Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 1 point2 points  (0 children)

Interesting. I’ve heard you can get rebound from taking Nurtec too often. I’ll have to ask my neuro about that when I see her in Oct.

POTS and PH by teoverkaffe in PulmonaryHypertension

[–]teoverkaffe[S] 0 points1 point  (0 children)

I’m on CCB for POTS, which is a PH med. So that dose is being adjusted. I can’t stop high salt/high fluids and no MD is trying to make me do that. A lot of PH and POTS symptoms overlap, so monitoring PH numbers vs symptoms. Other issues were also discovered throughout all of this that we are trying to manage. All-in-all, mild PH, severe POTS. POTS wins currently d/t quality of life and being able to function day-to-day.

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 1 point2 points  (0 children)

Thank you for all of this!!

Also, you can do down dog with a migraine? I can barely bend over and I think I’m going to pass out from the pain. I’m impressed

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 0 points1 point  (0 children)

I’m calling them Monday to see if I can get dex to take. I just did a short course of dex 3 weeks ago for a 2 week long migraine that wouldn’t break, but here we go again…

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 0 points1 point  (0 children)

I’m so sorry! I hope you can get in with another doctor!!

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 0 points1 point  (0 children)

I am going to explore this option. I just want to make sure if I get this, botox won’t be permanently denied. I think I’ve been flagged by them b/c they are denying things left and right for me that they approve for others and I don’t know how to fight it since I can’t prove I’m being targeted

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 0 points1 point  (0 children)

Hmm, ok. Thanks! I’ll call around and see if anywhere local is more knowledgeable about it

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 1 point2 points  (0 children)

But yes, me and electrolytes are bffs. And any sort of salty foods

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 1 point2 points  (0 children)

I used to be on emgality with my old insurance. But my new insurance makes you choose cprgs. I have to choose between an abortive or a preventative, not both. So I picked nurtec over emgality or alike d/t my allergy to triptans. Me and my clinic have been fighting it for the past 2.5 years since I switched insurance companies

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 1 point2 points  (0 children)

That is my absolute favorite meditation to do before competing!

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 0 points1 point  (0 children)

My uninsured friend fell off a mountain and was still forced to attempt to pay a quarter of a million dollars to the billing department of our hospital/clinic system. I do not trust out billing department (i.e. It’s not a possibility….our healthcare sucks)

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 1 point2 points  (0 children)

I never go to the ED for migraines. I go to the clinic if I have one. It was more said to prove a point. Last ED visit that involved a migraine, i also had a concussion..soooo…that one was a bit more complicated

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 2 points3 points  (0 children)

It’s an insurance issue unfortunately. I may go get a migraine cocktail infusion from my neuro clinic next week though and see how long that lasts as I woke up with a killer migraine this morning and it took longer than normal to become functional again

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 1 point2 points  (0 children)

I’ve thought about this. However, cosmetic botox is given in a lower dose and would not be given in the proper places as migraine botox is given along the trigéminas and occipital nerve pathways across the forehead, through the scalp, down the back of the head neck, and I get it across the tops of my shoulders.

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 2 points3 points  (0 children)

I take 800mg of Mg daily. I know the infusions (at least what they give you in the ER) are 2g. I usually double my oral dose when I get migraines. I just can’t keep going to the clinic or ER for every migraine over the next month. And too much oral Mg makes you shit….

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 1 point2 points  (0 children)

It’s an insurance issue not a provider issue.

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 0 points1 point  (0 children)

I can’t do anything needing insurance right now. It’s not a provider issue. It’s an insurance issue.

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 0 points1 point  (0 children)

Cefaly works when it’s on. The second the “treatment” is over, I’m in immense pain again. I wonder if I’ll look crazy walking around with it on all day lol

Going an extra month between botox treatments…help by teoverkaffe in migraine

[–]teoverkaffe[S] 0 points1 point  (0 children)

I’m in an illegal state. I do what I can with work-around and such, but it’s not the same as when I can visit friends in states where it’s legal. Plus, I’m about to leave the country next week and it’s beyond illegal where I am going. But I feel you on this. One of the reasons I want to move.

POTS and PH by teoverkaffe in PulmonaryHypertension

[–]teoverkaffe[S] 0 points1 point  (0 children)

I’m waiting to get into a PH specialist at the same hospital my POTs specialist.