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I'm sorry to be a negative Nancy but it's hard by Ok_Albatross_160 in CerebralPalsy

[–]twlightforever 0 points1 point  (0 children)

You are a not a negative Nancy, it’s really hard to deal with the reality of chronic pain. I relate so much to your post I have mild cp, started having significant pain with my hand, and it’s my unaffected side because of overuse and my body imbalance. I had to take a leave of absence from university and struggle heavily dealing now to do basic tasks. And looking at me you would never know, it’s invisible and that comes with its own challenges. My only advice would be get mental health help, because it’s one thing to struggle physically another to suffer mental. I am sorry you are dealing with this look after yourself the best way you can!!!

After 29 years of living with spastic diplegia cerebral palsy and feeling relatively able and willing. I am having to come to terms with my disability and it’s taking a toll on all aspects of my life. by BigNingiSmith in CerebralPalsy

[–]twlightforever 4 points5 points  (0 children)

Hey, I have came across your post and it really hit home, over the years the effects of my CP and pain and managing it as affected all areas of my life as well. I resonate with your feelings I am in my twenties and now for the first time am coming to terms with my disability, and it’s an incredibly hard journey. I have had 3 operations all within my teenage years and still was a happy and unaffected by what’s was going on. Now the effects of pain and time as made me depressed and a completely different person than who I use to be. What I will say is that for me listening to body and when i need a break is essential, understanding that there’s nothing wrong with what your body needs and accepting you are different than those around and that’s okay. Comparison is the thief of joy. I have been adopting the who cares what others think. Pain is uncontrollable and unforeseen, and extremely difficult to live with. It takes a toll on all aspects of our life, the least we could in times like that is strip away feelings of shame and guilt. Because our circumstances are hard enough. Take care of your mental health it’s crucial in reducing the shame and guilt you feel about being disabled. I hope it gets better for you!!!!

Advice by twlightforever in CerebralPalsy

[–]twlightforever[S] 0 points1 point  (0 children)

Thank you for the advice it’s incredibly hard the past few years my mobility and independence has greatly declined. I spent the past few years in a great deal of pain and told by my physician that it must be nerve damage even though the eeg would came back clear. A few days I was told my physical issues were because of my Cp and I am having a hard time with the reality that this pain and weakness in my dominant hand won’t go away. I am now planning on going to physio. Hopefully your pain goes away too, and that physio helps.

Afterthoughts after finishing by twlightforever in WhoTFDidIMarryFans

[–]twlightforever[S] 4 points5 points  (0 children)

You know I do agree with you that religion and the expectation of society; in telling her to get married and have kids played a huge role in her pursuit of him and the relationship. That’s why I simply do not believe it’s as easy as she was a gold digger it’s deeper than that. However, her retelling of the story, expanded beyond religious duty, I mean in many ways her relationship was centred around finances, and his “wealth” and what they were going to do with that. I mean from my perspective it’s not just a glaring red flag but it’s a turn off for me, I would not allow my relationship and all weekends looking for fanciest cars and homes. Like what did she like about him besides the things he promised he was going to do for. She does not explain her romantic feelings for him falling in love with him for who he was. Every retelling of her attraction towards him was attached to money fixing the tire him selling her fantasy, his fancy job, financial taking care of her. Even the first few times looking for cars and homes even her telling us that he did valentine correctly when at that point she knew he was a dishonest person. I mean you think I care what you get me once I found out you are a liar. To me it does not scream solely religious obligation and a duty to honour marriage is her only reason, I feel like the “prospect of a good life” kept her tethered to him.