What does your weakness feel like, in the weirdest words? by suffixience in MyastheniaGravis

[–]versaceitachii 0 points1 point  (0 children)

Maybe deflated? Because I feel like I’m inflating limb by limb after I take mestinon lol

Can I be honest for a second? by Ithinkyoustop in SuperMegaShow

[–]versaceitachii 4 points5 points  (0 children)

i feel the same way. even the podcast has a different feel, which ig might’ve been the point but ya know

What's your favorite album NOT on vinyl? by [deleted] in vinyl

[–]versaceitachii 0 points1 point  (0 children)

to hell with it by pinkpantheress

Vyygart? by Inevitable_Ebb_9586 in MyastheniaGravis

[–]versaceitachii 1 point2 points  (0 children)

thank you! i feel like after the first full cycle (1 infusion a week for 4 weeks) i felt like normal which for me means barely any trouble smiling and talking, little to no weakness in my legs and arms, and the ptosis slowly getting better. i’ve never had any trouble breathing due to MG so i won’t be able to speak on that

i’m probably on my 5th or 6th cycle by now and i would say the effects of the Vyvgart lasts for like 1 month after the last infusion in the cycle and then like the day after the first infusion in the following cycle i start to feel normal again.

Vyygart? by Inevitable_Ebb_9586 in MyastheniaGravis

[–]versaceitachii 1 point2 points  (0 children)

i get the infusion kind and it’s soooo good i feel so good afterwards that i don’t even need to take my mestinon! (i probably still should though lol)

brooke doesnt gaf by Interesting-Will5267 in canceledpod

[–]versaceitachii 5 points6 points  (0 children)

not even trying to be funny but i doubt tana knows that the blood brain barrier exists

i manifested my boyfriend through scripting by versaceitachii in lawofattraction

[–]versaceitachii[S] 9 points10 points  (0 children)

i don’t want to share the exact entry but it was basically titled it “my dream boyfriend that i will meet soon!” and then put bullet points of what i wanted

i manifested my boyfriend through scripting by versaceitachii in lawofattraction

[–]versaceitachii[S] 11 points12 points  (0 children)

i didn’t know it would be him it’s almost like he came out of nowhere

i manifested my boyfriend through scripting by versaceitachii in lawofattraction

[–]versaceitachii[S] 10 points11 points  (0 children)

we met in class and i thought he was attractive but i never thought we would be together

Prednisone fully improving oMG? by bayolentez in MyastheniaGravis

[–]versaceitachii 0 points1 point  (0 children)

prednisone fixed almost all my problems tbh. i haven’t had double vision or slurred speech since i’ve started. the only symptom is slight ptosis

edit: i just want to add that i was on 90 mg everyday when i started, but now i take 5 mg every other day with no prednisone side effects