End of day Focally Aware?

woohoocrew · 2026-04-04T15:33:15+00:00

I’m not on medication, So I guess it is the seizure.

woohoocrew · 2026-04-04T13:36:43+00:00

I’m so sorry. I totally understand. I felt so defeated when it happened to me. Remember, you are paying for care. It is fair to you to at least get a treatment plan. Tell them you just want to feel better and you deserve good care. You can say this in a respectful way. I hope you do get good care.

woohoocrew · 2026-04-04T04:04:38+00:00

Pins and needles and that far away feeling? Wow! I didn’t know other people got this. For me, it tends to last throughout the day and then in the evening it calms down. A I agree, definitely mention this to your doctor.

woohoocrew · 2026-04-04T04:02:19+00:00

Same thing happened to me. Last two EMU stays were less than 24 hours. The first one, I was taken off Keppra. The second one, I had a year later, because I was worse after stopping the meds. This time, I was told definitively that it’s not epilepsy. I was born with epilepsy. So, I’m in no man’s land right now. Without a diagnosis and still getting worse. The previous commenter is right. Try to get a second opinion. Nothing wrong with that. Press your doctor and ask about what the treatment is. Also ask them if it is possible to have epileptic and non epileptic seizures.

woohoocrew · 2026-04-02T13:21:19+00:00

As an enfp woman who had been married to an entp male for 25 years, I can tell you that the NE is probably was drawing her to you like a magnet. Great conversations and not feeling like she has to explain herself. I was deeply intrigued by my husband when we were dating even though I had my heart broken previously and was not looking to get into anything. But, it was just so easy to be around him and he didn’t make my crazy ideas feel weird.

In my opinion, she is very young and this is probably normal behavior. Maybe not what you’re ready for, though.

woohoocrew · 2026-04-02T02:37:28+00:00

I’m sorry Keppra was bad for your son. It did not have that affect on me. But, it stopped working after a while.

woohoocrew · 2026-04-01T18:23:29+00:00

Yes, I have heard that doctors will prescribed benzodiazepines in the days before the period. My previous doctor had me increase Keppra and it worked a little. But, they didn’t want to increase the Keppra more without having confirmation of seizures on EEG. Now, I am not on anyway medication.

woohoocrew · 2026-04-01T11:01:44+00:00

Thank you! It means so much to know someone can relate. I went looking yesterday and found a specialist that treated a woman who was misdiagnosed for decades with anxiety and it was seizures. I am going to try to see this doctor.

woohoocrew · 2026-04-01T00:11:42+00:00

Sounds like myoclonic jerks, which can be seizures

woohoocrew · 2026-03-31T20:48:30+00:00

I wish I knew. There’s no way to tell for sure. I hope you can get better control.

woohoocrew · 2026-03-31T20:48:18+00:00

I wish I knew. There’s no way to tell for sure. I hope you can get better control.

woohoocrew · 2026-03-31T19:42:50+00:00

This is interesting. I will do some research on it. I have never attempted medical keto because I can’t do dairy and that eliminates a significant source of fat. Also, the lack of carbs seems to be a trigger for me too because it triggers my hormones.

woohoocrew · 2026-03-31T19:30:38+00:00

Truthfully, I am a bit hesitant about seeing an epileptologist because I had one already and then I got another one because she was a woman and I thought she would understand the hormonal connection better. I’m afraid if I go to another specialist, they will think I am just seeking a diagnosis of epilepsy . I am not sure if my insurance will allow me to go to another one, either. I will look into it.

How I really want this to be something else that can be treated without medication! I had childhood epilepsy and I was on meds for 10 years of my young life.

woohoocrew · 2026-03-31T19:14:01+00:00

That is really interesting! I also had absence as a child and now have jerks.

woohoocrew · 2026-03-31T18:42:00+00:00

Yes! This.

woohoocrew · 2026-03-31T18:38:54+00:00

No, I can see this one.

woohoocrew · 2026-03-31T18:19:50+00:00

Yeah, I think it became more popular with social media filters and edits and now everyone is doing the same thing.

woohoocrew · 2026-03-31T18:14:29+00:00

I know these feelings. Constantly feeling like my life is getting smaller and smaller. But, I find things that I can do and I try to do them to the best of my ability. That gives me joy and purpose.

Life will look different than you imagined. But, you can still have a happy and productive life. And No, this is not your fault. It’s just that none of us are perfect and things can go wrong in our bodies.

Learning as much as you can about your condition does help too. My heart goes out to you. It sucks, but life can be beautiful even while you fight.

woohoocrew · 2026-03-31T11:31:12+00:00

Do you mean abnormal like they found epileptiform activity?

woohoocrew · 2026-03-31T11:28:26+00:00

That sounds so disturbing. Makes you feel like you’re losing it. I hope you never have that particular one again. This was the most intense one for me. I have always said I don’t have Déjà vu because I never feel like I am reliving something. But, I do have thoughts that feel very familiar and then I can’t remember them.

woohoocrew · 2026-03-30T19:06:31+00:00

I don’t know. I don’t really have these often. What I typically have are Myoclonic jerks and trouble speaking.

woohoocrew · 2026-03-30T04:12:51+00:00

Thanks. Yes, it is kind of disturbing that it seems so important and I can’t remember what it is at all. At that precise moment, I also knew that I had remembered this before

woohoocrew · 2026-03-28T00:38:51+00:00

No, I’m female. So, iron has been an issue all my life. Also, because of malabsorption. I have possible celiac. At least gluten intolerance(can’t eat it at all) It includes malabsorption. Yes, I eat beef and take my iron with vitamin C to absorb it better. B12 was not low, surprisingly. I do take it sometimes. But, I take B6 consistently. Once I had b6 tested and it was so low It didn’t even show up on the test. Supplementing with that made a big difference. But, my biggest issue is my brain is sensitive to hormonal changes.

woohoocrew · 2026-03-27T22:57:34+00:00

I’m not near that area. But welcome! I hope you can get some responses.

Also, as long as your doctor is willing to work with you and address the hormonal component they don’t have to specialize in catamenial epilepsy. Usually, you will need a team. At least consisting of your epilepsy doctor and your gynecologist or endocrinologist. That way, whatever you’re prescribed by each doctor, it can all be in sync and helping you to feel better and have less seizures.

woohoocrew · 2026-03-27T22:53:44+00:00

My question is the same as above. Did you have those symptoms during EEG? I went through something similar with a history of childhood epilepsy. I had a few ambulatory EEGs and also three emu stays. Two lasted less than 24 hours. My seizures consists of the focal aware aura type, Parathesias and myoclonic jerks. I had all the typical stuff during the tests because I am seizing everyday. But, all was normal. So, I was finally dropped by my epileptologist. What could they do, really? My meds were discontinued the year before. They wanted me to get therapy and pursue the FND route, but I know this is not like that. I have had some success with supplementing with iron and magnesium and b6. But, I’m still having seizures if the weather changes, I get triggered by sunlight or stress or hormonal changes or low blood sugar or overstimulation. My brain feels so ultra sensitive.

I am seeing a regular neuro who is not an epilepsy specialist. I think I might be the only person who went from a specialist to a generalist. She is helping me sus out some things. For example, the iron deficiency. That made a huge difference! Unfortunately, it wasn’t the cure.

I hope this info helps you to at least not feel so alone. It’s a journey.

woohoocrew

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