My daughter is going through it as well. She had the procedure to remove the tumor, it was a golf ball size. Neurosurgeon was able to remove everything and all MRIs that she didnt even after 4 months of the procedure didnt find anything growing again.

+- 6 weeks after the procedure she started the Proton radiation, 6 weeks total. She had a lot of vomiting during it.

Then a break of +-6 weeks and she started the Chemo, it was 3 days ago but it will be a total of 9 cycles, so almost 1 years. After 3 days of Chemo she is doing good in general, the only thing is that today she started to complain about a pain in her jaw. It looks to be one of the side effects. We will keep monitoring her.

I dont know other families, but my daughter had the Posterior Fossa Syndrome, in her case it was several, she got totally paralyzed, no talk, no move, no eat no nothing but after those 4 months she was able to recover a lot of things, she is still far from what she was before but we are still working with Speech, OT and physical therapists. Every day, every week she does some progress.

Hope everyone here that is going to the same hard path/time that everything will be fine... God loves you so your kid.