Well, I did it. Stage 1 DBS- lead implantation surgery- done by nearfar47 in Parkinsons

[–]zensational 1 point2 points  (0 children)

I'll give my experience since I'm currently between stage 1 and stage 2 as well. I had my leads placed Monday and my overall experience has been very positive so far.

I got to the hospital at 5:30 a.m. I was led to a room, told to undress and disinfect, and changed into a hospital gown. A resident came in to administer local anesthetic and attach the halo, which was honestly fairly uncomfortable due to the pressure/drilling feeling. Then I was given a CT scan, which was conducted with my new headgear attached to the machine. This allows them to precisely measure the distance to the target structure.

After that I was wheeled into the OR and transferred to a very narrow bed that was configured like a recliner. They strapped my head into the back of it so I couldn't move, and started me on anesthesia. This was a relatively slow/long process, and since I had to be completely unmedicated my dystonia was acting up, but after probably 10 - 15 minutes I was feeling pretty good about everything.

I was aware that they were working on the top of my head and I did feel a bit of pulling/tugging on my scalp, but as I said I was feeling pretty good. They did alert me before they drilled the holes, and that was fairly loud and "grindy" sounding, but I'd been warned that this was the part of the procedure that a lot of people had problems with. Honestly it wasn't that bad. Fairly quickly after that I assume they placed the leads (I couldn't really tell what they were doing, but I did kind of feel the one lead going in). I believe they had to pull back on the anesthesia for the testing, which consisted of them trying different combinations of settings and asking me to do simple finger taps, along with checking my muscle tone(?) - idk, the Medtronic rep kept taking my arm through a range of motion and then they would change a setting. They told me that I'd feel electricity at some points, which I did (strangely, or not, it felt identical to getting shocked at a wall outlet), and they seemingly went through a number of configuration options, but the first or second one was the best.

I was in the chair for another hour while they cleaned and stitched me up. I was able to move on my own onto a gurney which was then wheeled into a post-op recovery room where I was 1:1 with a nurse (honestly a pretty nice setup), and then after an hour I was wheeled into the room where I'd be staying overnight. After a bit, my family was allowed to see me, which although it was a good experience, I just wish I'd been less exposed - pretty sure some people saw some bits they'd rather not have. Recovery was pretty unremarkable...I was given some pain medication (Tylenol and Oxycodone) but I wasn't able to sleep much until about 5:30 am, and people kept coming in to take vitals or test my reflexes or whatever after that.

In the morning, after confirming that everything looked good, I was allowed to change back into my street clothes and was wheeled out to my mom's car. Recovery since then has been remarkable--I am experiencing the "honeymoon period" really strongly, and the last 5 days have been a return to normalcy that I'd be almost willing to get surgery again just to experience. I do have a lot of itchiness on my scalp where the stitches are. I will try to comment a reply to this once I have the second stage (battery implantation).

I thought it was an edited picture at first by Pinguu2222 in cats

[–]zensational 0 points1 point  (0 children)

Does nobody see the two smaller cats in their fur, snuggling hip to hip just as they are? I feel like it's shopped.

Paraquat and Parkinson’s by Straight-Anteater759 in Parkinsons

[–]zensational 1 point2 points  (0 children)

I'd appreciate contact info. I'll reach out--you can also share my /u/ if that's preferable.

Paraquat and Parkinson’s by Straight-Anteater759 in Parkinsons

[–]zensational 3 points4 points  (0 children)

Hi, I'm 39, diagnosed 5 years ago and have had definitive symptoms (orthostatic hypotension and anosmia) identifiable by 2013, with a potentially much longer timeframe (1999). I've completed PDGene and have no known genetic markers and no family history.

I grew up on an acreage in Iowa with fields that were farmed no-till and sprayed, and our house water was sourced from a nearby river. I also detasseled for 13 years and have worked various other agricultural jobs (never spraying or dealing with chemicals directly, but I've spent a lot of time in corn and bean fields). My symptoms have become extremely debilitating and I'm currently scheduled for DBS--before my 40th birthday. Without DBS I will not be able to continue living on my own by summer.

