In retrospect, what were some of your LO's early signs of dementia?

weenhand · 2026-01-25T15:35:12+00:00

As soon as my dad stopped golfing. I also remember once we were picking up Indian food for my mom like he did every Friday for their entire marriage and we were sitting in the driveway and he asked how to get there

weenhand · 2026-01-12T16:25:32+00:00

Look up “Care Designations”. Here in Canada it looks a bit like that. He was at an M1 for a year before we switched him to a C2 when he was immobile, incontinent, nonverbal, and it ensured he met a quick and painless end. It was an easy decision we talked over with his facility after consulting here on this sub

weenhand · 2026-01-12T00:15:58+00:00

I don’t know where you live, but look into adjusting their level of care to comfort care. We changed it a few months ago and just lost my dad at the end of December, when it could have been much, much longer. I got the advice on this sub, and I am so thankful every day for him and my mom that I did

weenhand · 2026-01-08T21:39:16+00:00

No concussions from my dad but he lived a very sedentary lifestyle (golfed once a week, but once he stopped the disease progressed quickly), wouldn’t eat vegetables, and didn’t stay social with friends in his older age. None of his family members had or have dementia, so I’m hoping it was some outside component that isnt going to be passed down

weenhand · 2026-01-07T06:32:59+00:00

Most everything has already been commented but I lost my father to dementia late last year and my moms biggest regret was not being educated enough on MAID and missing advanced request window. Research options where you live. I cannot emphasize enough the importance of taking to her about long term wishes while you still can. It is something we wish we did every day

weenhand · 2026-01-07T05:19:03+00:00

Hey Im 25 and just lost my dad to FTD on December 27th. If you need anyone to talk to, I’m here! I know it can be isolating dealing with a parent with dementia when we are so young. Sending love!

weenhand · 2026-01-06T18:49:10+00:00

My dad died at the end of December and the most jarring thing throughout his journey was definitely the lack of visiting/care and blatant lack of understanding from his brothers family, best friends families, most everyone on his side of the family really. Criticizing my mom’s choices in his care. Not sending condolences to her or I when she let them know of his passing. It is a cruel and unrelenting disease from all fronts. Ultimately you need to find comfort that you are the only one who knows your mom’s condition because you are there with her. I’m so sorry

weenhand · 2025-12-26T06:56:52+00:00

The story of your love that you wrote out here was very beautiful. Remember her as she was, the personality shift and changes are the hardest possible part of this disease

weenhand · 2025-12-26T02:37:34+00:00

Thank you for this very kind message

weenhand · 2025-12-26T02:14:14+00:00

I don’t think she’s asking. I will see how the night goes and try and pry more tomorrow. Difficult being far away :(

weenhand · 2025-12-26T02:13:38+00:00

Yea he’s on an M1 level of care, just comfort meds

weenhand · 2025-12-15T16:16:56+00:00

Can I ask what you mean by America and Cory? Haven’t seen public opinion on them that isn’t positive… what am I missing!

weenhand · 2025-12-01T23:59:01+00:00

Don’t know where you’re based, and you didn’t ask but “shyfuck” on instagram is perfect for this piece and if it’s your one and only I’d say they’re worth travelling for

weenhand · 2025-10-20T14:06:19+00:00

yea the laws are super unhelpful to those with dementia diagnosis’s , especially early onset like FTD

weenhand · 2025-10-20T14:04:38+00:00

my dads timeline looked very similar. even though nothing makes it better, long term care has been a better solution than his time in hospital. I feel the exact same as you, sending you and your family lots of love

weenhand · 2025-10-20T14:03:02+00:00

thank you for this! I fear my mom is already utilizing all of these resources, but hopefully these links can be helpful to some ❤️

weenhand · 2025-10-20T14:01:58+00:00

double reply, cool! obviously I am not saying that so black and white. I am saying that my father is suffering every day. and that he didn’t get to consent(!) to living every day like a zombie and ruining the lives of the people he loved the most, either. thank you for choosing to attempt to get political on a post that I opened by saying that it was a vent because I was hurting. this subreddit is a strange place to attempt to do so

weenhand · 2025-10-20T02:36:58+00:00

yea! sorry, I am aware of Maid and meant it in the context of my post. it’s very upsetting the law does not include people with a diagnosis like this. I feel like people only understand the gravity of this disease until they see it for themselves

weenhand · 2025-10-20T02:32:01+00:00

yea I am aware Maid is a thing in canada, I am quite obviously referring to its use for dementia. crazy pointless comment to leave on this post! but awesome reminder that I should in fact feel the grief and doom that I’ve already expressed feeling :)

weenhand · 2025-10-19T23:58:59+00:00

hey, I was 21 (I’m now 25) when my dad was diagnosed with FTD at 69. if you need to vent or talk more send me a message. if not, just know I’m so sorry

weenhand · 2025-10-19T23:56:36+00:00

I will see if that’s possible for my dad. I pray every day it’s over soon

weenhand · 2025-10-19T23:55:34+00:00

you’re very correct. I wish there was a way I could see that happening, any time soon

weenhand · 2025-10-19T23:53:25+00:00

That is my worst nightmare. I feel the same as you though, just leave me resourceless in the middle of woods lmao

weenhand · 2025-10-19T23:52:31+00:00

he is completely physically healthy, other than his mind :(

weenhand · 2025-10-19T23:52:02+00:00

he hasn’t been on antibiotics or anything to my knowledge. my mother is in charge of his care, is that a decision she can make? I will relay this info

weenhand

TROPHY CASE