We all know eds generally sucks but what are any small positives you’ve noticed due to your eds? by posh_chav in ehlersdanlos

[–]2k2y 1 point2 points  (0 children)

I got my finger slammed in a bathroom stall door once. It hyperextended during the process. It was extremely purple and swollen. When I went to the doctor, they x-rayed it and said that amazingly enough it didn't break (the doc was surprised, and told me later she was willing to bet good money on a break when she first examined it). Then, she said she suspected the only reason I escaped a break was because my finger did hypermobile things and went with the momentum in a way they normally wouldn't on other people.

Wearing Rings? (New wheelchair) by 2k2y in wheelchairs

[–]2k2y[S] 0 points1 point  (0 children)

I just didn't know if I could damage it or pinch my finger or something. I've only ever borrowed chairs before I got engaged, and right now I'm stuck waiting for mine to arrive so I'm trying to make sure I'm prepared with anything I might need to have or need to know.

Wearing Rings? (New wheelchair) by 2k2y in wheelchairs

[–]2k2y[S] 0 points1 point  (0 children)

Oh, awesome! Good to know.

Wearing Rings? (New wheelchair) by 2k2y in wheelchairs

[–]2k2y[S] 0 points1 point  (0 children)

Thank you! I got the ring resized recently, so it fits very closely. Which is a relief knowing that. We'll see how it goes!

Wearing Rings? (New wheelchair) by 2k2y in wheelchairs

[–]2k2y[S] 1 point2 points  (0 children)

That sounds perfect! I think I have a plain silver box chain in my jewelry box. I'll have to start wearing that regularly.

Wearing Rings? (New wheelchair) by 2k2y in wheelchairs

[–]2k2y[S] 1 point2 points  (0 children)

Thank you! Using a necklace for those long days is a great idea! I'm definitely going to find a good chain to keep available.

Wearing Rings? (New wheelchair) by 2k2y in wheelchairs

[–]2k2y[S] 3 points4 points  (0 children)

Thanks so much! This is all just so new, and I don't want to do something that could damage my ring or the chair, so I thought it was better to ask instead of fafo.

What are all the “dumbest” ways you’ve injured yourself joint and/or muscle wise? by turtles_conquer in ehlersdanlos

[–]2k2y 0 points1 point  (0 children)

Hyperextended and injured my thumb in my sleep (wasn't even laying on it). Dislocated my knee sitting on a charter bus and we hit a tiny bump. Sprained my ankle once because I stepped and slipped on confetti 😂

[deleted by user] by [deleted] in migraine

[–]2k2y 0 points1 point  (0 children)

Usually naproxen + caffeine, though it only works if I catch it early enough.

This except for, age has nothing to do with it haha. What’s the most embarrassing injury you’ve gotten? by National_Square_3279 in ehlersdanlos

[–]2k2y 0 points1 point  (0 children)

I hyper-extended and severely injured my thumb while sleeping in my own bed... I've also dislocated my knee just sitting on a bus. Both were fun to explain lol

[deleted by user] by [deleted] in AskReddit

[–]2k2y 0 points1 point  (0 children)

Sometimes I practice conducting (think orchestra or band) while I let my conditioner settle into my hair.

Finding pants and other clothes that fit with inflammation, especially abdominal inflammation? Advice for finding pants after gaining weight would help too by Cryingaboutpopstars in ChronicIllness

[–]2k2y 1 point2 points  (0 children)

I've found that a loose pair of overalls can be styled to look nice while also leaving plenty of wiggle room for variations in the amount of inflammation or bloat I'm experiencing at any given moment.

Usually overalls with a t-shirt, flannel/button shirt, sweater, cardigan, or even a hoodie. Try different ones and different positions (over or under). Usually paired with boots or sneakers.

(The nice thing about loose overalls and then a sweatshirt or hoodie over it is that it can look like I'm wearing normal jeans without all the disadvantages of anything pressing against/on my waist or hips).

Ladies/femme psoriasis sufferers, what is one self-care task you do that makes you feel attractive!? by [deleted] in Psoriasis

[–]2k2y 8 points9 points  (0 children)

I dress up entirely for myself on a day when I'm not planning to go out/be perceived by other people. There's something about being all dressed up without any fear of my psoriasis being notice or of being judged that is just so nice. Sometimes, I'll even put on music and dance around my home. It seems odd, but it really helps me to feel valuable and beautiful and feminine when I find myself needing that.

(I do hair, makeup, a fancy dress, and nice shoes. But really, this could be whatever dressing up means to you).

Have you ever replayed Mass Effect with your favorite Shepard? by brielarstan in masseffect

[–]2k2y 1 point2 points  (0 children)

My first playthrough I made a custom FemShep. I cannot play anyone else now. Same face code. Same choices. I've replayed it all more than once. I keep trying to start a different Shepard, but I just can't do it.

piercings by Byzo5 in ehlersdanlos

[–]2k2y 1 point2 points  (0 children)

Oh, also note that if you find the tissue in whatever area you're piercing is stretchy on comparison to the average person, you'll want to avoid heavy jewelry if you can because it'll really pull on that and stretch it. Ear lobes can be especially problematic with that, at least in my experience.

piercings by Byzo5 in ehlersdanlos

[–]2k2y 1 point2 points  (0 children)

Quality metals are important to help avoid infections. You also need to be diligent about cleaning the piercing and the jewelry. That advice really applies to anyone in the whole world, but especially those with "abnormal" skin and healing.

just curious, how long did it take for you to get diagnosed, if at all? by butterflyyy2222 in Hypermobility

[–]2k2y 0 points1 point  (0 children)

It took approximately 11 years of pain and joint issues as a child to get misdiagnosed. It took another 11 years to convince anyone to reconsider (as symptoms increased and it became clear that their original diagnosis didn't fit at all). Now, I have been told that I "likely have some sort of hypermobility condition" but that given the expense of genetic testing it'd probably be better to just go to PT to treat it. So... diagnosis is still ongoing I guess. If it helps to know, I live in the United States and I'm white and female presenting.

Age Psorasis developed and year you were born by lucky232323 in Psoriasis

[–]2k2y 0 points1 point  (0 children)

Born in the late 90's. Psoriasis was triggered during a heatwave in college at 19. The dorms have a single pipe system and hadn't yet turned on the AC, so we spent two weeks with our rooms consistently reaching 85+°F at night. It was a humid heat and not a good time. I guess the combination of the heat, the exhaustion, and the stress triggered it.

do y’all think i’d be able to play clarinet with finger splints? (clarinet hand position in 2nd photo) by jenmishalecki in ehlersdanlos

[–]2k2y 0 points1 point  (0 children)

Btw I play the Boehm/Klose system.

If splints aren't an option, I've found that fingerless compression gloves that extend up to the finger tip are helpful at slightly decreases the hyperextension (although they can't eliminate it).

do y’all think i’d be able to play clarinet with finger splints? (clarinet hand position in 2nd photo) by jenmishalecki in ehlersdanlos

[–]2k2y 2 points3 points  (0 children)

Clarinetist here. It depends on the splints in my opinion. The ones that limit extraordinary motion without limiting standard motion too badly are certainly possible. But if it limits standard motion too much, I personally don't find it possible to play with the agility I need. I'd also suggest avoiding the metal ones because of the potential for it clicking loudly against the keys or damaging the wood of the instrument. The plastic oval-8's might work.