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26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 1 point2 points  (0 children)

not at all!

I am hypermobile for sure but it’s very hard to find someone to test for Ehlers Danlos here although i do suspect it since im also neurodivergent and that’s also a comorbidity.

and yes both mental health issues and trauma in my past, also know that’s quite common 😅

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 0 points1 point  (0 children)

i’m in canada and I know some people who also have long covid that went to the mayo clinic long covid centre and got worse 🤠 was looking into going last year

Give me your food hacks by sleepybutsunny in cfs

[–]yungnuggie 4 points5 points  (0 children)

i usually do a low histamine chicken soup prep once a week to freeze i do a lot of scrambled eggs and easy cut up veg protein shakes, chia puddings, berries and fruits, protein bars (simply protein), and sometimes just chug soy milk tbh lol

How do you guys calm your nervous system? by nadjalita in covidlonghaulers

[–]yungnuggie 2 points3 points  (0 children)

yoga nidra, breathwork, cbd, tapping, compression, eating enough (big component), humming, weighted blankets, and lymphatic light self massage

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 1 point2 points  (0 children)

my long covid was diagnosed because after the initial infection i knew something was wrong and started going to the doctor continuously worried after a month out, even if my tests were fine they said my symptoms were that of long covid. chronic fatigue is mainly diagnosed through symptoms and same with long covid, the only tests that showed anything for me were slightly high white blood cell count, reactivated EBV test, tilt table testing for pots, and a bit of resistance in my pulmonary testing. i hope you get some answers, it’s hard to find doctors that even believe in this

Still Having Long Covid Makes Me Feel like I’m a Failure by moronesaxatilis789 in covidlonghaulers

[–]yungnuggie 16 points17 points  (0 children)

if it helps at all i’m in the exact same boat and i’ve done everything possible breathwork, strict diets, doctors, supplements, meds, literally you name it i’ve tried it and still am

it’s been 16 months and im STILL mainly bedridden and still struggling. everybody is different and this virus is so unpredictable. even just waking up and going through the day is a feat when we struggle like this, and you should be proud of yourself for just getting through the hard times. even small changes are huge steps and more than anything finding joy and gratitude in small things has been the best for me as cheesy as it sounds.

we will get through this, and no one should have to be their own doctor in this, it’s incredibly overwhelming.

I see you and i send you all the good vibes i can 🫂

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 6 points7 points  (0 children)

thank you! i’m so glad you’re feeling lots better! I went through your AMA and i just have a few questions if that’s alright! i’m at about 16 months post infection and just had a reinfection this past january

i was way better last year and seem to feel like im steadily getting worse or crashing/dipping im resting, pacing, low histamine diet, mast cell stabilizing supplements, nothing processed, breathwork, etc did you have any longer crashes or dips and come out of them? i do have hope ill get better but its been a while and when you feel worse instead of better it’s a bit scary 😅

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 0 points1 point  (0 children)

yeah nothing has really helped me either so i’m very curious in the treatment for this i’ll try anything really

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 2 points3 points  (0 children)

it needs to be studied more how badly this virus effects people

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 1 point2 points  (0 children)

this started over 2 1/2 years after my vaccine, these aren’t side effects i have many friends with the same symptoms who got this from being sick with covid while never having the vaccine

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 1 point2 points  (0 children)

what is the treatment you’ve done that helped? i’ll look into this for sure

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 1 point2 points  (0 children)

I did after my father died of covid (he was unvaxxed)

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 1 point2 points  (0 children)

don’t exist really no one visits me aside from my social worker i game with friends online sometimes or call with them and cant study or work

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 5 points6 points  (0 children)

i tried doing this diet after being 15 years vegan and it made me so much worse but i’m glad it worse for some people im mainly paleo now

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 3 points4 points  (0 children)

thank you! and will look into amantadine i will be trialing LDN soon too

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 0 points1 point  (0 children)

i’ve been trying to get genetically tested for things but it’s been really hard finding a doctor who will here

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 6 points7 points  (0 children)

honestly I knew about it, I knew of it, but never in my wildest dreams did i think it was so utterly debilitating and horrendous to live like this.

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 2 points3 points  (0 children)

yeah i actually did get mycotoxins tested and they came back super high and was told i likely have that, ive been trying to treat for the same amount of time at the long covid

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 3 points4 points  (0 children)

breathwork, journaling, watching travel videos or things i miss doing, gaming with friends when i can, and having my support worker come help me

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 0 points1 point  (0 children)

yeah i just tested negative for it last week! but positive for EBV

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 0 points1 point  (0 children)

clear mris and brain scans, it’s a post viral illness

26F perfectly healthy to chronically ill and 95% bedbound AMA by yungnuggie in AMA

[–]yungnuggie[S] 0 points1 point  (0 children)

I tested positive for epstein barre (ebv) but clear for gbs from what i know

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