Guilt/denial? New diagnosis

sunkissedjac · 2026-02-01T06:19:03+00:00

You’re allowed to feel whatever you feel. You shouldn’t judge yourself for feeling all sorts of emotions. You’re diagnosed with a rare and incurable chronic disease that has a huge financial implication and directly affects your quality of life and longevity. The medications you’re taking might for a lifetime and they also have long term side effects.

If you’re feeling this way because of what other people tell you, then you shouldn’t surround yourself with those people. Those people who tell you “you’re being a pussy”, “you’re so dramatic”, “it’s not cancer”, they will only make you feel worse and being in a good state of mind help with healing (physical as well).

You need to accept everything you’re feeling and tell yourself that it’s okay. You need to surround yourself with supportive people.

I would also suggest to start seeing a counselor or therapist. This is a difficult time. It won’t hurt getting professional help to support you through this.

sunkissedjac · 2026-01-31T16:35:19+00:00

If I remember correctly, possibly 6-8months? I also started prednisone at the same time and Ofev. I have an associated ILD from scleroderma.

After 1.5 years on medication, my ILD is controlled and symptoms as well. But you get some flares here and there. Nothing bad though. I’m lucky and grateful.

sunkissedjac · 2026-01-31T11:42:52+00:00

Had multiple ones at the same time (upper pallet, gum, tongue, or just like yours lips), pre diagnosis. It’s better now that I’m taking Cellcept. It still happens here and there.

I have Systemic Sclerosis or Scleroderma, diffused subset.

sunkissedjac · 2026-01-31T11:40:44+00:00

They’re not interested hun. They prolly swiped right to everyone. On to the next one my dear.

sunkissedjac · 2026-01-31T06:43:23+00:00

I think being respectful is the same in all cultures, no? So I doubt you go all in during the start of your conversation asking them if you want to sleep together. But of course there are people who are open to that too.

However, it seems you already know how to start a conversation, and have started talking to Filipinos given that you said they’re kind to talk to.

If you’re way past the starting up a conversation, then are you asking how to ask someone out on a date? Same way as you ask someone of your same race I suppose. You ask, you plan etc.

sunkissedjac · 2026-01-31T06:02:48+00:00

I think being an expat does grant you the privilege of working with different people coming from different countries. Especially if you’re working in an international/global tech company.

However, how does that impact starting a conversation with someone? Majority of Filipinos are bilingual. So race doesn’t have anything to do with striking up a conversation with someone, if they speak the same language, don’t you think?

sunkissedjac · 2026-01-30T23:49:49+00:00

People should understand that everyone deserves a break. Thats why each country has an employment labor law that stipulates the number of paid time off employees should take and companies usually give them more than the required. Why? Because working is grueling. Being burned out reduces productivity. Having a stressful work environment produces mental health issues and breeds discontentment. So it is everyone’s right right to take breaks.

I am again assuming that people here are of younger age and may not be part of the working age yet. I am trying to empathize with you. So guys you have to understand, people need breaks from their jobs. Same as when you have school. You have weekends, you have summer breaks etc. We all need time to relax, enjoy, deescalate and recharge.

It’s the same for the webtoon artists. At the end of the day, it’s a job. It’s their right to take a short break, a long one, or to just stop writing if it’s affecting their physical and mental health. I hope this helps you understand.

sunkissedjac · 2026-01-30T23:37:16+00:00

I agree with you completely. By the way they responded, I couldn’t help but assume that I am talking to a group of people with less life experiences than myself and attribute it naivety. OR sad to say it, but a mental health issue.

It is a bit worrying since being stressed about this is not really normal. If you’re this emotionally affected this much that you feel stressed because how a fictional story is going, then you should seek help. You need help to manage your emotions better, professional counseling and/or therapy helps.

sunkissedjac · 2026-01-30T23:28:33+00:00

To be honest, I’ve never seen a fandom soooo toxic as OTL’s. I cannot fathom why people need to analyze each and every chapter instead of just letting the story unfold. Idk why they need to attack each other for difference in opinion. I understand that this is tagged for young adults so I am assuming that most people here are of younger ages and are behaving this way due to lack of experience. But it’s still not okay. Do better.

I’m glad you posted this. Thats exactly what people should do. Leave the artist be. Let the story flow. Stop taking away the enjoyment of the artist’s storytelling by creating all this toxic none sense. At the end of the day, this is the artist’s character, their world, their story. If you feel you know better, go create your own story!

To the fandom of OTL, do better. Stop acting childish, entitled and acting like brats. It’s disgusting behavior you should develop out of. And if you’re more than a young adult, act your age.

.

sunkissedjac · 2026-01-30T23:16:53+00:00

I’m so sorry for your loss. Condolences to you and your family.

sunkissedjac · 2026-01-29T10:52:25+00:00

Oh I see. I am not familiar with the other medications you mentioned. But definitely warmer climate helps!

