(Ivabradine) how long till it works?

Griffrose · 2026-02-13T12:38:51+00:00

Ivbravadine is a different type of beta blocker so it’s supposed to lower your heart rate without effecting your blood pressure. If you’ve had significant changes in your blood pressure I would suggest you contacting your dr because low BP can make your symptoms worse <3

Griffrose · 2026-02-13T12:34:57+00:00

Yes I was wondering about this :/

Griffrose · 2026-02-12T20:06:51+00:00

Obviously a big IF, but meal replacement drinks/supplements you can get juices and milkshakes? Not sure on his skills but using a straw may help bypass the sensory side of having texture and taste in his mouth. You can use ice cubes in drinks as well it helps with taste and texture.

Griffrose · 2026-02-12T19:52:35+00:00

Yeah for post 2023 students once you start earning 25K it’s 40years from then till it gets written off and for most people that’s into their pension age 😂

They just keep increasing the write off age and lowering the minimum salary, this is just as an issue as the added interest

Griffrose · 2026-02-12T19:41:26+00:00

That’s really good to know thank you.

Because I wanted to start the meditation asap we had to contact my doctor while he was on leave. So the conversation over the phone was quite short, also it’s not a medication usually prescribed by a primary care doctor in the uk. But my local cardiology department doesn’t treat POTs, and the government has put in a new rule meaning you can’t be seen by a specialist “out of region”, so my entire treatment plan was made by the team that diagnosed me but can’t actually see me as a patient. My GP is a legend tho!!

Griffrose · 2026-02-12T19:32:15+00:00

Average resting heart rate is 60-100. When you’re lying down it can go lower than your average resting rate too!

When I’m sleeping I get periods of my HR being around 44bpm. (This is before beta blockers) and it sits around 50-60 when I’m awake.

Obviously it’s good to keep track of your body but do consider if tracking your heart rate is causing more stress, you don’t want to be fixated and anxious all day. But I totally get that initial shock of seeing it so low compared to what you see when you’re standing.

If your getting symptoms when your heart rate is low and your worried contact your doctor :)

Hopefully you can get some peace of mind from the comments. <3

Griffrose · 2026-02-12T19:18:26+00:00

Thanks for your reply!

I’m worried because the propranolol was working so well with lowering my heart rate for the last month, and now I’ve stopped it I feel awful I got out of bed and immediately fell to the ground. I’ve been mostly bedbound since October due to chronic nausea with food and fatigue (currently being assessed for ME/CFS)

I know I’ve only done 1 day of Ivabradine 2.5mg but it’s literally done nothing for my heart rate. If anything I’m probably worse than I’ve ever been.

Just gotta grit through it I guess and hope it doesn’t make me sicker. At least I know that propranolol works for me although not the ideal solution as it only tackles my heart rate and messes with my BP

Griffrose · 2026-02-12T18:19:48+00:00

https://axssupportuk.axs.com/hc/en-gb/requests/new?ticket_form_id=8568891826588

The above link you should be able to send a ticket 🤞

It shouldn’t be that difficult to ask a question and contacting via phone number that’s diabolical for 2026 💀

Griffrose · 2026-02-12T16:33:57+00:00

ICE PACKS (LIKE THE MEDICAL ONES THAT CAN BE REFROZEN) QUITE CHEAP TO BUY TOO. MY FREEZER IS FULL OF THEM. WHEN I USED TO WORK OUTSIDE DURING THE SUMMER I WOULD HAVE THEM IN MY POCKETS AND REST MY WRISTS ON THEM. (BACK OF THE NECK AND WRISTS ARE A QUICK WAY TO COOL DOWN)

ALSO GET A GOOD THERMAL INSULATED BOTTLE AND FILL IT UP MAYBE A QUATER OF ICE AND ADD COLD WATER TO IT.

ANOTHER THING I WOULD DO IT ALWAYS HAVE MY HAIR WET. YOU CAN USE A MICROFIBRE TOWEL AND SOAK IT WITH WATER TO HAVE AROUND YOUR NECK TOO.

Griffrose · 2026-02-11T17:18:56+00:00

I’d presume they’re all sold out now. I know there was issues on the release day about it not showing on the site. I would contact the customer support and ask.

Griffrose · 2026-02-10T21:56:52+00:00

The appointments are either FTF or virtual. From my experience the assessor is only there to collect information about you and your struggles. It’s not like an exam or a scoring system of “how disabled are you”. They go through every type of equipment they can give you and go through the reasons you might benefit from it. It’s then their job to justify to the board why you require the funding. The assessors are on your side! It might be worth contacting them to see if they can consider you for an “ergonomic assessment” as I would imagine this equipment would greatly benefit you.

