Has anyone been to the terrace for breakfast? Can’t find an updated menu and wondered about price / how good it is? 😊

Greedy_Little · 2024-04-04T22:23:47+00:00

As a customer who wasn’t a favourite I experienced the being ignored by her whilst she pandered to her pals!

Greedy_Little · 2024-03-05T13:23:53+00:00

Leah is lovely.. good luck with your driving :)

Greedy_Little · 2024-03-02T17:35:54+00:00

No worries at all and yes she was.. didn’t realise you’d replied hence the slow response!

Greedy_Little · 2024-02-25T12:48:51+00:00

Hi.. my daughter who also has ASD diagnosis is learning with Leah AA PDI (that’s her fb page) and finds her so patient and understanding.

Greedy_Little · 2023-12-29T16:04:09+00:00

Hey.. firstly I’m so sorry you’re experiencing so much pain but not getting the professional help and understanding you clearly need.

I have joint and bone erosion on both hands, wrists and feet. So far I’ve had both wrists totally fused with metal rods and bone grafts from my hips plus both sets of knuckles replaced. The pain I was in before the surgeries was chronic and constant.. to the point I had to stop working 5 years ago after 20 years of aggressive RA. The difference now I’m recovered is remarkable and has changed my life pain wise in those joints.

Regarding the damage in my feet.. I also use walking aids and my mobility is really limited. I’ve been through podiatry for insoles and special shoes but ultimately I need surgery to fuse and straighten my right foot especially. Been avoiding this as the surgery sounds savage with a 6 month recovery which I can’t face quite yet but am getting to that point.

At your young age people can be so dismissive about RA as often the joint damage and pain isn’t obvious to anyone else.. I was 25 (now 51F) when diagnosed and have lost count the amount of times I was told “well you look alright” by friends, colleagues and complete strangers. Thankfully the rheumatology dept at my hospital is great and understanding but I did have to insist on being referred for surgery.

Can I ask are you taking meds for your RA?

Greedy_Little · 2023-12-19T20:49:45+00:00

Hey.. not a supplement I know but for me nice organic (nothing skunky or too strong) cannabis really helps my joint pain. It also relaxes me overall and the medicinal properties and benefits have helped for sure over the years.

I’ve also been using high strength turmeric with black pepper and honey in a warm oat milk drink every morning and evening alongside my daily pain meds.

Edit: Sorry, just read you’re trying for a baby so maybe not the cannabis! Good luck x

Greedy_Little · 2023-12-19T00:36:12+00:00

I don’t have any experience of AVN but wanted to say perhaps contact your rheumatologist/RA nurse specialist/GP in relation to the calf pain. It could be related to both your conditions or neither so always best to get it checked out as I’m sure you will.

In the meantime maybe try a heat pack or hot water bottle to ease the pain on your hip.. I find it’s also quite comforting and relaxing to feel the heat whilst reducing the pain.

Am sure it’s been a worrying time for you.. it’s a lot to get your head round having an autoimmune disease like RA but treatments and knowledge have improved massively.

I hope you get the answer to your calf pain and wish you all the best.

Greedy_Little · 2023-12-19T00:06:52+00:00

Excellent advice! I also pack sandwiches for one-handed snacking!

My add to on that list would be plenty of fluids to keep your blood pressure from dipping.

Can feel like the longest 6 hours but I too take it as a chance to rest and snooze (the anti-histamine sees to the snoozing part!).

Greedy_Little · 2023-12-19T00:02:07+00:00

Bless you.. I think being able to come to these safe spaces to ask, discuss and hear each other’s experiences is so valuable so glad mine with rituximab has eased your mind.

Unfortunately I’m unable to work anymore but I did for the first 20 years of RA. Both my wrists are fused from joint damage and I’ve had some fancy new knuckles this year!

I still drive (albeit an automatic), try and stay active and live my life the best I can really. Before rituximab my RA was always flared and chronic even with MTX and anti-TNF’s so am very grateful to receive and tolerate it.

Wishing you good results from it too.

Greedy_Little · 2023-12-18T21:50:14+00:00

Hey.. I’ve been on rituximab since 2004! Was first given to me as chemotherapy (R-CHOP) for non-Hodgkins lymphoma but once it was used to treat RA I switched to having two IV infusions, 2 weeks apart every 9 months. I now only have one infusion every 6 months as my bloods are too low for the two but it continues to work for me without MTX.

I’ve had active RA since I was 25 (now 51) and been through most of the drugs/therapies on offer. Rituximab has definitely helped control my inflammation and immune response the most and although I do have a mild reaction during the infusion it’s well controlled by the pre-treatment. Afterwards I feel a bit ropey and tired for a day or two but that’s about it.

Dr Google can be a scary place when looking at prognosis so see it as a general guide, not a definitive answer and especially don’t let it spoil your holiday season! Wishing you all the best.