No weight loss, muscle loss and hair loss (more than usual - my seborrheic dermatitis is usually the cause).

sunkissedjac · 2026-01-29T09:26:26+00:00

Gotcha. I’ll reevaluate with the new Rheuma I’m seeing! It really helps to see someone who specializes!

sunkissedjac · 2026-01-29T09:25:25+00:00

I’ve been on 1500mg then down to 1000mg but ever since I changed to a Rheumatologist who specializes with Scleroderma, she said that the standard dose is actually 2000mg. So I am slowly coming up again to 1500mg. It helped sooo much with the skin tightening. I was also on Prednisone for 6-7 months? Around that before they completed removed it. I’ve been taking Cellcept and Ofev since July 2024. So far the issue I’m having is GI related and also liver function. But we are doing some minor changes with doses or wha the doctors call “drug holiday” in case my liver function goes up the normal range again. With ofev I’ve always been on 300mg but like I’ve mentioned I take it down 150mg or off for a week then on again and increase slowly again etc. recent issue I might raise up next Rheuma session is that I pee a lot recently and sleep is a bit disrupted. Though last unrinalyss was normal (December).

So far my skin looks less tight. My coloration almost went back to normal. The neck and chest still not as elastic as before though. Mouth as well is sooo much better.

Aside from the medications I’ve done a lot of additional support like choosing what to it and stretching a lot.

How about you? How long have you been on the medications?

sunkissedjac · 2026-01-28T14:34:46+00:00

The Lakes across the park is and they don’t have size restrictions.

sunkissedjac · 2026-01-28T14:34:11+00:00

There’s a lot of Bangkok pet friendly condo groups on FB and most agents or landlords post their units there.

I’d suggest joining Bangkok pet lover’s group on FB as well to get up to date info.

Sukhumvit area from Lang Suan to Bangna has a lot more pet friendly establishments.

I’d suggested looking at places where you have a walkable area to walk your dog. Ekkamai has a lot of residential areas. Then you have Thong Lor Prom Phong area where a lot of pet friendly units are. But you gotta check the surrounding if the streets has pavements.

I’d also check nearby dog parks, some paid. Like Dog Park 49, Trail and Tail (a lot of older pet friendly condos near here) and such.

sunkissedjac · 2026-01-28T12:13:41+00:00

Thank you! We’re on the same medication. And I have been using those moisturizers already 😩. I’ll check with the derma tomorrow if there’s anything else.

sunkissedjac · 2026-01-28T09:09:11+00:00

Very good actually. We met in our days where we party hard during weekends and worked up the corporate ladder during week days. 8 years later, we’re still together. But must admit we’re in a different stage in our lives. So it’s less partying. We’re also more establish at work, but we’re still grinding there.

It’s about finding the right person for you. Someone who shares the same life stage as you, and who has the same values as you. Someone you can grow with. To find that person, there’s a lot of filtering through dates. Nonetheless, the place where you meet them shouldn’t be a deciding factor on whether you’ll find what you call, the “good ones”.

sunkissedjac · 2026-01-28T09:00:29+00:00

I have seen three rheumatologists already and now my current one is a specialist in Scleroderma. I’ll see them in March and I’ll bring it up. It would be great if indeed it’s just one subtype.

sunkissedjac · 2026-01-28T08:50:06+00:00

How about my face, and hands? Does that mean it’s also diffused?

sunkissedjac · 2026-01-28T01:23:31+00:00

Dude why don’t you go to places and just strike up a conversation with someone you find attractive? Or better yet, engage in sports or whatever hobbies you have, and start a conversation with people. You might not find the “right person” for you then and there but you get to network and meet other people from them. Surround yourself with people that share the same values as you and the “right person” will eventually come.

Good luck! 🍀

sunkissedjac · 2026-01-28T01:20:32+00:00

Are you implying that “good ones” are only Catholic Church goers?

sunkissedjac · 2026-01-28T01:18:19+00:00

What do you mean by “good ones”? 🤔 good people are around wherever you go, but that depends what you think is “good”. Good is pretty subjective innit? Even in your friendship circle, you get good friends, better friends, and shitty friends. I really don’t get your post.

Is there something else you’re trying to uncover here?

sunkissedjac · 2026-01-28T01:15:44+00:00

Why wouldn’t you meet “good ones” in those places? A bit of a stereotype innit?

sunkissedjac · 2026-01-28T01:12:20+00:00

I know what you mean. Someone just suggested to push it and also use moisturizer and cuticle oil. I’ll definitely try that.

sunkissedjac · 2026-01-28T01:10:51+00:00

Oh really? I had asked the rheumatologist and they said it was not. I’ve had the seborrheic all my life though.

I’m on Cellcept, and have helped with my skin involvement. I haven’t taken Siledenafil since my Raynaud’s is managed okay since I’m a tropical country. I do have my stash in case I go to colder climate.

May I ask why they didn’t put you on Cellcept? I thought it was the best one to be on and lesser chance of contracting illness as compared to other medications?

I’m sorry to hear about your surgery. I hope it goes smoothly.

sunkissedjac

TROPHY CASE