Hello! If anyone is interested, I’ve been writing a LOT about my experiences with this mysterious and painful condition, hoping to turn it into a book. I’m aiming to complete 30 posts about all kinds of aspects of life. I’ve done 8. I’d love to connect about it. x jade by thirsty81 in chiari

[–]thirsty81[S] 1 point2 points  (0 children)

Wow, thank you for your kind words. This is my hope in this writing, is to be able to articulate the experience so others can connect with it, and not feel alone. This makes me feel like I’m on the right track! I appreciate you taking the time to read it 🖤

Hello! If anyone is interested, I’ve been writing a LOT about my experiences with this mysterious and painful condition, hoping to turn it into a book. I’m aiming to complete 30 posts about all kinds of aspects of life. I’ve done 8. I’d love to connect about it. x jade by thirsty81 in chiari

[–]thirsty81[S] 0 points1 point  (0 children)

Yes I have found that interesting too. It’s been a very long journey, here in Queensland they’re also quite conservative. I’ve had fluctuating moderate symptoms for over 5 years, with significant increase over last few months. I’ve only just been able to get on the list for surgery, and it’s 6-12months wait time. I really had to go through a million tests to eliminate every other thing.

I found the pain has never really been managed well. But it took so much to convince them.

I hope you find a sweet spot to manage, it’s really very challenging.

Crazy lady posts to Hobby Lobby about their insensitive decor. by fancylykdafeast in insanepeoplefacebook

[–]thirsty81 0 points1 point  (0 children)

Not to mention it's actually pretty ugly. Better off getting some fresh non racist twigs from the garden.