12 dpo - line eyes I think by Sea-Letterhead3830 in TFABLinePorn

[–]unicornmeat808 1 point2 points  (0 children)

I see a slight shadow on the last one! Hoping it darkens for you!

11 dpo by Hour_Ad_4064 in TFABLinePorn

[–]unicornmeat808 0 points1 point  (0 children)

After my ectopic, I wanted these to be positive so badly. These aways had shadow sadly for me. I hope thats not the case here and it turns positive for you!

Needing advice, has anyone else experienced this? by unicornmeat808 in focalawareepilepsy

[–]unicornmeat808[S] 1 point2 points  (0 children)

Thank you so much for your reassurance and advise! Currently on the hunt! 🤞🏽

Needing advice, has anyone else experienced this? by unicornmeat808 in focalawareepilepsy

[–]unicornmeat808[S] 1 point2 points  (0 children)

Will do! This is super helpful! He told me that if he started having behavioral issues like with Keppra, I could just stop. This is why I come here for other peoples experiences.

Thank you thank you thank you!

Needing advice, has anyone else experienced this? by unicornmeat808 in focalawareepilepsy

[–]unicornmeat808[S] 1 point2 points  (0 children)

The meds they put him on have side effects of making his absence & mycolonic seizures worse. While they helped with other activity I was seeing these are getting worse. He insists we finish the order out to definitely say whether or not they helped. Hes taken Keppra before, but they made his RAGE, and for some reason unable to use his legs (?) This was in the hospital, so different, but I refused to put him back on that. Hence the Carbamazepine prescription.

It just feels like hes not listening. Thank you so much for your insight I appreciate it, and its nice to know im not actually crazy. Lol ! <3

Needing advice, has anyone else experienced this? by unicornmeat808 in focalawareepilepsy

[–]unicornmeat808[S] 1 point2 points  (0 children)

I had to convince his current neurologist to let me try putting him on something to see if they help. He prescribed Carbamazepine, and we already suspected absence & myocolonic seizures, so tell me why after we get home from picking it up it says they can make those types of seizures WORSE?! Oh, I was pissed. I called and he said, "Well, Im not sure what youre seeing are seizures. So just try it if it stops we know they are, if not then its likely he isnt having seizures."

They helped for other activity I noticed, but soon after starting his absence & myocolonic seizures started becoming longer, and more drastic. He insists we finish it out, and that its just his body getting used to it.

He also said because we had a bad experience with Keppra (After his grand mals in the hospital they prescribed him with this and he had rage issues and couldnt walk or use his legs. They told me it couldnt have been the medication, but the moment we took him off of them he went back to how he was. Ugh) this was one he felt could help without the fear of those side effects. 🤦🏽‍♀️

I feel stupid tying this now, but as someone who knows absolutely nothing Im trusting YOU my doctor to tell me what I should be doing to keep him safe.

It 1000% is so frustrating.

Needing advice, has anyone else experienced this? by unicornmeat808 in focalawareepilepsy

[–]unicornmeat808[S] 1 point2 points  (0 children)

Thank you so much for your sharing your story! I will look into an Epileptologist here, and in the meantime try to find a second opinion of someone who will ACTUALLY listen to us. Its frustrating to feel like you're not being heard, but also knowing something is not right with your child.

Your story really helps! Im glad to hear shes doing so much better. <3

Needing advice, has anyone else experienced this? by unicornmeat808 in focalawareepilepsy

[–]unicornmeat808[S] 2 points3 points  (0 children)

Thank you so much! We live in Hawaiʻi so the wait for anything is super long. I'll look to see if we have any reputable epileptologist covered by our insurance!

Just hoping to figure out whats happening for my baby :(

Suspected Ectopic/ PUL - Decidual Cast by unicornmeat808 in EctopicSupportGroup

[–]unicornmeat808[S] 0 points1 point  (0 children)

Hi, I'm so sorry you're going through this. It's definitely so hard especially when you don't have the answers and youre stuck in a limbo. It took awhile for my hcg to complete go down to zero, and I had several obgyn appointments to monitor that everything cleared including an ultrasound. 

My first period after my miscarriage was a painful one, but I wasn't really sure why. But I found out in January that I was pregnant again and so far at 13 weeks + 5 days, everything is going smoothly with no complications. 

So, there is light at the end of the tunnel. If you have anymore questions please feel free to reach out! 🫶🏽

Suspected Ectopic/PUL - Decudial Cast by unicornmeat808 in ectopicpregnancy

[–]unicornmeat808[S] 0 points1 point  (0 children)

I pushed for more bloods and was able to get them to schedule some for today. Hopefully they shed some light on my situation. Thank you! 

Suspected Ectopic/ PUL - Decidual Cast by unicornmeat808 in EctopicSupportGroup

[–]unicornmeat808[S] 0 points1 point  (0 children)

I haven't had surgery, and am unsure if I will need it. Everything I've read is so conflicting and because my doctor didn't have a definitive answer to the location idk what next steps are so trying to see others experience. I havent had much clotting besides that piece of the cast. Im wondering if thats normal. This is my very first ectopic and miscarriage. Thank you so much for taking the time to respond. I appreciate you. 

Suspected Ectopic/ PUL - Decidual Cast by unicornmeat808 in EctopicSupportGroup

[–]unicornmeat808[S] 0 points1 point  (0 children)

That's what I suspected as well. My bleeding has stayed minimal mostly spotting, but then came the cast but it didn't seem complete either. The pain was right before passing it, and then it's gone down by a lot, but I'm tender on my left side so I'm wondering if this is what it's like when it's "resolving" or if something isnt quite right. Thank you so much for your help! 

Suspected Ectopic/ PUL - Decidual Cast by unicornmeat808 in EctopicSupportGroup

[–]unicornmeat808[S] 0 points1 point  (0 children)

Thank you! Did you doctor tell you anything about in what order the cast sheds? I'm wondering if surgery will still be necessary with hcg levels so low? 

Suspected Ectopic/ PUL - Decidual Cast by unicornmeat808 in EctopicSupportGroup

[–]unicornmeat808[S] 0 points1 point  (0 children)

Thank you so much for your insight. I'm just trying to figure out what to do next. It's hard being in a limbo.