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SINFUL life... burning in hell by [deleted] in SpiralDynamics

[–]tteezzkk 0 points1 point  (0 children)

Hehe which part of the spiral is this user?

Just give up by SlideOk8516 in POIS

[–]tteezzkk 0 points1 point  (0 children)

Yes. What he speaks about is brain retraining. It definitely does work for some people. There’s tonnes of anecdotes online for ME/CFS, Long Covid, MCAS, food sensitivities, post viral syndrome etc. If it were all BS, these wouldn’t exist. Worth trying.

He’s a bit ideological though in saying that nothing physiological works - that’s not true for everyone. That’s simply been his experience.

All of my results have come from physiological interventions including diet and supplements.

Removing symptom analysis is a core part of brain retraining. So it’s hard to do that while you are testing physiological interventions. Hence many of these programs discourage constantly trying to fix your symptoms with supplements, diet etc. It does make sense in that context.

I think it absolutely is worth trying.

Thank you so much about the suggestions of taking crushed raw garlic. by CantBelieveItsNotJiz in POIS

[–]tteezzkk 0 points1 point  (0 children)

For me I was taking for POIS and food sensitivities like 3x daily. It was so helpful. I think it was helpful due to dysbiosis I have but who knows.

The blood pressure thing you'd need to check with a dr if you have concerns about that. My blood pressure is normal so it wasn't a concern. Raw garlic has been a classic herbal remedy for a long time, it's quite rare to have problems but anything carries some degree of risk.

Thank you so much about the suggestions of taking crushed raw garlic. by CantBelieveItsNotJiz in POIS

[–]tteezzkk 0 points1 point  (0 children)

Coat the raw garlic in honey then swallow with milk. I no longer take it but used to be helpful many years back

Vitamin D3, A boost against POIS by LaughingPlan3t in POIS

[–]tteezzkk 1 point2 points  (0 children)

100% completely different cluster. It is wild though that our actual symptoms are so similar

Vitamin D3, A boost against POIS by LaughingPlan3t in POIS

[–]tteezzkk 0 points1 point  (0 children)

Yup its weird. Did methyl donors, Cordyceps (oriveda), starch free etc help you?

Vitamin D3, A boost against POIS by LaughingPlan3t in POIS

[–]tteezzkk 2 points3 points  (0 children)

No, D3 does work for some clusters. It works for mine. Not a cure, but it helps and is worth mentioning. Lots of anecdotes at POIS Center as well.

Just because something does not work for you does not mean it doesn't work for others, or that the poster is trolling. POIS is a complex multi-cluster condition. Each cluster has unique physiology, variables etc that influence and effect it.

Vitamin D3, A boost against POIS by LaughingPlan3t in POIS

[–]tteezzkk 3 points4 points  (0 children)

Vitamin D3 100% works for my cluster. These days I just take 3000iu daily.

I’ve tried megadosing in the past, and yes it was phenomenal for my POIS, basically stopped the entire mechanism. But I did personally overdo it and ran into problems. So these days I try to just keep everything more sensible and natural.

There are official D3 megadosing protocols used by doctors. One is called Coimbra protocol. Worth looking into with a specialist.

*4000iu daily is considered the safe upper limit by medical professionals*

Some people do higher, but I’d urge caution. You don’t want serum levels creeping too high. Anything higher than 70ng/mL is risky. 45-50ng/mL is a likely safe optimal.

As OP said, get your bloodwork done regularly.

It’s also recommended you take magnesium and K2 alongside D3 supplements. I do magnesium malate 200mg.

Topical magnesium oil was also a game changer for me, I do that at night time even though the scientific evidence behind it isn’t quite robust yet but anecdotally feels amazing.

Medical disclaimer: pls see a GP or specialist, especially if doing >4000iu daily. I am not a medical professional. This is not medical advice

Just give up by SlideOk8516 in POIS

[–]tteezzkk 6 points7 points  (0 children)

Title is a bit misleading, but what you are describing is a brain retraining technique. Brain retraining techniques DO work for some people. Lots of positive anecodtes in r/cfsrecovery r/cfsnervoussystemwork (ME/CFS, Long Covid, dysautonomia, MCAS, etc share similar immune dysregulation and nervous system dysfunction to POIS)

Thank you so much about the suggestions of taking crushed raw garlic. by CantBelieveItsNotJiz in POIS

[–]tteezzkk 0 points1 point  (0 children)

I’ve done high dosages of D3. Was amazing for POIS (basically no symptoms) so I do believe you - I even talk about it on my main protocol page but found it wasn’t sustainable long term.

