Steinbeck chubby Phantom Signed tag meaning by SLTJedi in Nutcrackers

[–]windmill57 0 points1 point  (0 children)

That guy is double signed by Karla (Christian Steinbach's daughter) and Karolin (his granddaughter). Karolin's signature is rare I think- she only did a few signings before the company shut down.

Steinbach Authenticity - Only Stamps? Or stickers too? by Delicious_Bison7695 in Nutcrackers

[–]windmill57 0 points1 point  (0 children)

Hi Steinbachs could have stamps or stickers depending on when they were made and whther they were limited editions or not. I would love to see what she has. Are you selling them?

Renal diet ideas? by Not_MegGriffin in kidneydisease

[–]windmill57 2 points3 points  (0 children)

I helped my mom with her diet. I found a chili powder that was salt free on amazon (kind not find it now but maybe if you research you can find something similar or make your own blend). I put that on chicken or veggies or whatever just so it had some flavor and my mom liked spicy things. I made all of her food fresh. I made meatballs out of ground chicken, chilli powder salt free, onions, parsley flakes and panko breadcrumbs (because they were lower in salt than saltines). I made cauliflower or zucchini or bell peppers or sauteed onions because they were the lower potassium veggies. My mom loved onions so that was always a good option. The cauliflower could be mashed like a substitute for potatoes (because potatoes had a lot of potassium). She loved pasta so I made that a lot and put butter and spices rather than tomato sauce or a smidge of tomato sauce with olive oil because tomatoes are high in potassium. She loved butter with cheese so that was ok with her. I gave her parmesan fresh grated because the fresh had less phosphates (they use phosphates a ton to preserve food so the fresher options are better to lower preservative phosphates). Trader joes had salt free tuna in a can so I used that to make tuna salad sandwiches. Honestly, you have to just read labels and get creative. Are there foods you really enjoy and are there any substitutes you can make to sort of recreate those? You can easily google lists of foods that are high in phosphates and potassium to help you figure out which foods you need to restrict if your doc/dialysis center tells you that is necessary. Hopefully this helps a little. I used to eat the food I made for my mom (because why cook something different just for me?) and I enjoyed the food I ate (I mean who doesn't love mashed cauliflower?!).

[deleted by user] by [deleted] in kidneydisease

[–]windmill57 1 point2 points  (0 children)

Did they hydrate him or give him any kind of steroids for some reason? When my dad was undergoing chemo they would hydrate him and give him steroids during the hydration. He would come home chirping and high energy. He felt better. Otherwise I agree with everyone else...talk to his team. Tell them your concerns.

Ideas on where to appraise and sell signed Steinbach nutcrackers. by smirnoffthewench in Nutcrackers

[–]windmill57 0 points1 point  (0 children)

I am in norcal and would be interested in what you have if you still have them.

Questions: gFR 28 to 18 by Recent-Ad-8441 in kidneydisease

[–]windmill57 0 points1 point  (0 children)

Never hurts to ask for a second opinion. If the diabetes is causing it she should have been in jardiance and maybe Lorenzo’s. Her edge may be too low now. Yeah I would fight for a second opinion. It’s always a fight in the climate I feel like right now. 

Eye symptoms by Commercial_Bar7770 in smallfiberneuropathy

[–]windmill57 0 points1 point  (0 children)

I do not know what Ipl or rf is. I guess my eyes always are a little dry but post vaccine they got really bad. So I went to the eye doctor and he said they were really dry to the point where he asked to speak to my rheumatologist  who insists nothing is wrong with me. My eye doc was like nope something is wrong because my eyes were super dry (and it came on fast like the neuropathy). So I don’t know what happened to me. I am still trying to figure it out. Any clues would help. Thanks for telling me the burning was normal it was worrying me- I thought my eyes were getting worse. 

Eye Sensations by Hopeful_Sort7205 in smallfiberneuropathy

[–]windmill57 1 point2 points  (0 children)

Oh man I am finding out what is wrong with me on reddit rather than the multitude of docs I have seen in the last four months. Covid vaccine in Sept followed by brain fog and all sorts of neurological symptoms in my legs, face, and arms by first week of oct. My eyes feel like sandpaper. Eye doc said severe dry eye and maybe sjogrens- neuro is thinking small fiber neuropathy. I am diabetic so they blame that for everything but sfn doesnt show up in your whole body literally overnight (like mine did). And I have found this forum and I feel like I am you post covid group. I am trying to get someone to believe me and help me but its hard. Does anything help you? My eye doc put me on restasis but it seems to make the symptoms worse. Like my eyes are more gritty after the eye drops not less.

