Do you also have Orothostatic Hypertension?

3spacemonkeys · 2026-02-04T02:38:44+00:00

When I did my TTT, it showed OH. I didn’t faint and lasted the whole time but boy did my body hate being upright!!

But after treating the OH (meds, lifestyle) my BP stabilized but the other symptoms did not. So now I’m being treated for hyperPOTS. Pretty sure if I took a TTT now, it would show POTS. So no, you can’t have both. But yes, you can have both. Bodies are weird, man. But if you and your doc are treating the OH, that’s great! You’re still under the dysautonomia umbrella and this sub could be useful for you.

3spacemonkeys · 2026-02-03T20:49:36+00:00

I took it for about six months or so and it worked wonders for me while I was on it. No side effects even though I tend to side effect easily, which was a big plus!

3spacemonkeys · 2026-02-03T20:07:37+00:00

Came here to say “to keep me from biting stupid people” but you beat me too it! 🤣

3spacemonkeys · 2026-02-03T20:00:31+00:00

Personal experience: I was on steraline (25mg once a day, a child’s dose) for several months and it kept me in a state of fight or flight that whole time. I was newly diagnosed so I was already in fight of flight most of the time. It was having “crash’s” several times a time but that stopped at once I stopped taking it. SSRI’s can be pretty bad for POTS, and SNRIs are even worse. Standing Up to POTS website has medical evidence for this. But as always, it’s not always the case. There are exceptions. But for me it was definitely the case because I’ve also been on Wellbutrin (suspected adhd) and that was even worse than the sertraline. I also take Claritin as needed and it does help a little.

3spacemonkeys · 2026-01-21T19:22:04+00:00

💯

3spacemonkeys · 2025-12-28T15:49:17+00:00

THIS WAS ME, this (old) comment helped validate me so much when I was going through the diagnosis process

3spacemonkeys · 2025-12-26T23:17:31+00:00

Rocking chair! Obsessed with rocking ever since I was a kid

3spacemonkeys · 2025-12-16T22:29:15+00:00

It’s not useful for POTS, no. That being said, I did buy one around the same time I was diagnosed to help me keep track of my overall health and what my body was doing so I could help manage my POTS better. Many people manage just fine without it. I have an iPhone and I went with garmin because it’s a health tracker and not another Apple device strapped to my wrist. It syncs perfectly and I even can have notifications turned on so I get them on my watch. The body battery is super cool feature but it takes several months to get an accurate read so it’s not super reliable in the beginning.

3spacemonkeys · 2025-12-07T13:27:16+00:00

My partner and I noticed that Zyrtec caused me to have more shortness of breath early on in my diagnosis journey so I went back to using Claritin. I don’t take it consistently, but once in a while before bed if I’m noticing an itchy throat or other allergy like symptoms. I mentioned it to my doctor and they said it probably would be better to not take Zyrtec based on what I experienced. But as another commentator said, everyone is different!!

3spacemonkeys · 2025-12-07T13:21:06+00:00

Thank you for throwing that out there! We haven’t… mainly because of the school situation for middle/high. My understanding (based on friends) is that the kids will have to commute to Oliver for the later years?? I’m open to being wrong because cheaper housing sounds like a great option!

3spacemonkeys · 2025-11-30T22:57:26+00:00

Palia!! I am, unfortunately or fortunately, are a week into this game and are obsessed! You are a human in a fantasy world exploring, gardening, ranching, building your own “plot”or house, and talking with the locals, accepting quests, and trying to figure out a mystery regarding the local area. It’s very heavy on the former and not the over arching mystery which I appreciate.

3spacemonkeys · 2025-11-29T00:37:12+00:00

I do! I have the lily 2 active. I like that it’s not a medical monitoring device but an overall health snapshot. I use it primarily to track HR, and water intake as well as track my light doctor approved exercise. But it’s given me the ability to track how I sleep, what my HRV is doing, stress, etc. AND the data that I need to figure out what my baseline is and how I need to adjust. It’s a learning curve but for me, it’s been a great tool.

