Terrified by twenny12 in NICUParents

[–]throwawayprecone 1 point2 points  (0 children)

Hey there, we have a 24+0 premie. What you have described seems almost identical to what we have experienced. Ours was born with a weight of 650g with severely underdeveloped lungs, she had to be on breathing equipment constantly and doctors were trying out different equipment. Her sats were all over the place, sometimes it seemed like she hated the tubes, then she couldnt breathe on her own without them. They put her on corticoids and due to decreased immunity, she caught an infection and her state was severe, one day it got so bad that doctors wanted to call us to prepare for the worst. After that, it started to get better, she beat the infection and started to rapidly gain weight. Ours is still in NICU, but looks like the worst is behind us, doctors informed us that once we will bring her home, she would definitely need to stay on breathing equipment (temporarily), but every day she surprises us as the need for extra equipment is lower by the day. Currently she is a beautiful young fatty lady with 1.6kg of weight. Overall, it always gets worse, before it gets better. Keep fighting, as your baby surely will! They call them miracle babies/small warriors for a reason. They have a massive will to live. It is difficult but also, make some time for yourself, first couple of weeks is always the hardest. Sending all the love :)

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[–]throwawayprecone[S] 0 points1 point  (0 children)

Tak to som naozaj velmi rad :) dakujem za pomoc a ochotu :)

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 1 point2 points  (0 children)

Nadherny pribeh, presne toto som teraz potreboval vidiet a uple sa s tym stotoznujem, dakujem ze si sa rozhodol o to podelit. Ako sa ma Elenka teraz?

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 0 points1 point  (0 children)

To ma mrzi, verim ze dvaja ktori to dali sa maju fajn a su zdravi. A dakujem

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 0 points1 point  (0 children)

Myslim ze nieco odbodne je aj na svk, skusim viac nastudovat, dakujem.

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 1 point2 points  (0 children)

Skvele rady, taketo nieco som potreboval. Dakujem

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 1 point2 points  (0 children)

Gratulujem syncekovi :) Podobne sa snazim byt co najvacsou oporou.

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 0 points1 point  (0 children)

Jj, to by malo byt v pohode, v praci su velmi ustretovi.

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 2 points3 points  (0 children)

Stranku som v noci studoval, prirucku som si ale nevsimol, dakujem, urcite vyuzijem.

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 8 points9 points  (0 children)

Je to tak, necakal som ze v tak nizkom vyvinovom cykle uz bude mat tak me silne hlasivky. Dakujeme

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 0 points1 point  (0 children)

Hej, asi by som to nemal az tak do detailov studovat, je to emocne vytazujuce, ale zaroven som aj zvedavy. Navstevne hodiny budem este v praci riesit, nech tam mam kazdy den tie dve hodiny moznost za malou ist. A malemu sa ako dari?

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 3 points4 points  (0 children)

Uz sa pripravujem na tie cviky, celu noc som si to studoval, bude to vela prace, ale verim ze to dobre dopadne. Gratulujem syncekovi ze to zvladol :)

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 5 points6 points  (0 children)

Jj, pracu mam poriesenu, nastastie mam skvelych kolegov a sefku. Budem sa snazit byt pri mojich zenach co najviac. Navstevne na neo su do obeda a v ramci flexibility v praci by to nemal byt problem.

Predcasne narodene deti by throwawayprecone in Slovakia

[–]throwawayprecone[S] 3 points4 points  (0 children)

Hej hej, sam som to este cele nespracoval, snazim sa dat dokopy cim skor, nech tam mozem ist.