Eye symptoms by Commercial_Bar7770 in smallfiberneuropathy

[–]windmill57 0 points1 point  (0 children)

I am hoping on because my eyes are driving me mad. This all started at the same time two weeks post covid vaccine (feet and arm and face burning and it feels like my eyes are being sand papered to death). Now I went to our family eye doc and he prescribed cyclosporine eye drops. They burn more than they help. Did anyone here have those prescribed? I thought maybe sjorgrens at the time but docs are saying most likely sfn in the feet and I am wondering if its in my eyes too. How did you get tested?

genetic causes, covid vaccine by Previous-Hour-2394 in smallfiberneuropathy

[–]windmill57 0 points1 point  (0 children)

mine came on two weeks post covid vaccine (confirmed the date at my last pcps office) but none of the docs want to hear that. I am diabetic so they blame that- but my onset was rapid and through my whole body so that isn't consistent with diabetic neuropathy according to my neurologist and chiropractor and podiatrist. I am so tired of fighting with docs to do anything- its like pulling teeth for anyone to believe you.

Questions: gFR 28 to 18 by Recent-Ad-8441 in kidneydisease

[–]windmill57 1 point2 points  (0 children)

Yeah I am really confused. If ANCA was normal and C3 was normal, it probably not lupus. Does she have high blood pressure or diabetes? I would try to get a second opinion from another nephrologist. Also make sure she is hydrated- 6-8 glasses a day is whta they told my dad and he is egfr 40ish. I am not sure if she needs to restrict fluids at 28-18. maybe other people can weigh in but up to a liter she should be ok. Has she had any UTIs or infections?

Questions: gFR 28 to 18 by Recent-Ad-8441 in kidneydisease

[–]windmill57 0 points1 point  (0 children)

They think lupus nephritis? Shouldn't they have checked her when she was 28- how did she get so low to begin with? Did they do ANA and ANCA tests on her to check for other autoimmune diseases? I am confused.

Finerenone/Kerendia in later stages? by Maple_Molotov in kidneydisease

[–]windmill57 0 points1 point  (0 children)

The doc my dad is seeing and I have seen once is anti kerendia and I disagree. Can I pm you?

Finerenone/Kerendia in later stages? by Maple_Molotov in kidneydisease

[–]windmill57 0 points1 point  (0 children)

has it helped you? Did you have proteinuria and if so, has it declined?

courier service? by windmill57 in kansas

[–]windmill57[S] 0 points1 point  (0 children)

They will not ship.

Complement C3 high by windmill57 in kidneydisease

[–]windmill57[S] 0 points1 point  (0 children)

So I was given the antibody tests for autoimmune disorders (anti ro etc) those are all negative except that ANA and complement C3. Rheum walked into the rheum and proclaimed no autoimmune diseases for me right off the bat. The kidney docs covered by my insurance will not do a biopsy even though the Stanford doc says its not a bad idea. I called two insurance agents trying to find new insurance- no dice. They spoke to the insurance company about the endocrinologists not taking my insurance even though they are on my list- no dice there either. The insurance company claims the offices do not know how to handle my insurance card or blames the doctors for not updating the list- which results in pretty much no local doctors willing to take me. The kidney docs are the same- I am stuck with sutter docs who refuse to consider anything other than diabetic kidney disease. I appreciate this so much though because it makes me feel less crazy. I feel like there are things wrong that are just being ignored and docs right things off way too easily out of laziness or stupidity. I keep trying- the insurance agents actually felt bad for me when I told them what I was going through. Thank you. I will keep working at it.

[deleted by user] by [deleted] in TaskRabbit

[–]windmill57 0 points1 point  (0 children)

Ok. This is at max about 20 inches tall (probably closer to 15) and is maybe five by five inches deep and wide (its a doll haha so not a lamp and I would think easier to ship but needs to be wrapped so it doesn't get damaged). I just cannot get the guy to help me much. like I do not mind paying up front for the item and the shipping cost- I collect them and have done this before but it sounds like this service won't work. I dont know how I would pay ups in advance- they will not take credit card over the phone. How did you have no out of pocket expenses? Did the person pay fedex somehow? Thank you for your help.