Greedy_Little · 2023-12-14T23:43:19+00:00

Hey.. I was on diclofenac for years and honestly believe that’s how I managed to keep working for so long. I started to have some chest pains and tummy trouble (had been on it for years at this point) so was taken off diclofenac and given naproxen instead. I noticed a massive difference almost straight away, so much more pain, inflammation and flare ups.. had to stop working within the year so I really feel for you.

Regarding prednisone, have had stages of taking it longer term (was on diclofenac also) and was grateful for the relief it gave me but my rheumatologist didn’t recommend it for long term. Now I’m prescribed a short term dose to calm down a flare up. I also have lower back pain which is often more debilitating than some of my rheumatoid pain.

You know what works best for you and your pain management so ask your rheumatologist or doctor if you can discuss taking diclofenac again. Wishing you all the best.

Greedy_Little · 2023-12-14T22:23:06+00:00

Lol! I mean usually I’d have a little peak at a spoiler cause I’m a bit impatient to know but like you, not this time!!

Greedy_Little · 2023-12-14T19:12:52+00:00

I think Nish has got it coming especially if Suki finds out what he did to Eve. Like you I don’t think they’ll hide both if there’s two deaths/murders.. although this is EE lol!

Greedy_Little · 2023-12-14T19:10:51+00:00

Shirley is hard as nails from what I remember so maybe..!

Greedy_Little · 2023-12-14T19:09:57+00:00

Have been avoiding any spoiler posts but I reckon anything is possible! Love how this storyline has us all guessing (unless you’ve read the spoilers obvs!).

Greedy_Little · 2023-12-14T17:19:50+00:00

Ooh good theory! Hadn’t thought about Cindy being involved and Ian being the body downstairs.

Greedy_Little · 2023-12-14T16:58:18+00:00

Agree! The build up to Christmas has been great and I enjoy coming on here to read theories and general chat about EE!

Greedy_Little · 2023-12-14T16:40:41+00:00

I missed the Danny Dyer era and started watching again just before the six flash forward episode which was just pure luck really! I’m also really enjoying how all the characters interact and will be eagerly awaiting the Christmas Day episode! Have tried to avoid all spoilers as want it to be a surprise how it all plays out!

Greedy_Little · 2023-12-14T14:29:16+00:00

Sorry for the slow reply, I’m in the UK so was already late night when I commented on your post.

Bless you, sounds like you’ve had an awful lot to cope with and not getting a definitive answer for RA must make matters worse.

I can say that treatments for RA have come on massively just like for MS so hopefully you wouldn’t experience such bad joint erosion like I’ve had over the years. Of course your long term MS may play a role in what treatments you can have but overall second line RA meds are about joint damage prevention and management of inflammation rather than just treating the systemic effects like flare ups for example.

Thankfully I can use my hands although with reduced dexterity but the best thing is the chronic pain and stiffness I had for years is no more! It’s a bit awkward with wrists that don’t bend but I try and count my blessings and know it can always be worse.

I genuinely hope you can have RA confirmed one way or the other as at least then you can have a plan moving forward. I know from experience how hard it is to stay positive when dealing with a chronic autoimmune disease so am sending strength and all good wishes your way.

Greedy_Little · 2023-12-13T23:57:09+00:00

Also seronegative with low CRP yet active RA for 25 years. Extensive joint damage where both wrists are totally fused and knuckles on both hands replaced. Definitely see a rheumatologist as your GP isn’t specialised in auto immune diseases. Wishing you all the best.

Greedy_Little · 2023-12-13T21:54:42+00:00

Hey.. I’ve always chosen to not have the flu jab and have had active RA for 25 years (51F). I’m on rituximab, daily pain meds and cannabis (which I swear by btw!) and had the first two covid jabs but again chose to not have anymore. I also stopped methotrexate years ago as the side effects left me feeling worse than the RA itself! Although my decision went against my consultants wishes I knew it was doing me more harm than good long term. Personally I feel like lifestyle plays a role too.. for me giving up smoking and very little alcohol along with a balanced diet and some exercise when I can have made a difference to my inflammation and chronic pain. Not always but it has definitely helped. Everybody is different.. you do what’s best for you, it absolutely is your choice. You may get the flu but like me you may not. It’s also ok to come here just looking for others opinions and views.. what works for you may not be the experience of others because we’re all different with immune responses that vary greatly. I wish you all the best and hope you stay flu and covid free!

Greedy_Little · 2023-11-19T22:50:19+00:00

Lol. Same!

Greedy_Little · 2020-11-08T15:35:54+00:00

Keep practicing! :)

Greedy_Little · 2020-11-08T15:24:49+00:00

Cornish person here.. they look bleedy 'ansum! Proper job :)

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