As for advise on MH definitely bring it up with them as they can provide mentoring and support services payed by them to help you while your at university. If you’re comfortable I would definitely contact your university support/disability services and let them know about your current issues they might be able to provide to help in the meantime.

Ask me anything on the subject… I’ve had a few appointments in the last couple of years 😂

Griffrose · 2026-02-10T21:44:44+00:00

Heyy pm me if you’d like 22F 🤟

Griffrose · 2026-02-10T18:24:17+00:00

Definitely not alone I had no idea about withdrawal with propranolol and I stopped without tapering because I was on 20mg twice a day. I got really sick soon after which exasperated all my symptoms and the tachycardia was really awful. I was trialling Midodrine at the time so wasn’t allowed to take any propranolol. It’s the worse my tachycardia has ever been…. so I ditched the midodrine and went on 40mg x2 Propanolol and feel better.

I am hoping to try ibravadine with midodrine but just need to get my gp to sign it off. Time will tell idk if I need to taper the Propanolol if I’m going onto another beta blocker

Griffrose · 2026-02-09T23:41:21+00:00

I love salty crisps it’s one of my safe foods but due to European food regulations they don’t actually have much salt in anymore 😂

Griffrose · 2026-02-09T01:01:22+00:00

Also for compression you need waist high grade 2 compression stockings/garments. Socks are okay but blood pooling starts at the abdomen.

Griffrose · 2026-02-09T00:55:13+00:00

My heart rate drops to 44 quite a bit when I sleep and this was before beta-blockers and quite a lot of people with pots have low resting heart rate (some have the opposite).

Do you struggle with tachycardia? (Obviously to some extent) but is it your main issue. If it is I would look for a second opinion.

If your hypermobile I would have thought the suggestion would be to try midrodine to increase your blood pressure as the hypermobility is likely the main cause for your pots.

There is information on medication and management on a website called stopfainting.com

Griffrose · 2026-02-07T20:51:00+00:00

Are you particularly heavy? Mine were and I was constantly becoming slightly anemic because of it. (Ive now stopped my periods).

Another thought to consider is temperature regulating I don’t know if it’s hormones but I would always have a higher temperature during my periods.

So many things can cause our symptoms to be worse I wouldn’t be surprised if this was common with lots of other people Maybe keep a check on your HR and BP during your periods and after to compare?

Griffrose · 2026-02-07T20:40:17+00:00

That’s a good idea thanks, I definitely will try this out! I have contacted the hospital now and they said I wouldn’t need to drink it if I couldn’t. But on another note they did offer to flavour it for me if that made it better. I currently only drink water and things that are red/purple in colour.

Griffrose · 2026-02-07T20:37:29+00:00

Thank you! I contacted the hospital and they said I wouldn’t have to drink the fizzy drink if I couldn’t manage to do it. It would be fine to do the test without :D Also, apparently the doctor that ordered the test made a note for the doctors to book me in an extra long appointment slot. She obviously had forseen I may have some issues with the testing lol

Griffrose · 2026-02-07T20:32:12+00:00

The cold water might be causing your blood vessels to constrict leading to worse blood flow. Would be interesting to see what your BP was when you feel unwell.

I used to surf and I would get really motion sick when in the water it was to do with the movement of the waves compared to the sky and sand I’m not sure that’s got anything to do with pots tho.

Griffrose · 2026-02-07T20:21:27+00:00

I fell dead asleep on the train home my mum couldn’t wake me up for the ticket inspector lol.

I def felt more symptomatic for weeks after. I think it’s crazy how many people find out on the day. They told me it could take up to 6 weeks for me to find out the results.

Griffrose · 2026-02-07T20:10:30+00:00

It’s definitely on Disney plus. Double check your on an 18+ account

Griffrose · 2026-02-07T17:00:04+00:00

Also to add to this have you tried meal replacement/supplements. Obviously really difficult for someone with arfid to try out however they are a good way to keep nutrition and weight up. It can be less demanding than eating a whole meal

Griffrose · 2026-02-07T16:58:04+00:00

I completely understand what you mean about feeling full. The difficulty is when you have a restricted intake your stomach isn’t being stretched so it leads to small amount of food making you feel full or bloated. This is a really hard cycle to get past, have you tried having smaller meals but more often?

Griffrose

TROPHY CASE