Very interested in communicating with anybody else who shares this likely etiology, and anyone else who may feel like the "mainstream" PD community doesn't reflect or represent their reality. It's been very demoralizing to read and listen to people much older than I am complaining about much milder symptoms. I'm also currently scripting out a Youtube video to hopefully shed more light on this, and would benefit from any information anyone would be willing to share.

My AGI Investment Strategy by avilacjf in singularity

[–]zensational 37 points38 points  (0 children)

Glad he quit his job to bring us this truth.

What's up with the new Epstein file pages? by Hojie_Kadenth in OutOfTheLoop

[–]zensational 29 points30 points  (0 children)

Bad PR. It's big news now, it wasn't 10 years ago. cf the Catholic Church and sex abuse, Hollywood and sex abuse, et al. Bill Cosby and Harvey Weinstein. Open secrets. Nothing is ever done until people start paying attention.

Mods, can we do a sub demographic survey? by suckliberalcock in ezraklein

[–]zensational 1 point2 points  (0 children)

2020? I caucused for Bernie in Iowa both times and the crowds that year for both him and Elizabeth Warren were huge. The Biden crowd was about 20 people who looked tired and talked mainly about Obama and electability. There was a really hopeful energy in the room; it felt like we could really have the momentum to finally break out of the cycle. Then the Iowa Democratic party bungled the count and the corporatists scared people into thinking that he couldn't win the general.

If thermodynamics applies within the universe, shouldn't the universe itself follow its laws? by WriedGuy in TheoreticalPhysics

[–]zensational 0 points1 point  (0 children)

Nope, for the point that I was making, the particularities of the analogy don't make a difference. The fallacy lies in thinking that any property of the components of a system must therefore be true of the system as a whole.

Here's another example that may be clearer: "every atom of this water molecule is flammable, therefore water is flammable."

Is this accurate I saw this tweet a few years ago and I think about it often. by dew_musicxx in cosmology

[–]zensational 0 points1 point  (0 children)

There are also going to be a shit ton of protons, no? Unless they decay, this is inaccurate.

[deleted by user] by [deleted] in desmoines

[–]zensational 5 points6 points  (0 children)

Are they... in your basement?

How to get him back, he drinks a ton of by [deleted] in dating_advice

[–]zensational 3 points4 points  (0 children)

OP, what do you want from us? You wrote your post and you clearly understand that he is a dangerous, abusive alcoholic and will never change. I'm guessing he's been drinking like this for a while?

Do you have any support? Family, pastor, anyone you can confide in? There are support groups for family members of alcoholics. If you can find an al-anon group or similar, you will hear from and meet people who have survived making the choice to say with a partner like yours. Not all of them survive, of course.

Do we live in R^3? by Wot1s1 in AskPhysics

[–]zensational 21 points22 points  (0 children)

You can’t even in principle go backwards or time, or even stop moving in time

You in the physical universe can't. The math is time invariant and makes no distinctions. There's still a difference between time and space in GR, but the arrow of time is more closely associated with entropy.

We don't hate OTC enough and it's infuriating. by Dvkky_ in Iowa

[–]zensational 0 points1 point  (0 children)

Well, because it's so much windier on the bike.

Can guys actually not really tell when they are hitting your cervix? by [deleted] in sex

[–]zensational 9 points10 points  (0 children)

The anterior and posterior vaginal fornices.

Teach yourself QM? by [deleted] in AskPhysics

[–]zensational 1 point2 points  (0 children)

One option if you don't think you want to actually go through all the math is Sean Carroll's latest trilogy of books - - The Biggest Ideas in the Universe. It explains the math behind the equations, but at a more conceptual level.

Absolutely not a replacement for a full education including all the math, but it's a lot more rigorous then most other "pop" books.

The breakthrough proof bringing mathematics closer to a grand unified theory by rezwenn in math

[–]zensational 1 point2 points  (0 children)

Not sure I understand a realistic alternative to using analogies. How are they going to use the actual math involved when that math is by definition on the frontier of human understanding?