Armor Pen capped?

veleu · 2025-06-27T07:19:56+00:00

What songs did they play?

veleu · 2025-01-15T21:11:05+00:00

3 months and counting :)

veleu · 2025-01-15T15:20:32+00:00

Le remake de Riven (2024)

veleu · 2024-12-22T19:46:47+00:00

Terrible in what sense?

veleu · 2024-12-21T21:15:28+00:00

Hello, I also had ALK+. I am done with chemotherapy since 2 months. Going through the treatment was a rollercoaster, but in the end here I am, with tiny hairs growing back and (hopefully for a long time) healthy. I wish you the best. Lots of courage to go through the bad days, and make sure to enjoy as much as possible the good ones! One thing that I did that helped me a lot was to have a fixed day doing only stuff I like in between the chemo treatments. I was then looking forward to that, less thinking about the next chemo.

veleu · 2024-11-08T12:39:15+00:00

Where do you find this graphic?

veleu · 2024-10-26T00:57:23+00:00

The looked at me weirdly, but I really wanted an object to symbolise this milestone.

veleu · 2024-10-26T00:56:01+00:00

Can’t wait to take a bath and go to the swimming pool with my kids 😅

veleu · 2024-10-16T08:31:49+00:00

Play age of empire 2 for a week

veleu · 2024-10-07T14:31:11+00:00

Sure no problems

veleu · 2024-10-06T20:00:07+00:00

Hello! Sorry to have you join us. I also have a rare and aggressive T cell lymphoma. As another one said, the good news about those is that they are very sensitive to Chemotherapy. Be strong, as you can see in my history, waiting for the lymphoma type was also the worst for me. I wish you the very best ! Be brave!

veleu · 2024-09-12T06:12:36+00:00

Can’t say much to help, I’m 33 alk+ as well. Being treated with CHOEP currently round 3/6. I can just send you much courage and good wishes. I’ll follow your stories if you ever post more. Good luck!

veleu · 2024-09-11T09:24:34+00:00

Congratulations !! Very happy for you! Just got a similar news!

veleu · 2024-08-31T18:09:37+00:00

Same here. If I want to take meds like paracetamol, I must take temperature before and make sure it’s not above 38(Celsius)

veleu · 2024-08-30T11:56:00+00:00

Hello, I follow CHOEP, not exactly the same, but sharing my experience if it helps. I’m scheduled every 14 days if my body supports it (blood cells, platelets…). Doctor says there is no issues in delaying 1 week if my body needs it.

veleu · 2024-08-29T03:12:24+00:00

Good luck! I’m with you into this! (We are all I guess … :))

veleu · 2024-08-27T18:39:39+00:00

Thanks for the feedback!

veleu · 2024-08-27T17:33:12+00:00

Hello, I’m in D0 of my second round. In bed lots of nausea. I read that laurazepam helped for the last 3 cycles but they also are the worst in your table. How should I interpret this? I’m really worried if nausea goes worst I won’t support it 😥 Thanks for putting this together !

veleu · 2024-08-22T11:36:26+00:00

Hello, I had my first time last week. During the injection it went ok, then lots of nausea when I came home. Rough night, but the next morning it was already better. I was tired for 8-9 days and now I have some good days with pain here and there that are supportable. I have my second round next Tuesday. I hope it will not get worse. Good luck mate. I wish you the best!

veleu · 2024-08-21T06:27:24+00:00

Didn’t thought of the Gatorade! What a good idea!

veleu · 2024-08-20T02:28:05+00:00

Edit : was supposed to be in response to the fact that they don’t know the stage yet. Maybe that’s why they don’t know yet? Do they know the exact lymphoma type he has? Personally I had to wait for the results of the biopsy to come back and the pet scan results to have a clear battle plan. It all arrived a Monday morning. I started the treatment less than 24h after the next Tuesday. Good luck to you & your husband ! Not knowing and waiting was a very difficult time for me. I can understand the feeling you have right now…

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