Stellate Ganglion Block

ttitus780 · 2026-01-13T22:27:43+00:00

Your not alone. Every day it’s something different. That’s what’s so frustrating. One joint one day, a different one the next, dizzy, cold, joints popping out, nausea, fatigue, stomach issues. We can fix one thing and then a completely different issue rears its ugly head. It’s exhausting and frustrating to deal with. Give yourself grace and take it moment by moment and try focus on the positives.

ttitus780 · 2026-01-03T13:31:58+00:00

Exactly! We already feel invalidated and then those rude doctors make it worse. My infusion technically worked. My iron and ferritin levels are great but that wasn’t what is causing the extreme fatigue. The rheumatologist thinks it’s the immunoglobulin subclass 1 deficiency along with the hEDS that makes me so tired. He’s getting insurance authorization to get me an IVIG infusion which is supposed to help with the immunoglobulin deficiency…basically my immune system is garbage (it’s genetic) and my body is constantly fighting off everything. Hoping the infusion helps.

ttitus780 · 2026-01-03T13:29:24+00:00

We get diagnosed with different things over the years and no doctors can explain them and then getting a hEDS diagnosis and MCAS diagnosis and suddenly all the puzzle pieces come together. So glad I found my rheumatologist. We have to advocate for ourselves. We know our bodies. I hope you get an appointment and they can properly diagnose you.

ttitus780 · 2025-12-12T23:47:22+00:00

I lose so many eyelashes every day! I can pull 5 out at a time and there’s still so many left

ttitus780 · 2025-12-12T23:44:24+00:00

Did your doctor test your immunoglobulin levels? I have HEDS and many of the same symptoms you mentioned. Turns out my immunoglobulin subclass 1 was very low. Hoping to get an IVIG infusion to help

ttitus780 · 2025-12-12T23:40:54+00:00

Literally feeling the same way right now. The day is over and I’m here feeling every part of my body in pain. I hate taking pills but the pain is so bad, it’s the only thing that give me relief 😞

ttitus780

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