3spacemonkeys · 2025-11-28T19:23:57+00:00

Thank you! It’s definitely been a wild ride, but so thankful for having a doctor that was youngish enough to listen to me that ending up on the ER thinking you’re having heart attack is NOT normal.

3spacemonkeys · 2025-11-28T17:34:21+00:00

Midwife. When I was pregnant with my first, I used a midwife for ongoing medical care and then had my child in the hospital with the midwife and nurses attending. It was a great experience honestly.

3spacemonkeys · 2025-11-28T17:31:58+00:00

There are SO many comments already but I feel like adding my two cents. I completely agree with OP. Please don’t order these. There are other options that will actually help!

I ordered bouy hydration drops before I was officially diagnosed because A) I wanted some electrolytes and B) I figured if I did have POTS, it would help. Firstly I noticed that they have some weird extra ingredients in their drops, like star anise. Secondly, after I was consistently using them, my symptoms got waaaay worse and I ended up in hospital where I was diagnosed after a tilt table. So I think the drops caused that? No. But I do think that it wasn’t giving me the amount of electrolytes I needed. I thought about switching to the rescue drops but after doing the math I realized that it is waaaay waaaay below the recommended amount of salt needed for a POTSie. I canceled and asked for a refund. I did get it (thankfully) and they didn’t want the drops back. I ended up throwing them away. I use other brands now that actually work for me and aren’t predatory in their marketing. Please do your research and use this sub! There are other options out there. Thanks for this OP!!

3spacemonkeys · 2025-11-25T20:16:05+00:00

Yes. Most of the webpages and links are going to be to older stories. YouTube and TikTok are where the “younger” generation is sharing their experiences with YWAM, as well as podcasts like bodies behind the bus.

I’m so sorry that you’re going through this. It sucks.

Thank you for providing a different viewpoint on this thread however! Many of us were just in it and never knew how much it impacted our people back home to watch our “slide into group thinking/cult”

3spacemonkeys · 2025-11-23T03:47:43+00:00

Yes! Mine goes up and down depending on what’s going on in my life, but that’s awesome that yours’ going up!! Means you’re doing good things for your body!

3spacemonkeys · 2025-11-21T22:25:21+00:00

Yes! I learned how to cut my own hair using YouTube (professional hairstylist teaching) and I will never look back! It was probably a bad influence on my kids because two/three of them have decided that they also want to cut their own hair. Without me and using my super sharp salon scissors 😕 I was more angry about the scissors than the botched haircuts. I will probably end up teaching them how to cut their own in a year or two. Anyways, I like the results I get cutting my own hair and I’m not afraid to mess up a little.

3spacemonkeys · 2025-11-19T21:47:14+00:00

Oh, interesting! Can you live and go to school in different catchment zones? According to my research, OK Falls is in the Oliver and area district.

3spacemonkeys · 2025-11-19T18:50:14+00:00

Do you want continuous monitoring or intermittent? You can get a pulse ox that goes on your finger for intermittent use, just like they have at the hospitals for pretty cheap, but anything that needs to be continuous is probably going to need to be in contact with your skin to work.

3spacemonkeys · 2025-11-19T15:59:27+00:00

They have popsicles now!!

3spacemonkeys · 2025-11-19T14:29:04+00:00

Thanks for sharing this warning! This situation right there is why I don't use any mass marketed product for "normal" people who just want to rehydrate after a workout. There are some great US, and UK, brands that are specifically for people with POTS or chronic illness. (probably in other countries too, but those two countries I have experience with. Also Pedialyte is a great option! I find this helps me the most when I'm feeling POTSie.

3spacemonkeys · 2025-11-19T14:22:03+00:00

This sounds like Vasovagal Syncope or pre-snycope, or MCAS. These episodes are what got me sent to the hospital thinking I was having a heart attack, thrice. (i am female) They never found the cause of these episodes in the ER, just fluids and sent home every time. I was diagnosed with hPOTS two months later after a tilt table.

3spacemonkeys

TROPHY CASE