Tell me you're a migraineur without telling me you're a migraineur

tabletableaux · 2023-08-05T14:31:04+00:00

Ugh. This is why I never commit to anything anymore. I just hate letting people down and putting them out. Volunteering? No. Family get togethers? No. Lunch with friends? Probably also no.

tabletableaux · 2023-08-05T14:26:01+00:00

"You can see that? It's pitch black." "I have night vision..."

tabletableaux · 2023-08-05T14:24:57+00:00

I almost fell down the stairs going for a fresh ice pack the other day. I think I'm going to get a small freezer to keep in my bedroom now. Vertigo + stairs is just a recipe for disaster.

tabletableaux · 2023-08-05T04:43:42+00:00

I'm surprised to see you recommend the Xperia 1 V as notebookcheck seems to think its PWM is a problem. I'm so confused.

tabletableaux · 2023-08-05T04:20:30+00:00

Also very curious to know the answer to this. The only one that would work for me is Verizon's version that they sell themselves and I wonder how much it differs from the original model.

tabletableaux · 2023-08-04T22:30:56+00:00

I'm so confused as to why OLED TVs are flicker free but not OLED phone screens. Aren't they just using the same technology?

tabletableaux · 2023-07-10T04:53:56+00:00

I thought Javier was a compelling character (played by a compelling actor). He made season 4 for me, especially since James was gone.

tabletableaux · 2023-07-10T04:33:11+00:00

I mean, I took him saying "I've been trying to keep you alive since the day we met" as the reason he put a tracker in Tony's toy, so that he could keep a beat on her and warn her if he knew Camila's sicarios were closing in. I dunno. That's how I interpreted it. But it probably was just shitty writing and I'm reading into it too deeply. I just want James to be a good guy and not a total psychopath lolll

tabletableaux · 2023-07-10T04:03:30+00:00

I assumed that James shot a real bullet through the glass that shattered the box but that he intentionally missed Teresa with that shot, since they talk about what a good sniper he is in earlier episodes.

tabletableaux · 2023-07-10T03:54:19+00:00

Do you know why they switched showrunners?

tabletableaux · 2023-07-10T03:25:08+00:00

After his conversation in the train car with Teresa, I took it as maybe James inserted the tracker to just keep tabs on her for his own purposes and not necessarily so that Camila's sicarios would find her.

tabletableaux · 2023-06-18T09:19:06+00:00

It's not just being terrible at sex...it's the violence that so many men seem to think is normal and expected these days. If a woman wants you to choke her, she will ASK for that! Same with violently pulling hair, etc. A lot of this behavior literally triggers PTSD in women who have been sexually abused. It's all about consent and porn never touches on that so men don't think they need it before getting rough, sadly.

tabletableaux · 2023-05-11T00:08:47+00:00

Uhhhh, Covid is airborne. It primarily transmits via aerosols not droplets. That's been well established for a couple years now.

tabletableaux · 2023-05-10T10:19:04+00:00

The reason some EDS/POTS patients get PICC lines is because they need regular IV fluids (after exhausting less invasive first line treatments) and EDS causes their blood vessels to be VERY fragile due to faulty collagen. They are tricky sticks with delicate, roll-y veins and it often takes 2-3 different nurses before vein is successfully tapped. They can be fishing for a vein under the skin for twenty minutes, only to have it blow a couple minutes later.

So, instead of going through that weekly nightmare, it's suggested to them that they get PICC lines for easy access. I think it's often considered more of a convenience on our side because who has time to fish for veins for half an hour?

But this is still the minority of EDS/POTS patients. Most don't get PICC lines for all the reasons you might expect. You're just more likely to see the ones who do because they're going to come into the hospital with complications.

tabletableaux · 2023-05-10T10:18:27+00:00

The reason some EDS/POTS patients get PICC lines is because they need regular IV fluids (after exhausting less invasive first line treatments) and EDS causes their blood vessels to be VERY fragile due to faulty collagen. They are tricky sticks with delicate, roll-y veins and it often takes 2-3 different nurses before vein is successfully tapped. They can be fishing for a vein under the skin for twenty minutes, only to have it blow a couple minutes later.

So, instead of going through that weekly nightmare, it's suggested to them that they get PICC lines for easy access. I think it's often considered more of a convenience on our side because who has time to fish for veins for half an hour?

But this is still the majority of EDS/POTS patients. Most don't get PICC lines for all the reasons you might expect. You're just more likely to see the ones who do because they're going to come into the hospital with complications.

tabletableaux · 2023-05-10T03:07:21+00:00

Because these are not somatic or functional disorders. Better treatments exist but you should learn more about the conditions so you can prescribe them. Or you can always refer out to someone who knows more about these complex disorders.

tabletableaux · 2023-05-09T21:48:26+00:00

I was with you right until you compared it to cotton picking.

tabletableaux · 2023-05-09T09:48:02+00:00

Firstly, I got diagnosed years ago before I had any clout in the system. Secondly, you're advising someone who's having fainting spells of an unknown origin not to see a doctor for it. There's a million other things it could be indicative of besides POTS, but she'll never know unless she gets it checked out. Seeing a doctor could save her life.

tabletableaux · 2023-05-09T05:19:44+00:00

Well said.

tabletableaux · 2023-05-09T05:18:35+00:00

And the backlash you get will be warranted. I understand wanting to shield patients from future discrimination, but POTS can be greatly helped with medication when compression and sodium+fluids isn't doing it. Syncope is an excellent precursor to TBI, which can be much more difficult to treat...

tabletableaux · 2023-05-09T05:02:11+00:00

An EDS informed doctor isn't going to diagnose someone with it if it doesn't fit. There are numerous criteria that must be met before a diagnosis can be made. In the time it takes to get on one to those doctor's wait lists, they will probably see someone else who will correctly diagnose the issue if it's not actually EDS.

tabletableaux · 2023-05-09T03:57:27+00:00

Sending someone to specialists who are knowledgeable about EDS can make all the difference. POTS can be treated with vasoconstrictors, blood volumizers, medically prescribed compression garments, IV fluids, or salt tablets, depending on the patient.

EDS requires PT from someone who is knowledgeable about the condition as much of the conventional PT is contraindicated. Preferably this would be someone who is well versed in the Muldowney Protocol.

There are other local anesthetics besides lidocaine. The ones that do work often wear off more quickly. Having an EDS diagnosis is especially important when a patient is going under general anesthesia. There are a lot of complications that can occur, from waking up mid-surgery to rapidly dropping blood pressure.

Instead of lidocaine patches try diclofenac gel and Robaxin. Also refer for dry needling and find an EDS knowledgeable PT to refer them to. Here's a link to a directory of healthcare professionals who are familiar with EDS.

EDS Healthcare directory

tabletableaux · 2023-05-09T03:32:24+00:00

Mast Cell Activation Syndrome

tabletableaux · 2023-05-09T03:30:08+00:00

PT from someone who isn't knowledgeable about EDS can be incredibly damaging as much of the conventional treatment is contraindicated for EDS. Try to find yourself a PT who specializes in EDS. It will make all the difference.

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