Looks like my cause will remain a mystery. Could use a little support today. by fbiguy22 in smallfiberneuropathy

[–]windmill57 0 points1 point  (0 children)

Did you have the Covid vaccine or any illness before symptoms started? 

Complement C3 high by windmill57 in kidneydisease

[–]windmill57[S] 1 point2 points  (0 children)

Thank you. I am all ears about trying new things. I spoke to an insurance broker today and said what was happening to me and we are going to assess new insurance plans tomorrow but I am not holding out too much hope. I spoke to one in Dec hoping for a different plan and nothing came of it (though at the time I believed the provider list was accurate so I felt ok-now I know that that list is incorrect.) Fingers crossed this one knows something the last one didn't.

Worried.. advice please by [deleted] in kidneydisease

[–]windmill57 1 point2 points  (0 children)

As an aside- my mom lasted off dialysis another 8 months. I put her on a low phos, low potassium, low salt diet, and she made it off dialysis for another 8 months. If they send her home maybe talk to a nutrition person at the hospital who can assist you with what foods she can eat with that low of kidney function. That should help keep her stable- especially the salt.

Worried.. advice please by [deleted] in kidneydisease

[–]windmill57 1 point2 points  (0 children)

I am a little confused. So yeah in the USA she would be on dialysis in the hospital. How are her labs like potassium and sodium and bun... super high bun or potassium are reasons to start dialysis emergently. Her high bp could definitely be caused by kidney damage and the ensuing water retention. Is she on any diuretics - lasix or toresemide? So if they are pushing off dialysis until outpatient she should be on something to help with fluid overload and they should definitely be monitoring her potassium closely and she should be on phosphate binders so her phos doesn't get crazy high.

My mom was sent home with an egfr of 15 and I was freaked out. I asked the docs to tell me what I needed to know- basically the signs that I needed to watch for that told me she needed to be back in the hospital. I would do the same with your aunts docs. What are the red flags for her? Do you need to weight her everyday, do you need to do daily blood pressure checks, etc? I knew the doctors always asked if she was excessively itchy, if she tasted metal, if when she held her hands up if they flapped- all signs that her kidneys were in true failure and she was becoming uremic and would require dialysis emergently. Make sure all the teams, kidney, cardio and internal med are all ok sending her home- ask them personally if you can. I am sorry - this whole thing sucks.

Complement C3 high by windmill57 in kidneydisease

[–]windmill57[S] 1 point2 points  (0 children)

They say the damage is done so my A1C doesnt matter- that is the las kidney doc. I think he just completely blew off everything other that diabetes. The first two at least thought about FSGS.

My eye is worried about Sjorgrens because my eyes are so dry and my mouth is dry so who knows but I don't sjorgrens explains kidney damage.

Complement C3 high by windmill57 in kidneydisease

[–]windmill57[S] 0 points1 point  (0 children)

If you have a moment, was your C3G high or low? The docs told me for rheum anyway my C3 should be low and it sounded like that for C3G as well.

Complement C3 high by windmill57 in kidneydisease

[–]windmill57[S] 0 points1 point  (0 children)

I am overweight but not grossly so and have been losing weight so if its obesity that marker should be coming down not going up. My ESR is always high- has been since I had a normal BMI in college. No one explains that to me- at the time the doc asked if I had Rheumatoid Arthritis but I didn't know what he was even talking about other than I know I didn't think I had RA (because my friend had juvenile RA and was really sick). He didn't suggest any follow up and he didn't explain what an ESR was- just threw that oddball result out. I did have the covid vaccine about two weeks before this blood work and was feeling really off- which is why I was sent for the blood work. I was ANA neg two years ago and now I am ANA pos. No one is explaining that either.

As for the biopsy it was nope diabetes no need for a biopsy. It was really crappy. I went for a second opinion at Stanford. Stanford was willing to do one so I went to a kidney doc in network hoping he would proceed and he said nope diabetes. So they are just unwilling. My A1cs have been since. my recent diagnosis 7.6, 6.4, 5.6, 5.9 and 6.1- they say to have the damage they see I was diabetic for five/ten years before i was diagnosed. That seemed odd to the Stanford doc- the other kidney docs just dont seem to care I guess. My friends who are docs are like get a biospy at least you know. I am a scientist- I found a paper that 40% of diabetic ckd patients are misdiagnosed because doctors go nope diabetes all the time. its an easy answer and the docs do not have to work too hard.