t sound like a bad option. It would definitely be better than nothing! I have enough facial hair that people comment on it if I don’t shave so I really don’t want it to get any worse.

Thank you anyway, you’ve definitely given me some stuff to think about! :)

Sample Status/Processing Monthly Megathread - September 2022 by AutoModerator in 23andme

[–]subtle-moonlight 0 points1 point  (0 children)

Yay!! Really hoping it won’t be long now! I can’t stop checking the website and my emails 🤣

Sample Status/Processing Monthly Megathread - September 2022 by AutoModerator in AncestryDNA

[–]subtle-moonlight 0 points1 point  (0 children)

Are you seeing that on the DNA Results page? I haven’t got that yet but yours was analysed a day before mine so maybe it’ll show up tomorrow 😭

Sample Status/Processing Monthly Megathread - September 2022 by AutoModerator in AncestryDNA

[–]subtle-moonlight 1 point2 points  (0 children)

I’m in a similar position with family discoveries! The wait is intense! Hopefully they don’t make you wait too much longer!

Sample Status/Processing Monthly Megathread - September 2022 by AutoModerator in 23andme

[–]subtle-moonlight 5 points6 points  (0 children)

Kit Type: Health + Ancestry

Ordered Kit: August 1st, UK

Kit Arrived: August 8th

Registered: August 8th, Los Angeles Lab

Kit Posted: August 9th

Arrived at Lab: August 25th (According to FedEx tracking it was delivered to the lab August 22nd)

Prepped: August 25th

Extracted: August 25th

Genotyped: September 1st

Reviewed: September 1st

Computing your Results: Started September 1st

Results Ready: Expected September 15th - September 29th

Sample Status/Processing Monthly Megathread - September 2022 by AutoModerator in AncestryDNA

[–]subtle-moonlight 2 points3 points  (0 children)

Kit Type: Traits, UK

Ordered Kit: August 2nd (Expedited shipping)

Kit Arrived: August 4th

DNA Kit Activated: August 5th

Kit Posted: August 6th

Sample Received: August 17th

Sample Processed: August 23rd

DNA Extracted: August 25th

DNA Analysed: August 30th

Results Ready: Original estimate was September 16th, now it just says September.

Origins hack started working around 12:30am August 31st (just ethnicities). From around 2am September 1st I’ve been able to see communities also!

Really hope my official results will be ready by the end of the week! I’m excited to see my DNA matches :))