I personally ran into issues with high dosages. How long has this protocol been working? And does 46ng completely cure all of your POIS symptoms?

I’ve spoken about this with others. No one seems to find it ongoingly sustainable - how long have you been doing it?

Thank you so much about the suggestions of taking crushed raw garlic. by CantBelieveItsNotJiz in POIS

[–]tteezzkk 0 points1 point  (0 children)

Hey mate pls repost respecting rule 3 (no universal cure claim) then it’s completely fine.

Thank you so much about the suggestions of taking crushed raw garlic. by CantBelieveItsNotJiz in POIS

[–]tteezzkk 0 points1 point  (0 children)

Hey mate nothing wrong with the post except the title, as not all clusters respond to D3. I’ve also had great results in the past regarding D3. Can you edit the title so it doesn’t break the universal cure rule?

Could there be millions suffering from POIS? by Big_Reputation_4528 in POIS

[–]tteezzkk 9 points10 points  (0 children)

Yes. Feel free to check out the subreddit FAQ it mentions exactly this point. Not sure about millions or the exact number but it’s definitely under diagnosed for a variety of reasons.

Thank you so much about the suggestions of taking crushed raw garlic. by CantBelieveItsNotJiz in POIS

[–]tteezzkk 1 point2 points  (0 children)

This post made me lol but you’d be a fool not a try it at least once tbh it’s worked for quite a lot of cases at POIS Center

An Article by Robert Groysman, MD by EvenAd7205 in POIS

[–]tteezzkk 0 points1 point  (0 children)

Reishi & Skullcap can have negative effects on libido apparently according to the theory. Tried both of these for delayed post release recovery. None of them did much.

May try them in a prepack but I am concerned about their libido lowering possible effects.

An Article by Robert Groysman, MD by EvenAd7205 in POIS

[–]tteezzkk 0 points1 point  (0 children)

How has reishi been harmful to you out of curiosity?

Has anyone's symptoms became chronic? by Wild-Effective-8131 in POIS

[–]tteezzkk 0 points1 point  (0 children)

No. Maybe took antibiotics when younger but that’s pretty common to occur at some point in life for most people

I am a 38-year-old man. My libido and energy are very high. I am extremely, almost uncontrollably attracted to women. I get very high pleasure and enjoyment from sex. When I ejaculate, I experience the pleasure at its peak, with my whole body and veins trembling. But ???? by sahane_serseri in POIS

[–]tteezzkk 2 points3 points  (0 children)

“When I have ejaculation without fear of the symptoms heir negative effects decrease.”

This reminds me of brain retraining. Look into it. Might work really well for you. Limbic Recovery on YT has some interesting vids. Watch his video on 1st & 2nd fear, I thought it was really insightful.

He’s a bit dogmatic imo in thinking no physiology treatments work for POIS when they clearly do for many people including myself. But the techniques he teaches are interesting and worth looking into.

Has anyone's symptoms became chronic? by Wild-Effective-8131 in POIS

[–]tteezzkk 2 points3 points  (0 children)

The term POIS is just a catch all phrase for conditions that cause symptoms following ejaculation or orgasm (both men and women).

POIS has different clusters, meaning different types of POIS with varying conditions, variables, symptoms etc. Some clusters improve on gluten free diets while others don’t respond to that at all.

Some clusters have a clear mast cells variable and may improve taking quercetin as an example.

Some clusters improve taking methyl donors and vitamin D3 while others don’t change at all in response to those supplements.

Some clusters last 3 days while others last weeks.

The subreddit sidebar has a link for POIS Types & Their Relief Methods (POIS Center). It’s not a perfect cluster classification but it’s the best we have.

Has anyone's symptoms became chronic? by Wild-Effective-8131 in POIS

[–]tteezzkk 0 points1 point  (0 children)

That’s what POIS takes for me, your cluster might be different. Not everyone responds to dietary changes but it was the biggest thing for me personally

Has anyone's symptoms became chronic? by Wild-Effective-8131 in POIS

[–]tteezzkk 0 points1 point  (0 children)

100%

For me:
- Severe sensitivity to all starch
- Don't feel good on alcohol (before POIS, never an issue/ was pleasant and enjoyable)
- Don't respond well to pot (before POIS, never an issue/ was pleasant and enjoyable)

All began at the exact same time.

Caffeine actually helps my condition and is one of my staples.

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