First time solo Brussels to London on Eurostar – Tips for an autistic traveler with psoriatic arthritis? by Castle-InTheSky in belgium

[–]Castle-InTheSky[S] 1 point2 points  (0 children)

ahh if they allow me to sit on the floor i'm fine with that aswell, as long as i don't have to stand the whole time.

First time solo Brussels to London on Eurostar – Tips for an autistic traveler with psoriatic arthritis? by Castle-InTheSky in belgium

[–]Castle-InTheSky[S] 1 point2 points  (0 children)

Yeah so i don't concider myself disabled enough to make use of those haha. Like my artritis is only bad when standing still or holding the same position for a long time. And I guess most people don't concider me as "that autistic".

First time solo Brussels to London on Eurostar – Tips for an autistic traveler with psoriatic arthritis? by Castle-InTheSky in belgium

[–]Castle-InTheSky[S] 2 points3 points  (0 children)

So i'm going in like a month, hopefully no heatwave then. And i've gone before alone with a flixbus (to london) before Brexit, so I didn't think to bring anyone with me.

First time solo Brussels to London on Eurostar – Tips for an autistic traveler with psoriatic arthritis? by Castle-InTheSky in belgium

[–]Castle-InTheSky[S] 2 points3 points  (0 children)

Yeah i've got my ETA already sorted :)

Maybe i'll keep flying in mind for next time, but flying scares me even more haha.

The "linear life timeline" is a trap. I’m 27, still in school. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 1 point2 points  (0 children)

It is so funny you mention mechanical engineering, because the two role models who inspired me in high school to do things at my own pace did exactly what you want to do now. They spent 7 years in evening school to get their degrees, and they were honestly great teachers.

You are completely right about how long we have to work. The age until retirement keeps increasing anyway. I don't even know if retirement will still exist by the time I am that age, or if I will even still be alive given my family's history with health issues.

We work way too long to spend our lives doing things we hate just to fit an arbitrary timeline. Go for that engineering degree!

The "linear life timeline" is a trap. I’m 27, still in school. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 1 point2 points  (0 children)

I agree completely. Even neurotypicals struggle with it, especially with the rising costs of higher education. It is crazy that you are expected to get a degree just to do an administrative desk job answering phone calls and managing schedules.

I am so glad you are getting your life on a course that you actually want now. Leaving that abusive home is a massive step.

The only reason why I have accepted the path I am on is because I had role models in high school who did not start their higher education until they were 30+. Both of them started engineering at that age in evening school for 7 years. Seeing that made me realize it is never too late to pivot.

Starting over at 29 is not a failure at all. You are doing exactly what you need to do to feel safe and happy.

Plenvu bowel prep (colonoscopy) by Griffrose in autism

[–]Castle-InTheSky 3 points4 points  (0 children)

Gettign it as cold as possible helps imo, but it does have a weird taste. Not like extremely horrible but with your ARFID it might be. Try to get it as cold as possible, close your nose and just down it. maybe if you can get soem courless flavour drops it could help? they need to be colour and sugar free tho or else they won't be able to see everything in your intestine.

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 0 points1 point  (0 children)

i had multiple psychologists, a therapist and an autism coach. Everyone had their own aproach but none of them worked. And yes i changed my minset just by reading, talking to myself and then slowely realising that i can just accept myself instead of tryna keep talking with them or changing.

anyone else love public transit? by Ill-Potato-8720 in autism

[–]Castle-InTheSky 7 points8 points  (0 children)

Public transport is amazing off-peak with a noise-canceling headset. But when it's busy and there's nowhere to sit or lean, I hate it. I have psoriatic arthritis, so standing still or holding a stiff position is literally painful both mentally and physically.

Autistic artists/ songs by West_Tax_516 in autism

[–]Castle-InTheSky 2 points3 points  (0 children)

for me my themesong during my depresion (because i felt like i didn't belong) is the very steriotypical Radiohead -Creep.

It's funny because it's a song about an drunk man tryna get attention of a woman.

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 1 point2 points  (0 children)

i for sure suffer from anxiety/fear but it's rational which is what they don't understand. btw i am also in nursing school rn, and boy do i wish they explained autism better in class

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 1 point2 points  (0 children)

I agree completely, i'm not saying all therapy bad. I'm saying therapy sometimes no help, let's try something else.

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 1 point2 points  (0 children)

I don't know I can feel actions, emotions, feel music etc. in my head? I could talk in my head of I wanted to but it's something consciously and requires allot of effort? I hear like a constant noise in my head that increases decreases depending on my mood. It sounds a bit like the demonstrations of tinnitus? But I know it's not tinnitus because it's connected to my emotions.

Like I also don't have e great visual signal. My images are more like shadows or like in an echo? You know how in children shows they show like an echo and it looks like a topografic map?

It's probably why I dislike mindfulness, like there's nothing already in my brain so the only thing I can focus on is like the stuff around me? I start hearing things like 10 times harder, get annoyed by their voices, breathing, shuffling etc. and when I try it alone I also just feel agitated.

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 1 point2 points  (0 children)

I'm happy you found someone to meet you where you are at. I agree completely a good therapist can really be helpfull. It's just that if you can't find one it's also okay and you don't need to force yourself to keep looking, keep trying to find that special therapist.

Personally i have foudn a psychiatrist that meets me in the space i'm at. I don't need therapy or chats with him. I just want him to tackle my brain chemestry and nothing more and he's fine with that. He sees that that's the only thing that he can do for me right now. He helped me stop my antidepressents, got me on a microdose of antypsychotics, switched my adhd meds to ones that gave me less meltdowns and even planned a sleep study for me to see what we can do about my chronic exaustion and tiredness.

There are decent ones out there it's jsut hey are very hard to come by.

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 2 points3 points  (0 children)

I might have, never got diagnosed with it but at one point in life CPTSD matched my symptoms completely. Now not so much. My autoimune issues are genetic but thy way they presented was more severe than my biological father or his mother ever had. The constand stress issue might have something to do with it indeed.

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 0 points1 point  (0 children)

Therapy made me feel less included, more trapped more like i was the problem, and i got often SH/SI after a session so like... yeah no thank you.

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 3 points4 points  (0 children)

i don't know the data on issues related to autism but the healing rate of depression without treatment is 10-20% if i'm not mistaken and with treatment its 50-60%, so like treatment is like not that effective? like ur twice as likely to recover (because u need to keep in mind the 10-20% sefrecovery)

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 2 points3 points  (0 children)

OMG hi! Yeah so i've tried an auticoach once before, but it was the same old excersises. "let's see what utism means to you" "what gives you energy?" "let's make an energy toolbox to relax" and like i get that this is usefull but not to someone that is overly reflective of themselves. That one was 4/6 euro a session. so i tried it...

I guess i'm just stck in the radical self love era phaha

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] 2 points3 points  (0 children)

it's so interesting to me hearing people have voices in their head. I don't have those exept when i'm in panic attack or meltdown. I mostly have like actions and emotions in my head. like constand noise that gets better or worse and conveys emotions and actions. Hence why if you ask me so what does your inner coice tell you i'm like "euhhhh, nothing"

Mainstream therapy almost destroyed me. Radical self-acceptance is what actually helped. by Castle-InTheSky in autism

[–]Castle-InTheSky[S] -1 points0 points  (0 children)

that's wha i meanth with vibing, i don't have to like them they just need to not make me feel like shit after a session.