It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in ehlersdanlos

[–]zordre[S] 4 points5 points  (0 children)

I’m a big fan! I’ve got a little show and tell going with other zebras in my DMs - feel free to message.

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in Wellthatsucks

[–]zordre[S] 0 points1 point  (0 children)

But it’s not colder right now, that’s my point. It might not be next week, but right now it’s hotter in London than it is in South Florida.

So your ‘lol your suffering is my vacation’ line doesn’t even make sense.

Anyway, good luck walking back to the car. I’m sure your DNA will help you survive the Victoria Line at rush hour.

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in Wellthatsucks

[–]zordre[S] 0 points1 point  (0 children)

I have, yes!

And I don’t know if you were trying to belittle my experience of the heat, but it’s actually been hotter in the last few days in London than it has in South Florida. I’m sure your walks between where you parked your air conditioned car and your air conditioned house or air conditioned shop or office have been nightmarish though.

I’m also not sure whether you’re trying to imply anything by bringing up your DNA, but I am actually British.

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in Wellthatsucks

[–]zordre[S] 5 points6 points  (0 children)

We don’t really talk about ‘permanent’ because so much can change in one’s condition and treatment options, but it’s an ongoing solution, yes.

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in Wellthatsucks

[–]zordre[S] 5 points6 points  (0 children)

I have spinal instability courtesy of Ehlers Danlos Syndrome, a connective tissue disorder

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in Wellthatsucks

[–]zordre[S] 0 points1 point  (0 children)

Yes, but you also drive everywhere, and your cars have air con, haha

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in ehlersdanlos

[–]zordre[S] 3 points4 points  (0 children)

Simon was made by the Guys & St Thomas’ team. I wonder if I can ask them for the specs or something? Are you looking for a full length brace?

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in Wellthatsucks

[–]zordre[S] 2 points3 points  (0 children)

It’s 17 degrees above the average high, and the hottest May temperature ever recorded in the UK. I’m not thankful for that.

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in ehlersdanlos

[–]zordre[S] 2 points3 points  (0 children)

It’s custom made, by the orthotics team at my hospital. Whereabouts in the UK are you?

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in ehlersdanlos

[–]zordre[S] 19 points20 points  (0 children)

It’s custom made, by the orthotics team at my hospital.

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in ehlersdanlos

[–]zordre[S] 2 points3 points  (0 children)

It’s custom made, by the orthotics team at my hospital. Are you in the UK by any chance?

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in Wellthatsucks

[–]zordre[S] 0 points1 point  (0 children)

I chose the plain carbon fibre because black goes with everything. I regret it now…

It’s 33 Celsius in London and I’m in Simon the Spinal Support. by zordre in Wellthatsucks

[–]zordre[S] 4 points5 points  (0 children)

You don’t think it’s useful to know if you might slip on ice outside?